People do not lose the ability to control their extremities from benzo withdrawal

Lose control of legs and hands?
« on: April 21, 2018, 02:33:13 pm »

[Buddie]

This started post withdrawal so I am putting it here.

Although I have reinstated at a low dose when the dose wears off I am still losing my ability to control my legs – particularly right and right hand properly.

With leg it goes stiff but it is like my brain can’t work out how to move it properly.

Same with right hand – I can’t hold or manipulate a pen properly to write.

Does anyone else have this?

Has anyone had it go away?

Cult members endure shameful diarrhea episodes in order to satisfy insane Benzo Buddies tapering demands

Almost (had a bathroom accident)
« on: March 07, 2018, 10:16:10 pm »

[Buddie]

Starting on Sunday, the minute I feel any stress or anxiety diarrhea hits & im running for the bathroom. It was coupled with insomnia on Sunday night, but I was home. Today, I was at the mall, not cool.
Any suggestions? Anything I should avoid eating or should eat? I don’t have much of an appetite.

Re: Almost (had a bathroom accident)
« Reply #1 on: March 07, 2018, 11:12:18 pm »

[Buddie]

This makes me not want to be here… censor my title and move my post.

This really is my worst side effect so far & wanted some input on anything that can help alive it.

Re: Almost (had a bathroom accident)
« Reply #2 on: March 07, 2018, 11:29:00 pm »

[Buddie]

I believe that diarrhea is a common effect when you stop benzos completely, it happened to me but after a month or six weeks went away – and I have a very sensitive stomach anyway. Try eating a lot of white rice with your meals, and stay away from cake and other sweets for a while.

« Last Edit: March 08, 2018, 12:13:08 am by [Buddie] »

Re: Almost (had a bathroom accident)
« Reply #3 on: March 07, 2018, 11:39:42 pm »

[Buddie]

I’m sorry that you are going through this , but believe me you are not alone. When I am in a bad wave my colon acts up and sh-t happens:laugh: My worst moments were on a long drive from Northern C.A. to B.C. Canada. I had foolishly enjoyed Panda Express for lunch in Medford. It was a wild ride to the pit stop. What stops the crap dead in it’s tracks is over the counter immodium. I keep it for true emergencies and it seems to be O.K. as far as affecting withdrawal symptoms.

This stuff is unpleasant but like everything else it will get better.

Re: Almost (had a bathroom accident)
« Reply #4 on: March 08, 2018, 12:55:48 am »

[Buddie]

I had this too last summer and I jumped in June. I would get up 3-7 X a night to go poopy. I was losing weight because I had no appetite except for specific things and they would go right through me. My pants got baggy. I was scared.

By September/October this resolved and I got a healthy appetite back. Now I wish my pants were loose.

[…]

Benzo Buddies Bedridden Club throws a party

Re: ~~The Bedridden Club~~
« Reply #1089 on: January 27, 2018, 04:19:54 pm »

[Buddie]

It’s going to be a bad circle of all, getting so sad because I can`t do anything. My home is a mess. It feels like I’m stuck, nothing will happen to anything.

Re: ~~The Bedridden Club~~
« Reply #1090 on: January 30, 2018, 02:29:27 pm »

[Buddie]

Hi […], I feel exactly the same. I am looking round this room at the moment and there are so many things to do and yet I can’t get motivated to do them. My Mum came to see me yesterday and it was so difficult talking to her. This is my own mother!
I know there is a pile of pots downstairs waiting to be washed but I am in bed and cannot summon the energy to do them. Maybe I might be able to do them later, I don’t know.
I’m glad this group is up and running again. Please chip in, anyone who is bedbound for physical or mental reasons. Or both.

Re: ~~The Bedridden Club~~
« Reply #1091 on: January 30, 2018, 02:50:58 pm »

[Buddie]

Quote from: [Buddie] on January 30, 2018, 02:29:27 pm
My Mum came to see me yesterday and it was so difficult talking to her. This is my own mother!

