PERSEVERANCE: WHAT EXACTLY ARE YOU TRYING TO ACCOMPLISH IN YOUR POSTS? « on: July 15, 2016, 02:05:25 pm »
Assuming these posts aren’t a cut & paste patchwork of various research data obtained from the many resources that exist in cyberspace, I do admire you and appreciate the time and painstaking analysis involved in contributing to the BB.org information collective…
…unfortunately, I find the essence of many posts to be discouraging, disheartening, and offering little to no hope to those severely debilitated and crippled from the hellacious symptomatology of iatrogenic illness, as it exists in benzodiazepine withdrawal.
Words such as “permanent;” “irreversible;” and “learning deficit,” inspire hopelessness, fear, and a deep-seated sense of despair and anguish that isn’t easily resolved or relinquished; in fact, often thrusting the reader into a downward spiral, deeper into the abyss.
The scholarly, didactic verbiage that is necessary and inseparable from professional clinical trial and research writing format, further confuses and exacerbates the reader’s fragile psychological state.
“In rats given benzodiazepines chronically, the common α 1 γ2 sub-units are down-regulated, while rarer sub-units are elevated proportionately (Holt et al, 1999). It is suggested that transcription of the Gene cluster on Chromosome 5 (which encodes for α1 β2 γ2 sub-units) is inhibited on chronic benzodiazepine administration, while the transcription of the Gene cluster on Chromosome 15 is upregulated (Holt et al, 1999). In certain brain regions, the Chromosome-5-encoded receptor sub-unit proteins are replaced by those encoded in Chromosome 15, which show less sensitivity.” (4)
This excerpt is quite esoteric in nature and would require the highest level of comprehension and routine familiarity found mostly in researchers with PhD’s (not practitioners).
The one thing I’ve learned in neurology is that few things are conclusive or certain. BWS is severely under-researched and much is not fully understood by the medical community.
One question I continually ask myself since joining BB.org is, “How many people have I inadvertently hurt through bad advice?”
If for every 500 I helped, but hurt 1, I would cease to interact any further, simply because it’s not my call to make in weighing human wellness, health, and life.