Daughter seeks medical advice for infirm 85-year-old mother from anti-psychiatry cult

Helping my elderly Mother.
« on: February 03, 2019, 02:16:20 pm »

[Buddie]

Hi, I have joined in order to help my elderly mother (85) taper off lorazepam.
She currently takes .5 mg twice a day. She was prescribed with the DX of functional neurological disorder. She has recently started amitriptyline and it is helping. Her Dr. And I both want her to taper off lorazepam as her memory has been impacted greatly since starting a year ago. I am my mother’s sole caregiver, and would like to do this in the safest and most comfortable way possible. I would appreciate any help at all. Thank you.

Re: Helping my elderly Mother.
« Reply #1 on: February 03, 2019, 02:24:02 pm »

[Buddie]

Hello […],

Welcome to Benzo Buddies and thank you so much for being here on behalf of your mother! At your mother’s age, care needs to be taken so that the process can be as gentle as possible on her system. I’m glad you’ve joined the forum and I’m glad her doctor is on board with tapering off lorazepam. Often doctors favor a far too fast taper schedule so I hope this person is willing to allow your mother to taper at a very slow rate. You’ll find a lot of good information here. Arm yourself with knowledge, do a lot of reading and you’ll find a plan that works best for your mother.

A slow taper can help to minimize withdrawal symptoms. Generally, a reduction of no more than 5-10% every 10-14 days is suggested. I’ll give you a link to the General Taper Plans for additional information. I would also suggest that your mom’s taper should be based on how she feels. Listen to what she tells you because the taper rate can be adjusted if necessary.

I’ll also give you a link to the Ashton Manual. It is an excellent resource about these types of drugs and how to withdraw. The manual was written by Dr. Heather Ashton, an expert in the field.

Withdrawal can be challenging for some people but not everyone. I hope your mom’s taper goes smoothly and easily. Being a caregiver can also put a strain on you, so practicing self care for yourself is also recommended. We have several members who are supporting a loved one. We’re here for you and your mom so please do ask questions, we’re here to help.

General Taper Plans

The Ashton Manual

[…] 🙂

Member with 30 terrifying symptoms gets no help from Benzo Buddies ghouls who forced him into dangerous micro-taper

please help me - paradoxical?
« on: December 13, 2018, 03:39:59 am »

[Buddie]

I know I’ve reached out to a lot of you and it seems I almost have an allergy to this class of meds. I was only on klonipin for 2.5 weeks in May during some neuro testing for numbness, tingling and spasms. Tests for MRI and EMG came back ok. I then wanted to stop the klonipin because I felt flat and irritable and was only sleeping until 7:30. I was told to cold turkey per my doctor and had a panic attack and burning. My doc then immediately moved me to Ativan starting at 1 mg and then moving up to 1.5 and 1.75 for one night. I weaned down to 1 mg and held for a month but had horrible inter-dose withdrawal. I was dropping 25% a week and got violently ill (vomiting, light sensitivity, brain pressure) then moved me to Valium (direct cross over which really hurt my gut). Landing at 12.5 mg and I thought i stabilized. I’ve been hospitalized for hyponatremia for three days and have had an insane amount of symptoms which shook my CNS. They also gave me generic Valium pills in the hospital and generic liquid. I know all the info above sounds idiotic, but I kept telling my doctor something was wrong and asking for multiple opinions with no help. With Valium I started a cut and hold at first then liquid and had to ipdose from 8.5 to 9 Bc of hyponatremia. I’m now trying a .001 microtaper pills after trying to stabilize on 9 mg for a month. I’m still not stable and have almost electricity coming off me and a charge in my tongue and throat. I know I’ve had so many changes in a short amount of time, but I don’t feel like I can survive this even dropping .001. I have insomnia as well and have lost 50 lbs since May with muscle wasting. I know I seem like the crazy one on the forum, but I had a great job and life before this and I’m at a loss of how to move through it. Every single day I get worse. I’m wondering since I never had a proper crossover would it be an option to cross over to Librium and hold for a long time? Any advice would be appreciated. I was holding at 9 mg and still felt pretty terrible. I wish I had known about the Ashton manual before all of this. I’m currently holding. It also burns when I take the Valium.

