Itchy and/or buring brain anyone else have it?
« on: July 11, 2021, 05:00:04 am »
I have long term 24/7 all over burning brain and skin itching now my brain feels really itchy on top of the burning 🙁 anyone else have or had this at all?
Re: Itchy and/or buring brain anyone else have it?
« Reply #1 on: July 11, 2021, 11:08:37 pm »
About a month off you could hear me crying all over the apartment my brain burned like someone was pouring pop rocks into my brain the burning was so intense . I still have the skin issues. Itchy with random rashes
Vaccine Pfizer during PAWS anyone? And little update about how I am doing
« on: April 29, 2021, 10:52:00 am »
So it is time to decide. I have got a date to get Pfizers vaccine against covid. I wonder if anyone here have got it and how did it made the effect on paws ?
If it got worse or nothing happend?
I guess stress and fear and a lot of anxiety around the vaccine and side effect, effect on a messed up PAWS body and brain can rev up symptoms?
I am doing better than last year in april and much much better than in april 2019. But still a few sxs that wont leave me. My neuropathy and electric feelings thru body and dr dp ( and all what that include weird vision or sound etc) is still there 24/7 but I am so used to it dont know what normal is anymore. And I have this crazy on off OCD things. Stupid thoughts or fears about everything. This questions about things always start with:
-I go crazy
-say something stupid
-jump infront of a car
-push a stranger infront of a car
– say i wanna divorce
-go out naked
-drive my car into a line of ppl
Etc…this can repeat over and over
Its better but still very hard to face every day
Tomorrow I am 41 months off. Thats a long time.
But I see improvment. I have start to drive my car again. Today I drove out on the mainroad all by myself and drove to buy eggs and pasta in the supermarket. And I was shaking so nervous but I did it. Last time was 2016!
I walk 1 hour every morning not easy I am dizzy and very fatigued shaking and buzzing all the time inside me . I have lost 16 kilo and my blood pressure is awesome 102/62 and heartrate around 65 it was 140!
But when will this last remaining symptoms stop?
I try to stay positive but it is hard so hard.
My brain tumor wont be removed it its to dangerours to remove it.
The side effects from surgery is bigger than leave it there. It will now be watched every 2 years with MRI and hearing tests. The last MRI in march didnt show any progress. My neurologist said I will lose my hearing in left side but will it be today? Tomorrow? Or in 25 years?
This was a […] update and a question about covid vaccine effect…
« Last Edit: April 29, 2021, 11:39:15 am by [Buddie] »
Has anyone ever looked into a leaking Blood Brain Barrier?
« on: March 21, 2017, 11:40:04 pm »
I see alot of similarities between our symptoms and people who have a leaky blood brain barrier.. I also see a connection between people who develop alzheimers who have the leaky BBB. This would explain people’s food sensitivities along with chronic fatigue syndrome
« Last Edit: March 21, 2017, 11:47:29 pm by [Buddie] »
Re: Has anyone ever looked into a leaking Blood Brain Barrier?
« Reply #1 on: November 16, 2017, 01:25:38 pm »
I think you are onto something. Have been looking into leaky gut, and then found that changing my diet to a GAPS Intro Diet (all soup broth, meat, few veggies, super low inflammation), changed my symptoms. And now I think it is leaky brain.
The doctors say I shouldn’t be having this hard of a time with WD, and that I must be ‘sensitive’ to benzo’s.
I know your post is old but if you found anything out on this, I would be interested, and will be looking into it.
« on: January 19, 2016, 08:30:52 pm »
Please! Does anyone else have this? I feel like I’m being electricuted and burned ALIVE! It won’t let up… I feel the burning sizzling electricity radiating off my body. It goes feom this to extreme fiberglass itching. I LITERALLY feel like I’m being burnt alive by an electeuc fence. It hurts so badly! !!!! My brain buzzes abd sizzles.. I’m losing my will to live! I’m so ill! I’ve seen 50 drs..went to the hospital over 40 times… please don’t tell me to seek help!
advil set back
« on: December 29, 2015, 06:15:01 am »
Is it possible that 2 advil could have brought this acid burning and brain buzzing back full force ? I’m screaming in hell. I have not had this,degree of burning in months nor anY brain symptoms. I’m terrified I set myself up for months more of this or years. How is thjs even possible? I can’t continue on like this. I’m in literal hell on earth!!! Every single nerve ending is torched!!!!
Re: advil set back
« Reply #1 on: December 29, 2015, 07:59:27 am »
I don’t think so…I take advil and never have this happen but we are all different.
Re: advil set back
« Reply #2 on: December 29, 2015, 03:16:22 pm »
Some people can handle NSAIDS. I’m not one of them. The one thing I’ve found out about taking other pharma drugs during w/d is that they tend to enhance some of the side effects of benzo w/d and vice versa.
I would stop taking the Advil altogether if I were you. I think this is just a temporary setback. Just hang in there, and you’ll stabilize.
I’m so sorry you’re going through this. Hugs to you!!