Kooks come up with new disease – benzo flu – and wonder if it’s Covid

Benzo Flu or Covid??
« on: January 10, 2021, 08:00:29 am »

[Buddie]

Hi Everyone,

I’m nearly a year off – yay!!!! I’ve had 3 COVID tests whilst being in withdrawal & all have been negative – I’ve put it down to Benzo flu, I’ve gotten slogged this week with super stressful stuff (identity theft & subsequently had to prove the $5,000 telephone bill
Wasn’t mine, car broke down etc) & Saturday morning I woke up with a super sore throat & flu like symptoms.

Withdrawal in the time of COVID ain’t no fun at all. How do you deferentiate between Benzo flu or if it’s a virus or COVID? I’ve been going for COVID tests to rule out COVID but does anyone have any ideas how to determine if it’s Benzo flu without going for a test? I have a sore throat that comes & goes so I’m leaning towards it’s Benzo Flu.

Almost one year since I jumped. I’m praying/pleading/begging that this will
All he over soon and I can have my mind, body & soul back. Lord only knows how I’ve come this far but some how I have. Thanks for your support & feedback.

Re: Benzo Flu or Covid??
« Reply #1 on: January 10, 2021, 09:43:36 am »

[Buddie]

I thought I had a bad luck, but you’re probably the unluckiest member of BB… I don’t think there’s a way to know if it’s benzo flu or real deal unless you test for viruses.

Re: Benzo Flu or Covid??
« Reply #2 on: January 11, 2021, 04:43:40 pm »

[Buddie]

Benzo flu tricked me into getting tested in Nov and the test was negative.

However, I did get covid in Dec for real – you will know the difference if you get the full symptoms.

I survived and am back to my “benzo functional” again:) I am thankful.

Mayo Clinic recommends psych ward after wife loses everything to Ashton

Nursing Home until I become healed?
« on: December 09, 2020, 09:28:18 pm »

[Buddie]

After 2 years of being bedridden, unable to care for myself, I cannot live like this anymore. My husband has been doing his best to care for me, but I have not seen any signs of improvement. My mental function is gone. I live in extreme pain, with over 100 extreme symptoms daily. I am only 56 years old but living a life of a senior shut-in.

I am wondering if any of you know people who have ended up in a nursing home because of benzo injury? What happens when our only caregiver cannot take it anymore and wants to get on with their life? Then what? I am unable to go anywhere (have even cancelled all my dr. appts. in the last years), cannot shower except for maybe once every 5 days now, live in my unkempt bedroom all alone while my husband is out living his life. But, he wants to be able to travel, do outdoor activities, ALL the things we once enjoyed together, which kept us extremely busy. He has been leaving town here and there to do some activities but has to be back by dark because I cannot be alone in the dark anymore. My mind has been damaged and I no longer have any hope. I have not had any windows and I’m only getting worse.

The guilt is unbearable to me, even though I know I didn’t cause this injury myself. What am I supposed to do?

P.S. It took me a very long time to write this and everything I have to try to make sense of this post. I cannot express myself, even in writing anymore, let alone with words.

Re: Nursing Home until I become healed?
« Reply #7 on: December 31, 2020, 10:13:04 pm »

[Buddie]

Quote from: [Buddie] on December 22, 2020, 10:03:02 pm
longing

First let me tell you that your post makes sense. As awful as you feel, you are very much coherent. Your sentences string together and your word usage is accurate. As challenging as it was to write, your cognitive function seems fine here.

Your husband is tired. It’s normal. Sometimes caregivers feel they aren’t allowed to struggle, because the person they care for is struggling more. But that isn’t true. It is really lonely to be a caregiver. It is hard work. It is frustrating. It’s normal that he wants his partner to share life with him. This doesn’t make him bad or unloving. I don’t say this to guilt you. More to shine a light on the big picture. Who cares for the caregiver?

I doubt a nursing home could do much for you. First, you would have to qualify by virtue of age. You are too young. Many seniors who are very disabled are waiting to get in to nursing homes. Nursing homes are very expensive, too. Also, it would be so disempowering.
It is like saying that nothing can be done and healing is futile. Maybe this age and money thing is only true in Canada.

