Lunatics at Benzo Buddies tell member with compromised immune system from leukemia (therefore at risk of dying from COVID-19) to keep tapering

Need to stop tapering..need advice
« on: March 21, 2020, 04:08:50 pm »

[Buddie]

I have decided that I am no longer going to able to tolerate the side effects of withdrawl. My leukemia has relapsed out of remission and I cant fight both battles at once. I tried to wean, got really sick and had to updose. My questions
1 I am 60 years old. Has the damage already been done? Is my brain fubar?
2 Will I really feel better when I can kick my 4 mg Xanax habit?
3 Is it worth all the suffering that comes when you taper?
I don’t want my last years on earth to be filled with Xanax side effects. I started on .5mg 30 years ago. Here I am at 4 mgs after 4 months of trying. Is there a kinder,more gentle way to come off this?
Havent given up the fight, just have hit the pause button. Thanks for your replies. I am so worried about everything. This coronavirus has me trapped in the house since I have a compromised immune system and if I catch this virus it could kill me..

Re: Need to stop tapering..need advice
« Reply #1 on: March 21, 2020, 05:09:23 pm »

[Buddie]

I’m so sorry you’re dealing with so much at once. Everyone’s burdens feel so much more intense with the coronavirus fears right now.

You might consider tiny cuts every week or two just to keep the downward trajectory going if you want to work towards eventually getting off Xanax. At 4mg daily, a cut of .0625mg every few weeks might be tolerable.

Ultimately, you must do whatever you feel is best. We support whatever your decision is.

:smitten:

Re: Need to stop tapering..need advice
« Reply #2 on: March 22, 2020, 10:46:37 pm »

[Buddie]

Hi Star

Your brain isn’t fubar. You’re withdrawing. 4 months is great success in getting down 1 mg! That’’s equivalent to .125 each month. It’s ok that it takes time. Imagine, if you keep going, in 12 months you could be down even more 🙂. That said, you are in charge of your healing, your taper. It’s fine to rest awhile at a dose. I think try not to count time. Count success. In my opinion, it is worth it (dying? – editor).

Re: Need to stop tapering..need advice
« Reply #3 on: March 24, 2020, 02:43:16 pm »

[Buddie]

I would deal with the leukemia first. That is priority. My advice is not to updose and stay at the mg you are on until you are ready. As for your healing process with Xanax I wouldn’t give up all hope. I think when you continue after you are cancer free you should go super super superrr slow. I have a family member who also is tapering but does so In a very slow way. They cut and hold for months at a time so they can maintain their lives. I am almost at a year off and my life is way better than it has been in terms of symptoms. They still exist but I have quality of life most of the time. Don’t give up. And manage what is most important right now which is getting healthy and the leukemia back into remission. You are doing your part to manage the Xanax by not updosing and staying at a consistent dose. Don’t take this all on at once. Take it a day at a time. I wish you the best of luck.

Re: Need to stop tapering..need advice
« Reply #4 on: March 24, 2020, 07:07:24 pm »

[Buddie]

I felt I needed to updose then hold about 18 months ago when my teenage son became very ill. So I am only down in dose .25 mg of K from my 1 mg, which I was on for quite a while (but have been on/off K for 20+ years, never had any trouble stopping previously).

I have NO REGRETS. There are times in life that are very, very hard and I could no longer torture myself trying to get off the drug. We all have to figure out our own path. I do not feel like I have any side effects from the medication other than weight I cannot get rid of, but that is something I can accept. I was having 24/7 nausea, very bad anxiety and insomnia while tapering, and in reality I missed many of my son’s health issues early as I was too focused on tapering.

Cruel taper forced on 74-year-old?

Day 19 and terrified Please help is this normal?
« on: January 02, 2020, 11:12:29 am »

[Buddie]

Dear all
After a long difficult taper from just 4mgs of valium taken for 3-4 months and over a period of 17 months with a blip in the taper September 2018 wen in hospital for 3 days and put back to 4mgs from taper reduction down to 2.5mgs, since October 2108 tapered off suffering all way down with many symptoms , mostly fear related, but many others,
Tapered to zero with a DMLT for the last 2mgs and taking 4 months to reduce the last 1mgs reducing at 0.01mg a day ,

Now at day 19 and absolutely terrified, , Lots of symptoms, tinnitus (Severe) numbness hands face lips mouth teeth, toes

Little to no sleep. Agoraphobia, unable to deal with any stress at all, Major weight loss,

Please can you tell me is it normal to be this bad at 19 days off?

I don’t want to take anything just to know this is how it is and it will ease?

I am 74 and still cannot believe this has happened , shaking like mad, Icy cold, hands feet,

Teeth hurt nose hurts , not sure what to do as I cannot distract,

Just words of assurance I guess

Please help me

[…]

How long will the obsessed Benzo Buddies leader’s nearly decade-long feud with Jana Hill go on?

Titration, Patents, and Fantastical Claims
« on: October 29, 2019, 11:34:44 pm »

Colin

Re: http://www.benzobuddies.org/forum/index.php?topic=231829.msg2975666#msg2975666

For many years there were attempts to promote a particular unproven/untested set of titration protocols. Further, those promoting these methods were engaged in rubbishing completely standard (and effective for most) pill-splitting tapers and characterizing them as ‘cut & suffer‘. They even peppered posts at BenzoBuddies with such language – this is when I first intervened in this matter (January, 2013). Even though Jana Hill (the person behind the protocols) closed down her forum some years ago, there continue to be a small number of very vocal individuals who seek to promote her untested claims as somehow proven or guaranteed to work. Indeed, there has been a recent uptick in activity promoting her protocols both within and without BB. When there is any attempt at push-back, the rather extreme reaction (including threats of lawsuits) are rather illustrative of the problem. If this fails, then perhaps one of Hill’s supporters will instead offer to purchase BB. No.