Don’t feel bad about it, this happens to many people during withdrawal, me included. Last Sunday a cousin came to visit me, but I didn’t even come out of my room. I know it’s rude, but I just didn’t have it in me, I simply couldn’t do it. I stayed in my bed all day.

Re: ~~The Bedridden Club~~
« Reply #1092 on: January 30, 2018, 02:51:27 pm »

[Buddie]

In bed daily with mental; a year off all meds and so much worse-feel it has to be toxicity in my case…keep getting more and more symptoms…

Re: ~~The Bedridden Club~~
« Reply #1093 on: January 30, 2018, 03:10:03 pm »

[Buddie]

I’m so sorry for your situation, Brainwarp. Everything you went through in your taper was in order to feel better when you were eventually off the tablets and now you feel worse. I hope you improve soon. Meanwhile stick around this thread. It got your answer and an answer from Ginger in about twenty minutes so it must have some relevance to quite a few people.

Ginger, thanks for your answer. I do feel bad when family members come to visit and I find myself looking forward to the next day when they are gone. The worst one is when my bf’s parents come and stay for two or three days. Thinking about that now makes me feel scared. Sorry you couldn’t see your cousin.

I managed to get up and wash the dishes. They will have to dry by themselves….

Benzo Buddies advice for members paralyzed by taper: “move your bed to stare at different wall”

Move your bed
« on: December 12, 2017, 03:44:45 am »

[Buddie]

I wanted to post this a couple of weeks ago but I forgot. No surprise. About 3 weeks ago I was bed ridden for a brief time, again and I moved my bed so I could stare at a different wall. That turned into rearranging my whole bed room, then to cleaning up and uncluttering my home. It’s like it used to be and I was just lying here looking at my room and thinking how lucky I am to have this beautiful home. The home I ignored for 5 years because I was sedated for so long I just want to encourage those who might be in that darkest place of withdrawal. You will return, You will be the same, You will have a life again and be happy to be in the here and now with the people and the things you loved before benzos.

Re: Move your bed
« Reply #1 on: December 12, 2017, 09:19:49 am »

[Buddie]

Small things that matter. Thanks […]. 🙂

Re: Move your bed
« Reply #2 on: December 13, 2017, 07:08:54 am »

[Buddie]

Thanks for this. Encouraging words.. 

Ashton taper leaves addict paralyzed

struggling to leave my room any adive or input would be helpful
« on: November 15, 2017, 03:46:47 pm »

[Buddie]

ive only been leaving my room for bathroom n shower n to eat n do landry other then those small thing ive spent the better part of the last 5 weeks just laying in bed all day watching movies or tv on my laptop !! monday i got out of the house for about 2 hours just to do some things in the yard n had two attacks while i was outside im on 1.625mg of ativan daily the window started slowly closing on me this summer and has pretty much shut me in my room where i keep all light out so it pitch black n i feel some what at ease still have attacks once a day or more but some days our good days and i dont have any ! has anyone been in this position before ? if so how do i over come it ? i need to be able to atleast get out side cut my grass take the trash out ect !! im in a pretty lucky situation im 31 with no kids or a job and my mom lets me live here for free n pays what little bills i have but i used to do all kinds of remodling projects for her and painting and yard projects but now i cant even cut the grass and input would be very helpful i have everything i need to start a titration but the alcohol to disolve the ativan but havent started because of fear n the situation im in

Why are so many Benzo Buddies members bedridden?

Can't get out of bed. Worried.
« on: November 04, 2017, 03:58:46 pm »

[Buddie]

I had my bf’s parents staying at our house twice in three weeks. This stressed me out. Before that the pharmacist gave me quetiapine/seroquel made by a different company. I took this for about two weeks and was wondering why I felt so bad. It seems that it could have been that to blame.
Anyway, I am back on my original tablets but I can’t seem to get back to how I felt before this happened. I am stuck in bed because getting up is just too much right now. I feel guilty being in bed but this is such a bad wave.
Will my body go back to how it was before and has anyone else had to go to bed to ride out a wave? Thanks.