Sxs that come and go

1. electric feeling – mouth, throat, genitals
2. insomnia
3. head pressure
4. metalic taste and smell
5. rapid aging
6. dpr
7. looping/ocd
8. burning in extremities
9. thirst
10. spasms
11. tingling
12. numbness
13. hair loss
14. twitching
15. veins popping
16. GI issues
17. dandruff
18. massive weight loss
19. muscle wasting
20. tongue spasms
21. electricity feeling off my face – this is because the hyponatremia rocked my CNS
22. DEPRESSION
23. gas
24. foot jerks
25. blinking
26. acid reflux
27. benzo belly
28. tooth pain and inflamed gums
29. tremors
30. Edema

Re: please help me - paradoxical?
« Reply #1 on: December 13, 2018, 12:21:36 pm »

[Buddie]

Anyone? Moderators?

Internet doctors at Benzo Buddies advise member to drive into a brick wall at 80 MPH

considering reinstatement
« on: November 26, 2018, 09:27:24 pm »

[Buddie]

it’s been a month since i took anything. I can’t eat i can’t sleep can’t play with my kids. I am basically a walking zombie. I have some many symptoms it would be hard to list them all.

Re: considering reinstatement
« Reply #1 on: November 26, 2018, 09:38:45 pm »

[Buddie]

your taper was very very fast and ativan is the worst devil in my eyes..
What you feel now is totally normal. Keep that in mind.
You have 2 options: Ride it out no matter what or reinstate quickly on a benzo like valium hoping to stabilize and do a proper taper according to the ashton manual. Option 2 requires a doctor who gives you the prescription and you do not know if you will really stabilize or feel worse.
All I can say is that this is early withdrawal. 1001 symptoms. The feeling of freaking out. Being half dead, with intrusive thoughts, depression, overwhelming ideas, dreams, insomnia – that is real withdrawal.

My taper from ativan was too fast, too, although I held dosages for weeks and months the cuts were too big. The withdrawal was horrbible but I did not want to reinstate because I was in tolerance from it.

I cannot help you more than telling you that a lot of members have survived what you are experiencing now and that I hope it will get better for you soon. No one deserves this…

Unsupervised benzo tapers putting lives at risk

please help me
« on: July 11, 2018, 04:21:25 am »

[Buddie]

ambulance just left my house. was talking to my husband. i felt very dizzy. started to vomit and some stomach cramps. my legs shaking uncontrollably. felt like i was gonna pass out. then the chest pain and arm pain. called 911. ambulance came. ekg ok. blood pressure good. heart rate ok. they told me i was just anxious. didnt recommend i go to er. i literally felt like i was going to die right then and there. i have never felt anything so scary. i am still nauseous and my left arm hurts. about 50 days into my slow klonopin withdrawal. bam! out of nowhere this came. i was decent up until tonight. anyone can reassure? anyone have a nightmarish thing like this? i was feeling like i had to say goodbye to my kids for good. does this mean i should go back up and drop the wean. i cannot go through this every night

People who joined Benzo Buddies not healed seven years later

Difficult topic - potential for trigger
« on: June 05, 2018, 05:36:07 pm »

[Buddie]

Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done. More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially? I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

Re: Difficult topic - potential for trigger
« Reply #1 on: June 05, 2018, 09:14:02 pm »

[Buddie]

Quote from: [Buddie] on June 05, 2018, 05:36:07 pm
Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done. More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially? I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

Hello […], I think there are many reasons why some of us are taking many years to recover. i am obviously one of them. It may be genetics, underlying health conditions, many complicating factors, sometimes it is very difficult to know. I am lucky, I am 63 and retired, I have a pension and I am okay financially. Not everyone is so fortunate. I am sure you are not a lightweight. For me, I got through it hour by hour, suffering was intolerable, but nevertheless, I got through it. I have very supportive friends but not much in the way of family support. BenzoBuddies was my lifeline for a very very long time. I used many different strategies to distract … as best as I could. But basically I existed ..

None of the stats we have are robust but I think we generally accept that most people will recover in a couple of years and a minority will take longer and a small minority will take even longer. It is important to remember that even when we take quite a number of years to recover we generally improve as I have done so although the first few years were hellish, that does not mean the next few years will also be hellish. I am still not recovered but I am not suffering .. that is all over. I am no longer existing but I am not living either .. but I can cope perfectly well now. Of course I would much rather be living a normal life.

So as much as you are suffering right now, it will get easier. It is extremely unusual for that not to happen. I only know a handful who seem to be getting worse and I have been around for a long time and that may be due to other health issues, I don’t know.

I have never been particularly well so I have had a whole lifetime of coping with illness and disability and that has probably helped me to cope, others will not have that experience to draw on if they have been used to good health.
« Last Edit: June 05, 2018, 09:20:08 pm by [Buddie] »

Re: Difficult topic - potential for trigger
« Reply #2 on: June 05, 2018, 10:17:11 pm »

[Buddie]

Quote from: [Buddie] on June 05, 2018, 05:36:07 pm
Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done.

