CYBERCHONDRIA

3am & loosing it
« on: June 01, 2017, 07:54:53 am »

[Buddie]

I woke up about 1 after after already going to sleep with a panic attack at 10pm
It started cause I felt nauseous and had pain in my stomach . In a recent post I said how my stomach pulsates a lot and my biggest fear with that is an abdominal anyuerusm . Of course being the health anxiety person that I am I GOOGLED IT !
Up comes back pain, flank pain & naesous . So now I’m terrified and about to drag my butt to the ER at 3am because of this .
I can’t stop shaking, tried distracting myself with shows, puzzles, games on my phone but my mind comes back to how sick I feel and how much I’m shaking and can feel my entire body pulsating . My stomach pulsates !!!!

So terrified right now and trying really hard not to rescue dose !

Cult superstar Perseverance called to account for fear-mongering

PERSEVERANCE: WHAT EXACTLY ARE YOU TRYING TO ACCOMPLISH IN YOUR POSTS?
« on: July 15, 2016, 02:05:25 pm »

[Buddie]

Assuming these posts aren’t a cut & paste patchwork of various research data obtained from the many resources that exist in cyberspace, I do admire you and appreciate the time and painstaking analysis involved in contributing to the BB.org information collective…

…unfortunately, I find the essence of many posts to be discouraging, disheartening, and offering little to no hope to those severely debilitated and crippled from the hellacious symptomatology of iatrogenic illness, as it exists in benzodiazepine withdrawal.

Words such as “permanent;” “irreversible;” and “learning deficit,” inspire hopelessness, fear, and a deep-seated sense of despair and anguish that isn’t easily resolved or relinquished; in fact, often thrusting the reader into a downward spiral, deeper into the abyss.

The scholarly, didactic verbiage that is necessary and inseparable from professional clinical trial and research writing format, further confuses and exacerbates the reader’s fragile psychological state.

For example:
“In rats given benzodiazepines chronically, the common α 1 γ2 sub-units are down-regulated, while rarer sub-units are elevated proportionately (Holt et al, 1999). It is suggested that transcription of the Gene cluster on Chromosome 5 (which encodes for α1 β2 γ2 sub-units) is inhibited on chronic benzodiazepine administration, while the transcription of the Gene cluster on Chromosome 15 is upregulated (Holt et al, 1999). In certain brain regions, the Chromosome-5-encoded receptor sub-unit proteins are replaced by those encoded in Chromosome 15, which show less sensitivity.” (4)

This excerpt is quite esoteric in nature and would require the highest level of comprehension and routine familiarity found mostly in researchers with PhD’s (not practitioners).

The one thing I’ve learned in neurology is that few things are conclusive or certain. BWS is severely under-researched and much is not fully understood by the medical community.

One question I continually ask myself since joining BB.org is, “How many people have I inadvertently hurt through bad advice?”

If for every 500 I helped, but hurt 1, I would cease to interact any further, simply because it’s not my call to make in weighing human wellness, health, and life.

Cyber doctors at Benzo Buddies diagnose Teen Mom star with benzo discontinuation syndrome

I think Janelle from 16 & Pregnanat/Teen Mom has benzo discontinuation syndrome
« on: May 27, 2016, 03:44:31 pm »

[Buddie]

As I was trying to sleep off a horrible wave last night my wife was watching TV. One of the shows she watches is “Teen Mom 2” is a continuation of the original “16 and Pregnant” show on MTV. Anyway, one of the better known cast members is Janelle and she was reading down a list of symptoms that she has and doctors can’t seem to find out what’s wrong with her. Then I hear her say the doctors cold turkeyed her from Xanax to try and get all of her levels normal so when they do blood tests they will not be influenced and they also said they were going to do an MRI. On the after show she ran down her list of symptoms again and added a few and said she had been almost bedridden for 3 weeks and the doctors still don’t know what is wrong with her.

All of the symptoms she listed are classic benzo w/d symptoms and no one in the medical field on that show even seem to know what’s going on! So blind… And I thought Dr. Drew was supposed to be an addiction medicine specialist.

Scientologist panics after dentist visit

Not a good dentist visit really scared
« on: May 16, 2016, 08:26:14 pm »

[Buddie]

I’m four months out and this is not good timing but I had a dental cleaning today and there is a white spot above the roots on xray from last fall so he pointed out but I don’t remember him mentioning it last fall. When I asked what that could be he said he had no idea and I could get xrays at my next appointment in 2 months for my crown. I’ve never had dental work other than feelings as a kid and I’m scared of having a setback with symptoms and especially scared of some kind of cancer. Does anyone have experience with this and would Dental visits while they’re recovering

Benzo Buddies addiction and cyberchondria are dangerous to your health: “I’ve lost my youth because of Google”

The pitfalls of the internet, and the vast information available.
« on: February 20, 2016, 03:41:55 pm »

[Buddie]

Members old and new remember that the mind is a powerful thing, and you can create worry and obsession – from viewing the forum every once in a while to every hour of the day. From Googling symptoms and self diagnosis… For example I used zopiclone for 8 years with zero issues until I googled long term use and came to a result about cancer, now it’s a daily obsession, every pain in my body, ie back pain, is a tumor or something.

