Triple XXX train wreck: PGAD a benzo withdrawal symptom?

The woman pictured above experienced 180 orgasms in two hours. She felt no joy. 

Persistent genital arousal disorder (PGAD), originally called persistent sexual arousal syndrome (PSAS), Weiss Disease, and also known as restless genital syndrome (ReGS or RGS), results in a spontaneous, persistent, and uncontrollable genital arousal, with or without orgasm or genital engorgement, unrelated to any feelings of sexual desire. It was first documented by Dr. Sandra Leiblum in 2001, only recently characterized as a distinct syndrome in medical literature with a comparable counterpart increasingly reported by men.

My Story
« on: September 12, 2015, 07:30:51 am »


I joined the forum shortly after things became extremely weird and complicated for me and I was at an all time low.

I guess it’s a journal of sorts of my journey over the last 12 months. Feel free to view it if you’re bored, I must warn you it’s LONG and it’s grim.

Broken PGAD following withdrawal, desperately in need of hope!
Posted 09 August 2014 - 10:54 AM

Silver star

Location Glasgow

I’m a 31 year old male, married with 2 beautiful little girls and as luck would have it during this difficult time in my life my wife is due to give birth to our 3rd within the next 6 weeks.

I’ve always coped reasonably well with depression and OCD and have done everything humanly possible to avoid it impacting negatively on my work and my family but I’m now dealing with what I believe to be PGAD and despite my best efforts, I’m a wreck.

I took sertraline for a grand total of 6 weeks and at the time I believed this to be the worst 6 weeks of my life but I could not have been more mistaken. Withdrawal has been testing to say the least. I felt horribly detached and believe I was experiencing depersonalisation, another symptom that ensued was akathisia and premature ejaculation.

About 4 weeks into withdrawal I noticed my genitals had become extremely sensitive which I would assume accounted for the premature ejaculation. For the last fortnight I have been constantly tormented by the feeling of arousal, burning and pain in my penis and testicles. My libido is non-exist and has been for some time, these feelings are never accompanied by an erection and I have no intention of making any attempt to relieve them via self stimulation.

I don’t feel perverted or guilty as some sufferers have reported just unfortunate. The depression that accompanies these symptoms is like nothing I’ve ever experienced in my life, I’m at an all time low. I have had to move home to my parents for fear that I might take my own life.

My family are my entire world and I love them more than I could ever put into words, I want nothing more for them than to be happy yet I’m seriously considering suicide as an option?

I took what was prescribed in an attempt to get my life back, to be well for my loved ones, I’ve achieved the opposite. I wish I had never entertained anti-depressants, I just hope I live to regret it.

Watching my pregnant wife crumble at the sight of my rapid deterioration is killing me.

Has anybody experienced these symptoms and did they ever abate?

I need hope more than ever, I presently have none.

Where is god?

December 2008 Prescribed 20mg citalopram (celexa) for depression and OCD.July 2013 stopped taking citalopram (celexa). November 2013 reinstated citalopram (celexa) following replapse at 20mg for 4 weeks, 40mg for 4 weeks and tapered off over 4 weeks as my condition had deteriorated. February 2014 started 20mg of fluoxetine (prozac). Didn’t tolerate it and stopped 4 weeks later, experienced no withdrawal. May 2014 started 25mg of sertraline (zoloft), increased to 50mg after 1 week. Remained at 50mg for 4 weeks before increasing to 100mg at the request of my psychiatrist despite advising of suicidal ideation for an additional week before stopping. Advised to drop to 50mg for 3 days before withdrawing altogether. I did as advised and horrendous withdrawal ensued. 11th August 2014 commenced escitalopram (lexapro), weaned off end of October 2014. Commenced Clonazepam December 2014 0.5mg twice daily, switched to Diazepam 10mg twice daily with a view to tapering of the benzodiazepine altogether. Tapering schedule presently at a reduction of 1mg of Diazepam every 1-2 weeks depending upon side effects. So far experienced no severe physical side effects except worsening of PGAD symptoms upon reduction which does seem to improve within a few days of doing so. Presently taking no antidepressants however still experiencing mild agitation, severe depression and PGAD which is currently being treated by a physiotherapist.

Another Benzo Buddies suicide confirmed

She took her life September 9th. She was only 24.
Was she told her doctors were out to get her?
Was she forced to taper?

Helping one another

Psychiatry remains a science whether you like the DSM5 or not

Quick—which screening test or instrument has greater specificity for the target condition: the PSA (prostate specific antigen) test for prostate cancer, or the BSDS (Bipolar Spectrum Diagnostic Scale), for bipolar disorders?