I am not aware of any study that says that everyone heals within 2-3 years. MOST people certainly heal within that timeframe, but it Ashton herself is pretty clear that this isn’t the case for everyone.

Quote
More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially?

I am 7 1/2 years off and have seen significant improvement in some symptoms, others not so much so. I was able to start a business when I was about 3 years off and I have recently moved back out on my own again. Every day is still a challenge but somehow I manage to hold it all together.

Quote
I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

You aren’t a lightweight, you are just projecting. MOst people feel better and become more functional with time, so you will probably be better off in a few years.

“Benzo Buddies ruined my life”

How benzobuddies ruined my life, long proctated withdrawal 4 years off
« on: June 01, 2018, 06:12:39 pm »

[Buddie]

my last name here was pil54, in 2014 here i Registered after a fast taper of 7mg prazepam, i was just reinstated 4,5mg and it wasnt enought to stabilized me, i should have gone back to 7mg at least or even more for it to be effective, and restart a slow taper.

Back of that i was first on 20mg, i discovered the Ashton manual and was doing it even slower, reducing 5% every 2 weeks with barely no symptoms at all, all was very manageable, working full time job through it. For one year i tapered from 20mg to 7mg very easily, it wasnt the hell people describe here to taper at all, everyone here who describe hell tapering psych meds is just going too fast . Until i stupidly lost patience andtryed to accelerate and it went hell and i ended cold turkey 7mg

I can remember moderators here telling me ” You are paradoxical you just need to quit and let your brain heal, Accute only last 3 month then it will get better, everyone heal”, That sentence EVERYONE HEAL, you will read it all day by every people here, those all unknow people behind their screen can litteraly destroy all your life if you listen them advices.

Its what i did, and thats what they did, they ruined my whole life, I tapered those last 4,5mg in 3 month, reducing 0,5or 0,25mg every 8 days, and i went severly ill because i wasnt stable at all before tapering, they told me ” dont care accute last 3 month “

Am still in accute 4 yeas later, next month i will be 4 years off every benzo or psych meds, and i never recovered from the symptoms of my fast taper here in 2014,

I still have akathisia, i wake up Everyday in terror with electricity in my whole body, with surge of feeling loosing my mind like i have mania, severe insomnia, depersonnalization that never went away 4 years laters, during those years i developped pots syndrome, chronic fatigue syndrome from the daily severe terror my body was experiencing.

They told me ” its normal if withdrawal for years, and i Believe them, i thought it was normal, IT WAS NOT, IT WAS ABSOLUTLY NOT.

Am now living with the crazy idea on my shoulder that i was better 4 years ago while i was doing my slow micro taper, than now 4 years off after my last dose after my failed tapers.

And it’s been the same for my old friends here who Registered in the same generation of me, Hurtbrain, Crazypants, benzommama, rackshka, all those people who tapered wrong and been told they would heal, they are now 4-5-6 years later never healed because of listening people here on that same forum.

That message is to warm the newbies here and all the people suffering to realy inform you before you do a fast taper and listen people here telling you that whatever the way you tapered you will heal, it’s false, its the worse shit every spammed here but its not reality,

Jennyfer Leigh, baylissa,ian singleton, una corbet, They all lie, they all say what you want to hear just to reassurance, but they have no idea how long a brain damage from a rapid taper can take to recover, for years they lied to me saying i would heal if i avoid alcohol and psych meds, I DID, and i never healed 4 years later.

My life is a living hell now because i regret Everyday the mistake i did to listen unknow people advice behind a screen, even my doctor told me to reinstate to my last dosage if i felt sick and retaper slower, it would have been the think to do, instead i trusted that forum

Please inform yourself, the best safe way to escape benzo hell is a micro taper of 5% every 2 weeks of your dosage

Benzo Buddies alcohol experiment

5 months. Alcohol experiment.
« on: April 28, 2018, 01:20:38 pm »

[Buddie]

I am 5 months off of 1mg Klonopin after 6 years of daily, as-prescribed use. It should be noted that I wasn’t well-educated about benzo withdrawal until after I jumped, so my taper was pretty fast in retrospect (0.25mg cuts every 1-2 months).

Aside from anxiety/anger, muscle tension and episodic bouts of lethargy, I’ve been in a pretty good place since the start of month 4.

I know it’s frowned upon, but I’ve been having ONE beer every two months or so to see how I react. In my mind, this is the way to tell if/when I’ve completely healed (when I no longer experience negative effects from a single drink). I’ve never been big on alcohol, so I’m not worried about trading one dependence for another or anything like that.

