Due to COVID-19 isn’t it time Benzo Buddies tells its members to immediately stop tapering, and go back on benzos? Why are they torturing people?

COV19 making it even harder to taper
« on: March 17, 2020, 10:23:25 am »

[Buddie]

increased stress. Now asked to work from home.
Don’t have much equipment to work from home.
Going to work helped my socialization.
I’m in a major long hold. Fear all the stress
will just keep me on the med. Also restart SSRI
to cope with the isolation and stress. I know I
ask a lot. I ask for prayers. Ty

Re: COV19 making it even harder to taper
« Reply #1 on: March 17, 2020, 03:01:44 pm »

[Buddie]

I am not sure if it will help. However when I work from home I usually keep a TV, YouTube or radio on as ‘background noise’. This usually helps me cope with isolation.

Re: COV19 making it even harder to taper
« Reply #2 on: March 20, 2020, 10:55:28 am »

[Buddie]

I’m letting all the pandemic news scare me
bc it’s change. And I had adjustment do
even before all this. I find I can’t tolerate
SSRI ordered for me . It’s too sedating
and makes my body feel terrible. Ty

Benzo Buddies member attacks Baylissa for fearmongering

Thoughts on Baylissa: hydroxicine, physiotherapy, could these hurt your taper?
« on: August 02, 2019, 08:26:51 pm »

[Buddie]

OK so I really like Baylissa, her energy, her book (although I’ll never understand why she did such a fast taper), and the way she overcame it and now is helping so many people. I was watching a youtube video by her and she says some people are not healing and they think they’re going everything fine but they’re doing stuff that hinders their taper, and she gives examples: alcohol, weed, (ok these are obvious), but then she says: antihistamines, physiotherapy, supplements of foods…

So apart from the gabapentin and the trazodone for sleep, I don’t sleep and the doctor said ok take hydroxicine too at night (antihistamine). And then as my muscles are so stiff I go once a week to a physiotherapist for deep tissue massage. So I think, oh great, so the hydroxicine and/or the physiothrapy could be what’s preventing me from stabilizing after my bad crash and updose (please no comments on kindling and tolerance, don’t want to hear it).

Any thoughts/experience on healing in spite of hydroxicine, psycotherapy, trazodone, gabapentin and a little ounce of chocolate some nights? I’ll skip the chocolate tonight for sure.

Brainwashed Benzo Buddies members can’t leave homes, trips outside cause panic

Frustrated with social anxiety
« on: April 27, 2019, 03:18:15 pm »

[Buddie]

Sleep and appetite are good right now which is a relief considering start of my taper. Still frustrated with social anxiety that comes and goes since I’m not usually socially anxious at all. To the point that a dinner with my wife and trip to grocery store are unsettling. 🙁
Has anybody else experienced social anxiety even in normally comfortable situations?
Know I should be grateful I’m not having worse SXs but this still is bothersome and I’d love for it to pass sooner than later!

Re: Frustrated with social anxiety
« Reply #1 on: April 27, 2019, 03:39:08 pm »

[Buddie]

Yes this is intense for me as well. I do actually already suffer from this but it is WAY worse during my taper. Leaving my house puts me in straight panic.

Re: Frustrated with social anxiety
« Reply #2 on: April 27, 2019, 04:27:46 pm »

[Buddie]

Social anxiety is my major symptom in addition to tinnitus. Like you said, even going to a restaurant can unsettle me. But I do it and I even go to rock/blues/jazz/classical concerts. The anxiety usually subsides as I drink a few beers and start to focus on the music. I had never had an issue like this before. I hope it will disappear once I’m done with my taper.

Benzo Buddies hags claw each other’s eyes out fighting over who has it worse

Reassurance PLEASE......😢
« on: July 08, 2018, 06:14:25 pm »

[Buddie]

I always thought I was a strong person, until this experience with Benzos. I’ve been clinging to the edge of my strength and sanity since 9/2016. {I don’t have a sig up because I’m too traumatized to recount the details of my doctor forced CT}. The level of suffering has morphed from vomiting daily for a year every morning, into unbelievable head and neck pain, into severe dizziness and confusion. Amongst 100 other symptoms. Seems the layers to this never end. I’m questioning is it worth the suffering, when all I experience is a shift from nightmare to another. Without any light and hope. My goal has been to get to tolderable, just tolerable! And, I feel as though I’m going backwards, daily. The strain this has put on not only myself, husband (who bailed when I was in tolerance and didn’t know it, haven’t seen him in 3yrs), my beautiful children, and elderly parents has been unconchinable.