Jana Hill applied for a patent in 2012. As I suggested a short time later here at BB, the claims made in her patent were extremely flawed, some were even dangerous. Indeed, all twenty claims were rejected. Only with the help of the patent examiner (who apparently redrafted three claims for her) was a patent (with three claims) eventually allowed.

Hill seems to misunderstand (or wishes others to misunderstand) that because a patent is awarded, this somehow means that her protocols are: 1) tested and verified; and 2) are defensible. The award of a patent does NOT connote these things. A recent quote from Hill at the Benzodiazepine Information Coalition website:

Quote from: J.Hill
Crazy Canuk , in his opening statement, says that he learned this taper protocol from its developer through BenzoDetoxRecovery. He states that he hopes that it’s okay to make his videos ostensibly describing it. It isn’t; it wasn’t.

Using the protocol incorrectly tarnishes its good name and places users at risk. He presents it incorrectly.

The authentic BenzoMicroTaper protocol USPTO 9301963 has a 13 year record of success. It is verified by the US patent office as novel( it was not previously available), needed, and understandable by “those practiced in the art”.

If The Coalition’s rules allow it, I will post the way that you can find the authentic BenzoMicroTaper . False versions now seem ubiquitous. A summary is available for the patientsÂ’ doctors. You can ask for it using the “reply” button.

J.Hill

Benzodiazepine Tapering Strategies and Solutions – Benzodiazepine Information Coalition
https://www.benzoinfo.com/2017/10/09/benzodiazepine-tapering-strategies-and-solutions/

Hill’s statements that her method, “is verified by the US patent office as novel (it was not previously available), needed, and understandable by ‘those practiced in the art'”, is extremely misleading and disingenuous.

It is probably best for me to simply link to the patent and some information about patents:

https://patents.google.com/patent/US9301963B2/en

https://en.wikipedia.org/wiki/Person_having_ordinary_skill_in_the_art

https://en.wikipedia.org/wiki/Novelty_(patent)

https://en.wikipedia.org/wiki/Inventive_step_and_non-obviousness

https://en.wikipedia.org/wiki/Prior_art

http://www.geocities.com/benzobusters/winslow.htm

And for anyone who is particularly interested, and would like to compare, here is the original patent application (with the rejected 20 claims):

http://appft1.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PG01&p=1&u=/netahtml/PTO/srchnum.html&r=1&f=G&l=50&s1=20120322794.PGNR.&OS=DN/20120322794&RS=DN/20120322794

Further reading, including threats from Hill to doxx a BB member:

http://www.benzobuddies.org/forum/index.php?topic=159823.0

There is a lot I could get into, but my time is limited – I’ll leave it for readers to interpret (and discuss if they wish). But if any of you would prefer to read something a little more bite-sized, please check out the attached document*, which was supplied by Hill to the US Patent office in support of her appeal after the patent was initially rejected.** It is replete with nonsense, false claims, and utilization of quite extraordinary language.

* Available via the link at the foot of this post (with a small green paperclip image next to it).

** Please note: Jana Hill’s personal details appear in the attached document. However, Hill long ago chose to make her name and location public knowledge (and again very recently through the media). And the attached document is a public record.
« Last Edit: October 30, 2019, 11:17:09 pm by [Buddie] »

Kook’s healing freaks him out, wants to suffer more

Re: Under .125 Klonopin Club
« Reply #909 on: October 03, 2019, 03:03:32 pm »

Monray60

Bob7, I’ll be curious to read what you find about salt and sleep.

I’m going to read about taurine again.

Have any of you been switched from the TEVA brand .125 orally dissolving to the PAR Pharmaceuticals brand? This may sound strange, but I’m sleeping TOO well with this change and feel like I have up-dosed. Not good! I’d rather have a harder time and know I am reducing my intake of K. than to do better because I have up-dosed.
Thoughts?


10/17: Began taper from 1mg Klonopin, 100 mg gabapentin
5/19: Tapered too quickly near end to .062 Klonopin, stopped Gabapentin
6/19: Up-dosed to .125 Klonopin, 200 gabapentin, given 50 mg Seroquel
8/19: Stopped Seroquel
9/19: .125 klonopin, 125 mg Gabapentin
9/30/19:.125 Klonopin, 100 mg Gabapentin

Addict loses mind after grueling Ashton cut and suffer taper

Itching Returns
« on: October 31, 2016, 11:17:59 pm »

[Buddie]

So i used to get itching back in acute and for a short time after that. It finally went away around month 7. Now it’s back! Is this normal? The itching creeps up in the morning and evening hours.

Do symptoms leave and then come back? I’m 11 months out at this point and thought symptoms would be lifting. I will say my anxiety is slowly lifting!!! 🙂

You can get off benzos without a grueling multi-year taper

My mind is boggled
« on: June 28, 2016, 09:45:35 pm »

[Buddie]

I know a woman who just went to detox three weeks ago to get off a painkiller and Xanax. The reason she went is because she ran out of Xanax for 2 days and had a seizure while driving. She didn’t have a seizure during detox and the only symptom she has had this entire time is an elevated heart rate. She took the Xanax for 14 years and was up to 3 mgs+ a day. I told her about what I’ve been going through and made her read the stories on here before she went and pleaded with her not to CT. I think now she really thinks I’m nuts! My mind is just boggled that it can be that easy for someone, though I am thrilled for her.