Wait, one more question: Which physicians are more likely to agree with one another regarding a diagnosis: 2 radiologists inspecting a renal angiogram for arterial stenosis; or 2 psychiatrists using a structured interview to assess a patient for possible major depression?

Those of you who are used to “trick questions” on Board exams will probably not be surprised that the answers are, respectively, “The BSDS” (specificity 0.93 vs 0.33 for PSA); and “the 2 psychiatrists.” (kappa [inter-rater agreement]= 0.73 vs 0.43 for radiologists)1-5 (Disclosure: The BSDS was devised by the present author, then refined and field-tested by Dr Nassir Ghaemi and colleagues; it is available free of charge on this website).

Read more at:

Doctor-bashing benzo petition fails to net 1000 signatures

Benzo Buddies admin and staff love to brag they have nearly 20,000 members (19,694 as of August 18 2015). If that’s the case, why has this ridiculous petition only garnered 544 signatures? Because, in reality, there are only a few hundred active Benzo Buddies members – at best.
Re: The Benzodiazepine Scandal PETITION PLEASE SIGN
« Reply #139 on: August 05, 2015, 03:05:00 pm »


I’ve heard from Caroline today and she won’t take my case as there’s no certainty of a win. I’m leaving it for now, finishing my book and concentrating on helping others.

I will have to remove my petition as there isn’t enough support to use it in presenting to anyone. Just as others before have tried and failed so did this one. It’s a huge and horrible problem that’s not going to go away until laws are changed in the UK or anywhere else. It us up to those of us recovering to do our best to spread the word and get noticed.

A sampling of the hateful comments from this delusional petition:

Name not displayed, NC 24 days ago
Benzos and SSRIs have ruined my life. My withdrawal from an SSRI has taken years and I never was told of its addictive properties. Ditto with a benzo. Big pharma and doctors have made money off of my misery–every time a doctor prescribes a non generic drug, he/she gets a kickback. It’s a horrible, shameful situation for people to profit off of our misery.

Bill Poling, OH 26 days ago
This is my second withdrawal. I was not told about the dependence or withdrawal. Most doctors say withdrawal is impossible. It is very real, brutal reality. Off 16 months and still not right.

CS H, BC 30 days ago
I spent 2.5 years on a Lorazepam PRN and 1.5 years with added Zopiclone, for insomnia related to a chronic disease. My GP prescribed the Lorazepam in spite of my concern about addiction issues and later withdrawal, stating, “We’ll worry about that when we get there.” I ended up quitting cold turkey, without any advice or knowledge about tapering, or even an awareness of the medications’ long-lasting side-effects, which I’ve just had identified for me. At least I now know I’m not going crazy! I’ve managed to stop all benzo use with the aid of all-organic medical cannabis, (specifially Rick Simpson Oil / Phoenix Tears), kombucha tea, water kefir, and juicing. Benzodiazapines should be banned from use for any period of time longer than a week. If I knew then, what I know now, and what my prescribing doctor (I’ve switched, thank you very much) still hasn’t learned…

Name not displayed, PA 2 months ago
Doctors definitely do not understand the nuclear mechanisms behind benzodiazepines. They should be prescribed for no more than 1 week and only when people’s health at stake. So many people’s lives are being destroyed just by taking benzodiazepines as prescribed. These drugs create a neurochemical imbalance where there previously was none. And and there is no professional help or financial help available to people who are suffering from benzo withdrawal – NONE. (Except for the thousands of rehab/detox facilities. – Editor)

Trudie Altit, CA 2 months ago
My daughter failed three times to withdraw from this POISON and had to be fully reinstated. Nevertheless, we don’t give up until she will be freed from these ‘sick making’ drugs and get her life back. What an horrible experience and suffering for her and ALL of you being on benzodiazepines. Definitely, they should be banned = a big financial loss for psychiatrists and the pharmaceutical industry. May be, one day, we’ll get to it. It’s my deepest wish…

Read more:

Kooks add female baldness to list of 90,000,000 benzo withdrawal symptoms

Has anyone lost their hair from W/D?
« on: April 25, 2015, 01:35:20 am »


I’ m 11 months and change free of Klonopin, and still in W/D. It is definitely getting better, but veeeeeeeery slowly, and there are still certain sxs that get severe. My question today is about hair loss. I am a woman, so it’s scary for me. Before ever taking benzos, I had a full, thick head of hair. I can honestly say that right now I probably have less than half of the hair I once had. Is anyone experiencing this, and does it grow back? If it does, how long does it take? I’m not a vein person, but every woman want to keep their hair. My hair actually began to fall out while I was still taking Klonopin, but REALLY fell out while I was in wd. Does it continue to fall out until it’s ALL gone? If anyone can give me any advice on what to do about this, please let me know. I was told to take biotin, but I’m afraid to take ANYTHING. PLEASE HELP. thank you so much.