Does it truly get better? Or, is it really just some that are genetically luckier than other’s? I just want some reassurance that things will improve. I’m not looking for perfection. I need a reason to stay in the fight…….

Thank you for taking the time to read my post.

Re: Reassurance PLEASE......😢
« Reply #1 on: July 08, 2018, 06:32:28 pm »

[Buddie]

[…], yes things do get better.

I had a miserable 3+ year long taper with a year of recovery afterwards, but I gradually got to feeling better. I got most of my clients back, can now drive, see friends etc. And I moved twice!! But it was a long road on which I despaired that things would never improve.

If you want advice, I’ll give it: find a couple of BBs who feel as you do, but who are making progress and hang with them. It was my BB friends who helped me along through my ordeal. We cheered each other on, gave each other shoulders to cry on. One of my “gang” formed the Working Thread (because we all had to go to work) and we interacted there. It was very comforting.

Another great comfort to me was my therapist. She knew nothing about benzo w/d, but I educated her. She was always there for me. Alas, my partner not so much. I think we “wear out” those closest to us.

So those are two things that got me through my taper: BB friends and my wonderful therapist. A group that “gets it” . . . and one person who knows you inside and out and can be your “rock”.

Hope this helps you,

[…]

Re: Reassurance PLEASE......😢
« Reply #2 on: July 08, 2018, 07:38:24 pm »

[Buddie]

Thank you for the suggestions. I appreciate your taking the time to reply. Wishing You Speedy Healing

Re: Reassurance PLEASE……😢
« Reply #3 on: July 08, 2018, 07:39:01 pm »

[Buddie]

Your reason to stay in the fight is for your beautiful children and your elderly parents and for you because you are worth it. I believe with all my heart that you will get better over time. I have read how so many others have recovered and you will too. Like the other poster said, find someone similar to your situation and encourage one another. I will continue to pray until you get a break through.

Re: Reassurance PLEASE......😢
« Reply #4 on: July 08, 2018, 07:51:04 pm »

[Buddie]

Quote from: [Buddie] on July 08, 2018, 07:39:01 pm
Your reason to stay in the fight is for your beautiful children and your elderly parents and for you because you are worth it. I believe with all my heart that you will get better over time. I have read how so many others have recovered and you will too. Like the other poster said, find someone similar to your situation and encourage one another. I will continue to pray until you get a break through.

[…],
Thank you….. Thank you……

Haven’t found anyone similar to my situation. I’m pretty severe.
My children….I Love Them So Much.

Thank you for your prayers. You will me in mine, as well.
Thank you…..

Re: Reassurance PLEASE......😢
« Reply #5 on: July 08, 2018, 08:34:13 pm »

[Buddie]

[…], you DID meet someone who was possibly WORSE than you!!! ME. I think you read my Success Story so you should have an idea that this is the truth.
Here is another truth: We ALL think we are the worst off! That is just human nature.

Okay. YES you will feel better. No one knows (yet) why some people have it so rough and have it last so long. But it does happen. I didnt truly feel “normal” until my 4th year.

Going through this was the hardest thing I have ever done. Without a doubt. But getting through it made me such a better person! I now know that I AM truly strong. I learned a lot along the way as well. I learned how to go to sleep normally. I learned how to deal with any anxiety I had and in all truth, I have little to no anxiety now. Just “jitters” when I start a new job, or do something new. Normal anxiety. I learned what caused my awful symptoms, and knowing that helped me immensely!

[…]. You sound like an intelligent person. I personally think that makes it a bit harder, because we KNOW too much! But being smart is also such a blessing as it will allow you to start educating yourself about all of this. And it truly is key to have a basic understanding of WHY you have these awful symptoms. The human brain is very intricate and complicated, but basically, all it is is a bunch of different chemicals that perform certain functions. Our brains do control everything about us. Benzos temporarily mess up all those chemicals. In a huge way. And then, when you take away the benzos, all hell breaks loose. Those chemicals are going to go up and down and cause crazy symptoms until they do finally get back to normal. And they will, given enough time.

I urge you to stay the course. If I can do it, you can, because I am NOT SuperWoman! LOL! Hardly. I am a 68 year old lady with a long and hard history of abusing various substances. Benzos were my downfall. Taking benzos was the dumbest thing I ever did, but getting OFF benzos was the best thing I have ever done. Amen!