Anyway… Here’s my latest report.

4/27/18
16oz Coors Light at dinner
(I drank it pretty quick and didn’t nurse it)

Tinnitus (only lasted about an hour) 1/10
Muscle tension 6/10 (worse when asleep)
Sleep sweats 3/10 (not as bad as previous times)
Flatulence 5/10 (still not as bad as previous times)
Neuro weirdness (Eyes darting around/coordination issues/brain zaps 5/10 (not as bad as previous times)
Anxiety 3/10 (mindfulness that this will pass and is par for the course helps- no outright panic)
Overall lethargy 5/10

I’d like to point out that the weird “burning” sensation in my legs has completely gone away after having a drink, so that’s exciting.

I definitely feel “hungover,” but nothing crazy. I do know that sometimes a few of the effects lag and don’t show until a solid 24 hours later, so we’ll see what tonight brings, I suppose.

Does anyone else occasionally try this method? At first I was strictly no alcohol at all, but… I’m angry. I’m done. I want normalcy returned to my life. And dammit, I will get there. :P

***I don’t recommend this method to anyone. This is my own experiment but surely I can’t be the only one.***

Re: 5 months. Alcohol experiment.
« Reply #1 on: April 28, 2018, 01:35:26 pm »

[Buddie]

5 months off and feeling pretty good, you are lucky!!!

Re: 5 months. Alcohol experiment.
« Reply #2 on: April 28, 2018, 02:03:42 pm »

[Buddie]

Quote from: [Buddie] on April 28, 2018, 01:35:26 pm
5 months off and feeling pretty good, you are lucky!!!

Thanks! Yeah, I really am. Especially considering I tried CTing about 3 years back. I only lasted maybe 3-4 days before reinstating at full dose because I turned into a monster. It was bad. I have tremendous support from my husband and friends, which has been so helpful.

I try to keep a positive outlook, because I refuse to be beaten by this.

Swift healing to you!

Re: 5 months. Alcohol experiment.
« Reply #3 on: April 29, 2018, 08:37:38 am »

[Buddie]

let us know how it goes, I’ve had a couple of glasses of wine since new years. But I had a glass each time over 4 5 hours haha still too scared to drink how I used to. I’m sure we’ll get there we just need time unfortunately.

Re: 5 months. Alcohol experiment.
« Reply #4 on: April 29, 2018, 04:42:38 pm »

[Buddie]

Alcohol is called liquid Benzo in this trip. Chose for yourself. You’ll heal faster without it.

Re: 5 months. Alcohol experiment.
« Reply #5 on: April 29, 2018, 06:41:33 pm »

[Buddie]

Quote from: [Buddie] on April 29, 2018, 04:42:38 pm
Alcohol is called liquid Benzo in this trip. Chose for yourself. You’ll heal faster without it.

Some truth to this, although I’ve never heard it called liquid benzo. They both affect the same receptors (GABAa), which may be why the burning went away after a drink.

Even at six years off I rarely drink, but when I do I limit it to 1/2 glass of wine as alcohol has led to borderline panic a few hours later, and I am normally never panicky.

Re: 5 months. Alcohol experiment.
« Reply #6 on: April 29, 2018, 06:49:27 pm »

[Buddie]

I’ve never been a big drinker and I didn’t have an alcoholic drink until I was sure I was healed. I didn’t want to do anything to derail the slow progress I had towards recovery. Once healed I’ve been able to enjoy a glass of wine or a margarita on occasion. I don’t feel any negative effects from the drink. I am a one and done kind of person, no refills for me.

[…]

Re: 5 months. Alcohol experiment.
« Reply #7 on: April 29, 2018, 10:10:25 pm »

[Buddie]

I’m personally too scared to go near alcohol, I’ve heard too many horror stories of it ramping up people’s symptoms and I feel bad enough as it is. I would be careful with your experiment, tolerating alcohol is not the best litmus test for healing. If you have a bad reaction I would wait a good while to test the waters again.

Re: 5 months. Alcohol experiment.
« Reply #8 on: April 29, 2018, 10:12:53 pm »

[Buddie]

Quote
Once healed I’ve been able to enjoy a glass of wine or a margarita on occasion

Me, too. I have a (small) glass of wine maybe twice a week with dinner. No problems.

Re: 5 months. Alcohol experiment.
« Reply #9 on: April 30, 2018, 12:42:39 pm »

[Buddie]

I am scared to even use rubbing alcohol on my skin.