Husband wants back on pills after Ashton taper leaves him unable to get off floor

At the risk of incurring the wrath of everyone here...
« on: October 09, 2017, 01:58:31 pm »

[Buddie]

my husband has been benzo free for 4 months and 1 week, and he is considering reinstating!!  :'(  It’s just too much. He feels like he will have an actual breakdown. He is being driven by the intrusive thoughts about his symptoms never getting better. He is lying on the floor all day, hardly able to walk to the bathroom, watching a few benign things on tv (but still on mute), but mostly panicked about his breathing symptoms. He still can’t feel himself breathing -loss of sensation in nostrils/numb nose/feels like nose is blocked/feels like nose is collapsing- and his nose is getting drier still and black chunks are coming off the walls. Really bad air hunger from (seemingly) the incredibly tight muscles in his chest. Throat constriction. This is hell folks.

I know the mantra on this site is to soldier through, but seriously, I had to invoke the Baker Act 5 years ago, and he was put on these benzos after that. He might not make it through this.

I’m sure I’m going to get a slew of “you can’t do it” posts, and “don’t reinstate” posts, but seriously, if you have experience with late reinstatement, or reinstatement that relieved your physical symptoms, I want to hear them. Even if you tell me it relieved it at the time, but you wish you hadn’t because it kindled the next withdrawal, at least tell me that you got some relief initially.

Alternately, if you had similar nose issues, when did they get better for you?

Addict using substances never intended for human consumption but blames benzos for brain damage

What else could this be? + update/doubts
« on: March 02, 2017, 08:31:38 am »

[Buddie]

I feel like a walking nuclear power station in meltdown now. I have SO many severe neurological symptoms now that I am starting to doubt it is Benzo related anymore. I’m not saying this is the case for everyone else, but because I was using substances that were never intended for human consumption, and because there are rare neurological conditions such as Neuromyotonia in my family, I am going to tell the doctor today about all of it. I could have been gulping down poison or some kind of chemical neurotoxins for three years, who knows. I am a stupid idiot, I choked down dozens of those shitty blue ‘pellets’ an hour at some points. I did taper, but I had to taper very fast for the dose, with no medical assistance and a bunch of threats.

I also face the stigma that cloaks any kind of addiction, which frightens me because if I do land up being referred on for some investigations, it may cloud people’s judgement and I’ll just be accused of drug seeking again. This also excludes me from any kind of pain management too. I was in bed for a week last month (even more so than usual) with my period. I was delirious from the pain, felt like someone was repeatedly winding me and tearing my insides up with razors, couldn’t even speak or sit up, just yelp and whimper when the pain and buzzing tore through my insides (buzzing moves into my pelvic area when I get my period). All I managed was the odd 10 minute crawl to the bathroom to almost vomit (never did thankfully). If I stood up, I started seeing stars & darkness and started passing out. It was just me and the easily level 10 pain, in a little bubble of whimpering mess. All this is coming again around the 8th, so not long now!!!!. 
Try being an addict and getting any kind of pain addressed, it’s not going to happen, been there, tried it. Nobody will even investigate Endometriosis with me, probably because they think I’m after pain meds.

Another thing that makes me strongly suspect something else may be at play now is my lack of apparently very common psychological sxs like panic, terror, severe anxiety etc. All the info I have dug up suggests these are more prevalent than all the physical sxs combined. I don’t even have the classic one, Insomnia (I have totally the opposite, extreme exhaustion and inability to move). I haven’t read a single report that has been totally devoid of these mental symptoms. Even if I have a ‘window’ that for me only means a lessening of a couple of symptoms for a few hours, my most severe ones like burning skin, pain, neuropathy and internal vibrations never, ever go away. I imagine people with a variety of neurological conditions also have ‘good days’ where some of their sxs lessen, that pattern is not uncommon for any illness or condition, from flu to brain injuries. I think I was in such a fogged, addled state on Benzos that I ignored my deteriorating health and let something creep in. 