Re: Reassurance PLEASE......😢
« Reply #6 on: July 08, 2018, 09:58:27 pm »

[Buddie]

Quote from: [Buddie] on July 08, 2018, 08:34:13 pm
[…], you DID meet someone who was possibly WORSE than you!!! ME. I think you read my Success Story so you should have an idea that this is the truth.
Here is another truth: We ALL think we are the worst off! That is just human nature.

Okay. YES you will feel better. No one knows (yet) why some people have it so rough and have it last so long. But it does happen. I didnt truly feel “normal” until my 4th year.

Going through this was the hardest thing I have ever done. Without a doubt. But getting through it made me such a better person! I now know that I AM truly strong. I learned a lot along the way as well. I learned how to go to sleep normally. I learned how to deal with any anxiety I had and in all truth, I have little to no anxiety now. Just “jitters” when I start a new job, or do something new. Normal anxiety. I learned what caused my awful symptoms, and knowing that helped me immensely!

[…]. You sound like an intelligent person. I personally think that makes it a bit harder, because we KNOW too much! But being smart is also such a blessing as it will allow you to start educating yourself about all of this. And it truly is key to have a basic understanding of WHY you have these awful symptoms. The human brain is very intricate and complicated, but basically, all it is is a bunch of different chemicals that perform certain functions. Our brains do control everything about us. Benzos temporarily mess up all those chemicals. In a huge way. And then, when you take away the benzos, all hell breaks loose. Those chemicals are going to go up and down and cause crazy symptoms until they do finally get back to normal. And they will, given enough time.

I urge you to stay the course. If I can do it, you can, because I am NOT SuperWoman! LOL! Hardly. I am a 68 year old lady with a long and hard history of abusing various substances. Benzos were my downfall. Taking benzos was the dumbest thing I ever did, but getting OFF benzos was the best thing I have ever done. Amen!

[…],
Read your Success story a couple times. I just watch this weird brain stuff going on in my head would stop. Can cope with the rest. But, the brain stuff is so hard. Feels like fireworks and a LSD trip all at the same time.

Trying to accept all this intense stuff…. If I had truly been intelligent I would have NEVER taken a Benzo.

Thank you for your constant support, and encouragement. It means so much…. Thank You….

Re: Reassurance PLEASE......😢
« Reply #7 on: July 09, 2018, 01:13:01 pm »

[Buddie]

After 25 years, I did a CT. My husband died. Then, a reinstallation, with Xanax and sleeping pills. CT- again. I have been in a dark room, with hallucinations, until month 23. Have I had worse, than others? No. Everyone, lives in their own little hell, in their own way. There is no scale, on who has the most difficult. My best, and closest word, is Respect. If I wrote, that my symptoms were the worst, I would not have it. It is very difficult, for all of us. Right? :)
« Last Edit: July 09, 2018, 01:24:58 pm by [Buddie] »

Re: Reassurance PLEASE......😢
« Reply #8 on: July 09, 2018, 01:54:50 pm »

[Buddie]

Hey […], sorry to hear you’re having such a hard time.
I’m feeling much the same at the moment… Feel free to reach out as I completely get the
Strain on family (I’m living with my parents who practically have to look after me) and I’m not even close to jumping… But we can do this 👊🏼

Re: Reassurance PLEASE......😢
« Reply #9 on: July 09, 2018, 03:29:49 pm »

[Buddie]

Quote from: [Buddie] on July 09, 2018, 01:13:01 pm
After 25 years, I did a CT. My husband died. Then, a reinstallation, with Xanax and sleeping pills. CT- again. I have been in a dark room, with hallucinations, until month 23. Have I had worse, than others? No. Everyone, lives in their own little hell, in their own way. There is no scale, on who has the most difficult. My best, and closest word, is Respect. If I wrote, that my symptoms were the worst, I would not have it. It is very difficult, for all of us. Right? :)

[…],
Not sure what you mean by your comment. I will respond how I think you meant it.
It was suggested to me to find a B.B. with symptoms similar to mine. I have yet to find anyone with symptoms similar to the severity of mine. None of us has fully shared every little thing they have experienced in this journey. I know MY truth and MY experience and have not read anything that closely resembles my journey. Certain general aspects yes, many other aspects no. To have it suggested to me that I don’t have RESPECT I find truly offensive. This forum, I thought was a place to lend support. I reached out for that support. Not to be kicked when I’m down. RESPECT is a word that maybe you should look at the definition. If you can’t help a fellow BB then don’t post anything.