Avoid self diagnosis and being given information (informed or misinformed) and only take advice from a doctor. I have a lot of medical knowledge, an AWFUL lot, and I still manage to convince myself I’m ill every day. If you take anything from the groups or websites make sure it’s ONLY support and friendship, DO NOT allow yourself to believe you may also have a symptom another member is having or something you’ve Googled.

Because your body is 100% individual to you, as is your situation… Don’t do what I did, I spent 10 years in the house without going outside saying “I’m going to die” I’ve lost my youth because of Google.

Don’t lose your future too.

Quote from: [Buddie] on February 07, 2016, 04:02:18 am
I think a lot of people get freaked out by so many horror stories and that this ramps up anxiety and wd sxs.

There have to be more people reading these posts that are doing alright. I am and I had years on a high dose of Xanax.      

Sure if you feel something, and others do too, then obviously you can gain a lot of support from people going through the same thing. But remember that because someone else is going through an issue, don’t allow yourself to assume you will too.

This is especially true for stuff like seizures, I see MANY people who have read online about seizures and are scared to reduce because of it! But before they read this information seizures were the LAST THING on their mind.

Now they won’t taper because of it.

Recently (yesterday), I reinstated a double dose of zopiclone of 15mg because I was told by a NUMBER of members that I was in massive withdrawal from dropping from 15mg to 7.5mg within 3 days, and that I was I quote “going crazy” the damage has been done and I’ve now reinstated at 15mg and have to start ALL OVER AGAIN to reduced.

And I was doing SO WELL.

BUT I’m not going to take 15mg again, screw those members. AND this is my point, they don’t know me, my body, or drugs, or the affects it will have on anybody’s body.

Now ironically, I too have done this, but in the opposite way, trying to rationalise some of the symptoms people feel.

In the same way doctors try and convince me I DON’T have cancer or anything else, and I can’t be convinced. So I guess a lot of members are so tied into their beliefs like I am with my issues that when someone says “Hey it might not be that” that you completely dismiss it.

Which is what I do also.

Anyway, the point is, NEW MEMBERS don’t have that same mindset, but its easily created… and when I joined this forum I was a new member with no issues… Then members educated me on what I should be feeling –

If you’re a member reading this, just remember to use this place for support and friendships. Not for diagnosis, and don’t tell other members that they should be in withdrawal or interdose withdrawal or that they “CAN EXPECT THIS” (YES I’VE SEEN THAT)

“I’m tapering _____” “You can expect to feel anxiety, not sleeping” etc etc

I was so shocked when I seen this, it was a while ago, and then the member lost her shit and was clearly upset.

Most people are here because they can’t sleep at night, then we all need to sleep well knowing we support members and don’t impression vulnerable people
« Last Edit: February 20, 2016, 04:01:06 pm by [Buddie] »

Cedartree blames gluten for insanity

Scared of my depression
« on: December 27, 2012, 08:29:12 pm »

Metheral66

I have been diagnosed with clinical depression or uni polar depression as some call it. It started after I I was on benzos for about a yr. It got much worse when I had a tramatic event, and again even worse whwn I started to try to come off the benzos.

Im just so scared my depression will never lift. My friend quit benzos over 5 yrs ago and he hes a mess. What he sicribes to me sounds like bi polar. His moods are every where. And he refuses to take a mood stabalizer which I think is insane.

I just dont want some sperate underlining condition to ruin my recovery.

Re: Scared of my depression
« Reply #1 on: December 27, 2012, 11:12:44 pm »

journey

Hi Metheral66

Your depression is temporary physical damage, causing depressive symptoms.
External stressors will make it worse.

Your depression will lift, as soon as you heal from the benzos.
Many people are reporting feeling better doing daily cuts.
I am coping better on daily cuts.

I don’t think your friend is insane because he does not choose to take a mood stabilizer, because psych meds can make things worse for a lot of people. He may want to pursue non drug treatment for his moods though.
If they are caused by benzos however, they will not respond to treatment in the normal way, due to the fact that they are caused by temporary physical damage.

It is common in wd to worry about never getting better, but we do heal.
All we need to do is to taper down as smoothly as possible.

Re: Scared of my depression
« Reply #2 on: December 27, 2012, 11:58:57 pm »

Metheral66

Thanks for the encouragment journey.