You say you have over 100 symptoms every day. Bedridden. Cannot even bathe yourself. There is no improvement at all. So, this is a severe and rare case of protracted withdrawal. What have you done to improve your situation? Again, not to doubt you, because you have likely done many things. Recovery is an active process. It doesn’t happen just by waiting for it. Others cannot give it to us, no matter how well they care for us. Maybe if you list what you have done, then we can perhaps add ideas?

I wish you could find someone to talk to. Possibly locate an online therapist?

I have had many tests, even been to Mayo Clinic two times. They just want to put me into the psych ward because they don’t believe in benzo withdrawal. They tell me it’s just a severe case of depression. Well, of course, I’m depressed. Who wouldn’t in my situation? But I was never depressed or had any kind of mental illness until I became tolerant to the clonazepam. I was on it for over 20 years, daily. My life is gone. I have tried many supplements over the time I’ve been suffering, but none have helped. I take a multi vitamin daily and an adrenal support supplement. I have to take .25 mg. Trazadone to help with sleep, which is pretty much non-existent still. This is the reason I was put on clonazepam in the first place. I have chronic daily migraine and for years, I have not slept. My neurologist is the one who put me on benzos and now he has flat out told me that he doesn’t know anything about benzo injury and withdrawal and therefore, cannot help me. He actually told me that if I find someone to help to let him know. I wish his life would have been ruined, like he did to me. Horrible, horrible doctor!

One of my family members thinks that if I would just start smoking weed that all this will go away. I tried it…one puff…one time about a week ago. I became even more depersonalized and it was awful! Not for me. I hear it helps others though.

If I have to continue to exist in hell like this, I won’t. There are many who have not been damaged nearly as much as I have. Why does God not listen to me? I have been a christian all my life and have always prayed, but it’s like He’s not even real to me anymore.

Benzo Buddies kooks offer in-depth help for benzo belly

Benzo Belly help
« on: October 24, 2020, 06:50:26 pm »

[Buddie]

Will be down to 1 and 1/2 V on 11/02/2020. Suddenly, I’m having symptom added that has me bloated. Anyone else have this and if so, what did you do about it? Any suggestions guys?

Re: Benzo Belly help
« Reply #1 on: November 18, 2020, 12:38:56 am »

[Buddie]

Bloated as in intestinal flatulence? Yeah, that’s part of Benzo Belly. Avoid fried foods, legumes, cruciforus vegetables (Broccoli, Cauliflower, etc) – basically any food that can cause gas buildup. Buy GasX, Phazyme or generic Simethicone capsules or chewables to relieve buildup. Constipation usually is in tandem with this, so you might need Miralax, Metamucil, Sennakot, generic versions of these, or something to get bowels moving. Eat simple foods, avoid seasonings. Oatmeal, bananas, potatoes, cooked carrots, sweet potatoes, rice. plain chicken, fish, as examples.

Two mini brownies sends kook over the rainbow

Terrifying episode
« on: November 14, 2020, 02:23:12 am »

[Buddie]

I just ate two mini brownies and my heart rate sky rocketed over 100 bpm. Is this normal!!??

Re: Terrifying episode
« Reply #1 on: November 14, 2020, 02:31:56 am »

[Buddie]

Yes. It is. I avoided sugar, caffeine, chocolate etc. Also, gluten can provoke this. Your heart rate will settle. Maybe just don’t do that again. I hope you feel better soon. Try to breathe slow and deep.