Re: Reassurance PLEASE......😢
« Reply #10 on: July 09, 2018, 09:05:14 pm »

[Buddie]

[…], get a grip, please. You are pushing yourself into thinking you are so different from others here, worse, THE WORST, etc. And that is a total lie you are telling yourself. That lie will not help you, it will hinder your recovery.

You are NOT the worst off here. I have heard that so many times now it is a bit funny. When I was a Moderator here, we had several people similar to you, (and me-) people who truly thought they were the worst case ever. (And that includes me, because for a fairly long time, I thought I was the worst one here! And who knows, maybe I WAS!) But in the end, none of this really matters. What does matter is how much effort you put into helping yourself, by remaining positive, by learning as much as you can, and by trying to help someone OTHER than yourself.

I disagree with your feeling that most people dont try to tell the truth here. I did, on my Blog and Success Story. I attempted to describe the utter hell I lived in. I DID avoid yakking about it on this part of the forum, the Cold Turkey Dept.. I knew that I should fake it here, and tell the real truth “privately.” This strategy worked very well for me. I did not lie here, but I did avoid talking about how awful I felt, EXCEPT on my Blog and finally, in my Success Story. I think you know how difficult it is to explain these symptoms. It is beyond belief what some of us go through. Nothing prepared me for the hundreds of symptoms I had. It came as an enormous shock to this old Nurse.

You will get through this. Time is on your side, because the brain always tries to heal itself and almost always, it does.

TERROR AT TESCO

I went to TESCO today!
« on: January 02, 2018, 05:19:06 pm »

[Buddie]

In the car!! By myself!!!

I haven’t been able to go there to do any shopping at all for months and the whole ‘online shopping and getting someone to get bits and pieces in between’ has become so stressful I decided that was one of the first things I was going to try and do when I felt stronger.

Last night I had a better sleep and felt half-decent after lunch so decided to have a go.  I haven’t been able to drive on the main roads outwith the housing estate but thankfully TESCO is about 10-15 minutes away from the house but still within the estate.  However even if I get there, I can’t go in the normal way because there are traffic lights and I seem to freak out if I get ‘trapped’ anywhere like a queue or a busy roundabout or lights.  And then I figured out I could maybe park in the staff car park round the back which is reached via a side street before the main entrance to TESCO and means I don’t have to negotiate any traffic lights at all so that’s what I did today.  And then did a LOT of deep breathing in order to get out of the car and make it to the front entrance!

But make it I did.  I grabbed two filled rolls, two salads and 4 yoghurts, saw an empty checkout and tried not to hyperventilate going through it.  There was a Holland and Barrett shop in the same complex so I popped in there afterwards and got some papaya and pineapple as a snack treat then stopped at the cash machine on the way back to the car to get money out as well.  Three things I would have had to ask someone to do for me normally.

And I discovered the other good thing about the staff car park is that it’s pretty quiet so I was able to give a whoop of delight when I got back to the car without any men in white coats appearing to take me somewhere padded :laugh:

And then I took the car for a 10 minute run which involved going onto one of the main roads which did produce a mild panic attack but I was able to calm myself down once I turned off into a side street.

Now that’s a big deal for me because whenever the panic has started before when I’ve done something like that, it’s always just got worse and worse and no amount of breathing exercises or calming strategies have worked in the slightest.  As you can imagine, being the driver in a car when that happens and still having to have a 20 minute journey to get back home makes that a frightening experience and results in eventual avoidance.  So the fact that I seem to now be able to become calmer while still IN the car says to me that my brain is very definitely healing and reduces the terrible fear factor somewhat.  Well it reduces it in theory ……  ;D

Once home, I popped the shopping in the fridge and took myself off for a walk to celebrate.  Possibly being the only human being on the streets, it being a very wet and windy afternoon but you know how it is – you feel better and you just want to do some ‘normal’ stuff for a change.

I was able to go much further away from the house than I normally do although timewise my walk was only 5 minutes longer than yesterday’s but it was much more of a WALK if you know what I mean.  Yesterday I was tootling around the lanes and paths very close to my house and eking out the walk to give me a decent time – today I was properly walking on the pavements at a good pace and being ‘normal’ tired rather than ‘scared’ tired.

Which of course means I am now knackered, feel terrible and could go off to bed right this minute!! :laugh:

Still it’s nice to put a tick (for a window) in the notebook where I’m keeping track of what I take and how I feel on a daily basis instead of a cross because there’s been somewhat of an abundance of crosses lately :-\

Good start to the year eh?