I hope my depression will lift. I know ashton talks about the use of anti depressents if the depression is sever.

I know my friends not crazy but its frusterating to see him still suffer. I just want him to get well b/c he hasnt touched a drug in 5 yrs and is doing horribly. Whats most frusterating is that he wont try anything. I have anoth friend who is bi polar and she takes a mood stavalizer and is doing amazing. Before the drug she wasnt functioning at all.

Re: Scared of my depression
« Reply #3 on: Yesterday at 04:06:00 am »

cedartree

I haven’t had any depression, not once since I’ve been off benzo’s and all other psych drugs. My doctors labeled me as everything from S.A.D. to depressive, to bipolar, to GAD, etc etc etc. All along it was the drugs themselves that caused most of my problems. The other thing that caused my problems was being misdiagnosed when all along I had Celiac disease and no one knew what it was until now. If only I had been eating a gluten free diet and taking good care of myself I would never have had to suffer such horrible withdrawals.

Also, my sister was diagnosed with bipolar disorder this summer. She is now 100% better and guess what……she isn’t taking any psych drugs of any kind!!! Amazing, her bipolar episode was actually triggered by Trazodone and Abilify. I was the one who suggested she allow herself to be off the drugs for a few months and see how she does. She’s so much better now. Just proves to me that the drugs themselves cause/create more problems than they could ever solve. This is my experience and my observation.

Re: Scared of my depression
« Reply #4 on: Yesterday at 06:42:18 am »

Metheral66

Thats awsome both you and your sister doing well!

Its just so very confusing. I mean you guys got better being off drugs. But how come my friends never did. Things just seemed to get worse. Like I said it wasn’t until my one friend was put on a mood stablalizer did she recover.

And my other friend has been med free for 5 years and he is just getting worse and worse.

Its hard to say “no one should ever take drugs” just as it hard to say “everyone should take drugs”.

Like when do you say medication may help?

I know for myself, I have to be a mood stabalizer or my depression becomes extremely disabling

Isn’t really confusing? or is it just me?

Re: Scared of my depression
« Reply #5 on: Yesterday at 11:51:37 am »

journey

Quote from: Metheral66 on December 27, 2012, 11:58:57 pm
Thanks for the encouragment journey.

I hope my depression will lift. I know ashton talks about the use of anti depressents if the depression is sever.

I know my friends not crazy but its frusterating to see him still suffer. I just want him to get well b/c he hasnt touched a drug in 5 yrs and is doing horribly. Whats most frusterating is that he wont try anything. I have anoth friend who is bi polar and she takes a mood stavalizer and is doing amazing. Before the drug she wasnt functioning at all.
Hi Metheral

Ashton nowadays is against ad’s. Her manual was done in 1982. It is now found that AD’s can cause more harm.
Ultimately its up to you though.
They have to be tapered too, sometimes with difficult results.
I assure you that you will recover.
You can not know what your friend has done in the last five years. If he used alcohol or whatever, so I would not compare myself with your friend.

Re: Scared of my depression
« Reply #6 on: Yesterday at 02:43:31 pm »

cedartree

Quote from: Metheral66 on Yesterday at 06:42:18 am
Its just so very confusing. I mean you guys got better being off drugs. But how come my friends never did. Things just seemed to get worse. Like I said it wasn’t until my one friend was put on a mood stablalizer did she recover.

And my other friend has been med free for 5 years and he is just getting worse and worse.

Perhaps your friend has something else wrong that has nothing at all to do with medications. I for instance suffered from depression because I had Celiac disease that was undiagnosed. When I eat gluten it causes severe depression and anxiety in me. They called it a mental disorder when in fact it was an autoimmune disease. Since I adhere to the correct diet, I am healthy. If I didn’t I would be curled up in a ball somewhere crying everyday.

All I’m saying is there could be factors that we simply do not understand and the doctors may not have dug deep enough to get to the root cause. If my doctors had stopped long enough to stop giving me drugs and looked at all of my symptoms, I believe they would have found my autoimmune disease long ago and I could have been healthy and happy without any drugs of any kind. But that’s not how our western medicine operates. The first thing they do is prescibe you something without thought to what kind of backlash it’s going to take on your health and your life.

All I can say is that you’ll never know just how healthy you can be until you’ve remained off drugs for a period of time and I don’t mean a month or two. You’ve got to really give it a chance. Lifestyle I have found is more important than anything else. If you take good care of your health your mind will be happier. It’s that simple. But somewhere along the line in our western culture we’ve lost sight of that altogether.

M, it used to be confusing to me too, now it’s clear as day. I had to go through all that you are going through before I figured this out for myself. Don’t worry, you’ll get there and find your answers.