Re: Has anyone lost their hair from W/D?
« Reply #1 on: April 25, 2015, 04:56:37 am »


Hello Teresa, some ppl. lose hair from thyroid w/d. Have you had your thyroid checked? I have hypothyroidism and if my TSH is too high, with my thyroid functioning too low, my hair will fall out a bit. I’ll have dry skin, gain weight, be tired and sluggish, weakness, etc. The stress from the benzo w/d could bring out some autoimmune problems with ppl.

Re: Has anyone lost their hair from W/D?
« Reply #2 on: April 25, 2015, 05:06:04 am »



There is often some temporary hair loss during withdrawal. But it will grow back as you heal. There’ve been many threads about this in the past, and the consensus is that it DOES grow back. I thought I was going “bald” during acute withdrawal, but by month 8-9 it had all begun to grow back. Hair grows slowly of course, about .5 inches per month.

Re: Has anyone lost their hair from W/D?
« Reply #3 on: April 25, 2015, 05:10:53 am »


Oh dear. I have all those sxs. I haven’t been to a Dr. In the entire 11 months of Hell I’ve been living. (Not counting the 3 trips to the ER when I was in acute.) I know I need to, but I’m procrastinating because I’m so afraid of what they’re going to find, and I’m afraid they’ll want to put me on meds. I’m terrified of ANY kind of medication right now. If it is hypothyroidism, will it just go away after wd is over, or do you suggest that I bite the bullet and make an appt. with my Dr. ? Thank you for your quick response.

Re: Has anyone lost their hair from W/D?
« Reply #4 on: April 25, 2015, 05:15:04 am »


Thank you Megan918. I hate to sound vein. After all, the thin hair is the very least of what I’m going through. I just needed to hear it from someone, and know that it does come back. Maybe I should get a sharp new short do, and start over. I will consider it part of the “new” me.

Re: Has anyone lost their hair from W/D?
« Reply #5 on: April 25, 2015, 05:46:57 pm »


Senior Moderator

This topic comes up from time to time. During my first withdrawal my hair fell out in clumps. I dreaded taking a shower and dreading even more combing out my long hair. This with on for about three or four months. I truly hated it. Finally it came to a stop and over time my hair’s thickness has all but come back better than ever. I had read the return of healthy hair from other members here who lost it as well. I know, it is devastating, but it will come back.

Re: Has anyone lost their hair from W/D?
« Reply #6 on: April 25, 2015, 05:55:21 pm »


Teresa, I had a lot of hairloss after my detox, scared the hell out of me.
Long strong black hair, some turned grey, had to cut it short.

Re: Has anyone lost their hair from W/D?
« Reply #7 on: April 25, 2015, 06:14:47 pm »


I have been losing hair as well. I’m certainly not a vain person either, but it is really scary for a woman. I was also wondering about thyroid issues because I too am afraid to take anything, at all! I pretty much refuse to even take a multi-vitamin at the moment..

Can anyone answer the question about thyroid? Has everyone who found a thyroid issue come up during wd have it permanently ever since? Did everyone have to treat it with hormones? Was there a more natural way to regulate it? Has anyone felt that their thyroid levels went back to normal eventually? I’m pretty afraid of this because my mother has hypothyroidism, and I really don’t want to have to take hormones every single day to feel ok..

On a positive note, I’m pretty confident all our hairs will grow back! I’ve had the pleasure of losing my hair in the past, when I recovered from anorexia nervosa, it started falling out when I started gaining weight back and continued for months.. while I was going to cosmetology school! It was awful, and I was so afraid it would never come back, but it did! I think any time out bodies go through stressful or unhealthy experiences, it can be really damaging to all parts of the body. Then, when we start taking care of ourselves, it is as if our tissues and proteins want a fresh start, to get rid of the old and weak structures that were built before and start completely anew with better, stronger materials. I didn’t ever lose 100% of my hair, it started to grow back before that ever happened, so I’m pretty confident I won’t go completely bald, but will probably have much thinning until regrowth happens.

For now I think all we can do is try to be kind to our bodies, feed them nutritious meals, get light exercise to regulate hormones, and most importantly.. Try not to stress out too much! I know for me, this makes the hair situation so much worse. I have to practice some pretty hardcore acceptance and just let it go, knowing that it will get better eventually and worrying about it won’t help a thing!

In the meantime, I’m going to se my doc and rule out and hormone or nutrient deficiencies with some blood work. I know the fear of doing anything about it has held me back from that for a while now, and honestly I may not do anything to fix any abnormalities if I have to take something to make good things happen.. but at least I will know what is going on! I hope it helps you to know you aren’t alone in this struggle! Try to relax a bit and not dwell on it too much if you can!