Re: Terrifying episode
« Reply #2 on: November 14, 2020, 04:03:45 am »

[Buddie]

Thanks […]

it didn’t feel like a panic attack but my heart was doing it by itself. It slowed down but it was like I was given and injection of a stimulate or coke. Not that I’ve ever tried any illegal drugs but I can imagine that is what it might feel like

Benzo Buddies members attempt top another suicidal member from going to psych ward

My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« on: November 05, 2020, 11:27:36 am »

[Buddie]

Wha do i do. I quit my last dose of effexor xr 37 mg tapered off with 20 mg tablets on october 6th. was put back on a small dose February 2020 in a psche ward for attempting S. I was also forced on risperdal which i quit in august. About 3 days ago my symptoms have gotten worse. My head started crackling and squeezing more and my brain went even more numb and squeezed like crazy, also my muscle spasms and tightness are worse, my chest is fluttering and very tight. My spine is crushing. And tonight it has happened 3 seperate times. I cant breathe well. I am wobbling and shivering back and forth like crazy. . If i go to a psych ward they will just give me drugs and benzos. But my brain is so numb ativan does not work anymore anyways. They did it to me before n november 2019 and it did not work. Help, my 3rd unbearable attack tonight. Is my brain and body failing? It feels like am dying, i am so weak. I am scared. Dont know what to do.

Re: My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« Reply #1 on: November 05, 2020, 12:02:14 pm »

[Buddie]

I want to help you, John, but I don’t know how. Psychiatry has no other cure besides these drugs that led us to this state. The more we took them, the more sick we became.

Re: My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« Reply #2 on: November 05, 2020, 12:09:29 pm »

[Buddie]

The worst thing is that both psychiatrists and patients themselves often do not understand that this is not a disease, but comes from their medicines.
Psychotropic drugs are scary things that they do to people. You have a drug disorder, John, caused by chronic brain damage from psychotropic drugs
« Last Edit: November 05, 2020, 12:15:42 pm by [Buddie]

Re: My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« Reply #3 on: November 05, 2020, 08:44:17 pm »

[Buddie]

Yeah, i am about done with all this. I cant take any of this anymore
2 years now and my brain is mush. Cracks, squeezes, itches, spine squeezes, dozens of other side affects. i am losing all hope. . How the heck can you stay positive with all this horrendous , indescribable horror going on with us? the positive people are the ones who get relief and see improvements. I want peace and happiness. I trusted psychiatrists. I was only 15 when i was given effexor xr. Oh, it is safe they said. I was given prozac in the 3rd grade because i kept to myself. What quacks this medical industry is.

Re: My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« Reply #4 on: November 05, 2020, 09:05:24 pm »

[Buddie]

It is indeed an industry of great quackery John. I’ve had it shit in other ways. 21 months for me. It’s still a struggle. Wearing.

The only thing that in any works for me is to roll with it best I can. Acceptance is key for me now. Acceptance coupled with distraction, action, is even better. Sometimes hard for me to do.

You have been on psychotropics since early childhood it makes sense to me that you would feel the way you do. Your brain is trying to recalibrate. Give it time.

Re: My pulse is 201 off and on 3rd time since 10 pm psyche ward?
« Reply #5 on: November 05, 2020, 09:16:52 pm »

[Buddie]

Thanks […]. I am trying. Ever since ECT while going through drug withdrawal i have so much damage, it is ridiculous.

“One bad apple”

Alcohol in foods
« on: July 05, 2020, 09:31:09 am »

[Buddie]

Hi, I just ate an apple that had a little alcohol taste to it and now I’m afraid it will set me back a little.. Do such small amounts of alcohol have any impact on the gaba receptors?
« Last Edit: July 05, 2020, 11:08:25 am by [Buddie] »

Re: Alcohol in foods
« Reply #1 on: July 05, 2020, 11:35:14 am »

[Buddie]

Apples don’t have alcohol in them. You should worry about eating apples, they are very good for your overall health.

Re: Alcohol in foods
« Reply #2 on: July 05, 2020, 12:09:38 pm »

[Buddie]

Thank you for your response, […]. Well there can be if the fruit is ripe/overripe. The yeasts can ferment the sugars of the fruit and produce alcohol.

Re: Alcohol in foods
« Reply #3 on: July 05, 2020, 12:12:37 pm »

[Buddie]

Quote from: [Buddie] on July 05, 2020, 12:09:38 pm
Thank you for your response, […]. Well there can be if the fruit is ripe/overripe. The yeasts can ferment the sugars of the fruit and produce alcohol.

Honestly, this should not be something you need to worry about. I ate a lot of fruit during my taper and recovery in an effort to eat cleanly.