I need some form of resolution before this illness brings on the psych sxs I’ve so far escaped. I feel sort of blessed to have escaped the brunt of the psychological aspect of WD, specially given it certainly seems the worst and most distressing part to many people here. A lot of people also seem to be over the physical, which in withdrawal seems far more prevalent in acute than months out, and are now engaged in a mainly mental climb out of this mess. You can to a certain degree negate the mental aspects with many different coping strategies, not to downplay this aspect of withdrawal at ALL so please don’t think that.
I have suffered ongoing mental health issues such as anxiety (which Benzos quadrupled for me!) all my life. I manage these the same way as I always have. No amount of psychological intervention will negate physical illness though, and I am very, very unwell. It feels like my body is rotting, slowly but surely rotting like a zombie in the Walking Dead (I love that show! lol). I am losing not only weight, but muscle mass too, all my muscles are atrophying. I look like a Walking Dead extra too, my skin is ghost white, my eyes look like someone thumbed them three inches into my head, I am a mess. I simply cannot carry on this way, something has to give.

I am seeing the doctor today and I will be telling him about the family history and all my symptoms. I am really wondering if Benzos just opened the door, fried my CNS and allowed something to take hold. I will of course say I noticed all these sxs once I stopped using Benzos, but I must also take into account the fact Benzos may have been covering something up. They may have reduced both the symptoms of such a condition, and my ability to recognize it.

There are factors for me that point to this being far more than just withdrawal now. Some of my symptoms are above and beyond anything I’ve researched on Benzo withdrawal, and some don’t fit the bill at all.

My internal vibrations/tremoring is so severe now that it rules every last second of my life. I can’t stand, sit, walk or anything with any degree of comfort because it quickly turns to numbness and neuropathy if anything makes contact with my body such as a seat or if I lean against something. I have never, ever heard of this being so extreme or prevalent in WD from any drug. This symptom alone feels like it causes many sxs, and if I could get rid if it, I would get rid of them too. I feel like an alcoholic in acute inside. I wish I was in a way, it seems alcoholics have done the DTs in a few days and are basically ok physically a couple of weeks out. I am still very much ready to accept I may have something other than Benzo WD now though. I haven’t touched a Benzo for 5 months, I know I am over acute, but my body is severely damaged. My brain appears to have scraped through and continues to improve all the time, but having a functioning brain in a broken body is the worst thing any human can possibly experience.

I am so sick now I would not be surprised if I am not sent straight up to the hospital for some urgent tests today. My long suffering husband was a couple of weeks ago, because to top all of this off, he has both Cauda Equina Syndrome (neurological spinal condition), he also has a swollen calf muscle from a suspected partial tendon rupture. They had to rule out DVT. He’s had two normal D Dimer tests, so that’s one thing it’s not. I want to help him with this as much as I can but I am bedridden and extremely unwell. Everything is too much now. Many of my ancestors were tortured and killed in German extermination camps during WWII, and somehow many also survived and told their horrendous stories, so maybe, just maybe, if a human being can survive something as atrocious as that, I will survive this?. I am ready to accept the worst though. I have forgotten what it’s like to wake up and feel ‘well’, I don’t even know what ‘well’ is anymore. I get very upset when I see someone jogging or cycling or jumping around, because I can barely lift my arms above my head. I feel like it’s time to ask for something like a mobility scooter or a f*cking wheelchair. Pardon my language but I’ve had enough of my torture chamber body.

I can deal with this very real possibility, even if whatever it is is going to kill me, fine, just tell me what it is because if something’s going to kill me, I want to get acquainted with it first, please don’t shoot me in the back.

Last off, if anyone suggests I ever reinstate, I will give it some serious consideration because I have reached the end of my rope now, out of slack, no more room for movement in my little box.

« Last Edit: March 02, 2017, 09:09:23 am by [Buddie] »