Re: Alcohol in foods
« Reply #4 on: July 06, 2020, 08:21:31 am »

[Buddie]

Unless your apple was a mushy pile of fermented goo= I think you are getting a bit overly anxious. Not many people are going to pick up a fermented apple and manage to eat it. Animals do it fairly often and exhibit signs of intoxication but those are some seriously fermented fruits! It is much more likely that your apple was in the same container as a bad apple and took on some odor/taste that absolutely will not mess your system up. This is why they have the whole “one bad apple” saying = They quickly take on the icky odor/flavor of a nearby nasty one. It doesnt hurt you, it just makes for an unsalable product. Maybe just don’t eat the rest of it if it doesn’t taste right?

Another former Benzo Buddies member warns public to stay away from fear-driven cult site, listen to your doctor

I will say this. I got caught in the benzo world. My doctor 4 years ago prescribed Ativan for me daily. I didnt know what it was cause well, I didn’t. After a while it quit working and he upped the dose and I soon found myself “needing” more. After my doctor retired I found a new doctor who was shocked by the amount of Ativan I was on a day. When I explained how I felt he said quit frankly “you are addicted.” I thought I could quit just taking them. I overestimated that you couldn’t. So with my doctor’s help, I got clean. It took 9 months.

I stumbled across Benzo Buddies after googling “benzo online support groups.” OMG. Well, at first they are loving and supportive when you are a newbie. Then all hell breaks loose. That site is fear-driven. I would spend multiple hours a day (at the time I was a stay at home mom and helping care for my aging parents). I would support and post my own journey. Everything that happened i would attribute to withdrawal and I’m sorry to say I was one of the Kooks. One day, about 7 months into my doctor guided “healing” I broke down because I was having a bad day and I said I needed a break from my child. The responses I got were horrendous. One person even commented that I should do like them and put my child up for adoption cause I couldn’t heal and be a mother. It’s impossible.

That day I realized that the amount of time and kookiness on that site was not actually helping my mental state. My fascination was my downfall. So, I sat down, blocked the website from every device I could, and started making banana bread. I made some sort of bread everyday for the remainder of my “coming clean.”

It’s been almost 3 years now since I came off Ativan. Had I not listened to my doctor and had not used judgement to walk away from those idiots… I’d still be on them in fear.

F*ck sake. It might have bern easier if I just started baking as a distraction. I know my previous doctor meant no harm putting me on them. Probably should have paid attention more. But what counts today is that I’m “clean.” The only thing during that time is that I developed tinnitus that doesnt go away. But I’m all good! Stay away from Benzo Buddies. Listen to your doctor. And in like any situation, if you aren’t satisfied or unsure, get a second opinion. Don’t be me and get trapped in that “support group.”

Jordan Peterson: “antidepressants can be absolutely miraculous”

Benzo Buddies kooks add penis problems to list of 90,000,000 benzo withdrawal symptoms

Penis Problem?
« on: February 21, 2020, 05:45:30 pm »

[Buddie]

Hey so before “go get tested” or “you need a real doctor” I’ll say I have been tested for all STDs multiple times as well as had an urologist look at this as well so here it goes..

My penis.

While I was in tolerance withdrawal I had a bad UTI infection that caused the doctors to put me on an antibiotic that really started this whole withdrawal process off with a big bang. He said it was either a UTI or Balantis as the tip was red and sensitive. At one point my balls were aching horribly because of an infection but there just wasn’t a clear problem. He just threw more antibiotics at it which caused my withdrawal to really suck.

It cleared up to 80 with no daily pain so I haven’t thought much of it. Since then I am 3 months post jump but there is a slight redness in the area at the tip of my penis that doesn’t necessarily hurt anymore but just comes and goes and seems to effect the way I pee and often times I “dribble” pee out after I’m done.

It’s not an STD, and there is no constant pain, although about a year ago there was. This just seems to be what’s left of it and it just annoys me so.

Has anyone had any genital problems coming off and any success stories of when they went away. Hands down it has gotten so much better but I’m just at a loss as to why it slightly still bothers me.