Patient goes back on Klonopin after Benzo Buddies taper almost causes stroke

My heart couldn't handle my withdrawal
« on: January 09, 2020, 02:11:18 pm »

[Buddie]

I am back now taking my regular dose of clonazepam. I lasted 15 days without a benzo, those 15 days were the longest, confusing, hellish days of my life. Without a doubt my effort to quit caused my blood pressure to spike to the point where I need to take a pill for my heart at age 34. I would love to be happy and benzo free, it just seems like I could get benzo free but I would be regretting it because your body feels so different and changed from the benzo. I’ve already been kicked out of enough Doctor’s offices so I think I’m going to take this Dr.’s advise and stay on the benzo even though it’s not suppose to be taken for more than 2 months and I’m on over a decade. At some point there will be a Class Action Lawsuit on everyone involved in this scheme, however I don’t want money I want myself to be able to live without Big Pharma. Good luck to everyone out there fighting the good fight, keep it up love is reciprocal.

Klonopin helps dystonia patients

Re: What happened to Benzodiazepine Information Coalition?????
« Reply #17 on: November 23, 2019, 04:52:23 am »

[Buddie]

I don’t think patients should be forced off of benzos. I had severe dystonia symptoms from klonopin withdrawal, and would never wish that on anyone. klonopin and benzos are one of the few meds that can treat dystonia. (dystonia is a movement disorder where your body twists and contorts in unnatural ways). Little kids are screaming in pain as their feet bend backwards, and this can go on for several hours at a time, for some it is non-stop. Benzos should ALWAYS be allowed for that reason, and I went through absolute hell from my prescribed klonopin. That being said, as much as I am against klonopin, had I continued with the severe dystonia movements, I would have gone back on. You are literally trapped in bed with your body twisting painfully in strange ways.

There may also be people with anxiety who are stuck in that fight or flight without benzos. Just like pain meds, some people are helped, or are willing to deal with the risks. What I think is most important is making people aware of the risks before they start the medicine. But I would never want to see a person with bad dystonia from accessing benzos. Basically, think of the pain that shoots through your foot when you smash it against something and bend in backwards until it bruised. That is what dystonia can do, but it keeps it bent for hours at a time. I had times where my legs looked like someone beat the crap out of me from how bad the spasms were. For someone who suffers this on a daily basis, benzos should be available.

CNN accused of hit job ahead of fearmongering benzo special

Benzo Buddies member goes back on benzos after brutal Ashton taper fails and is doing great!

a lifetime of decisions, and a long weird path back towards reinstatement
« on: July 17, 2019, 06:37:35 pm »

[Buddie]

Hello,

I had initially kept this post to a handful of staff members, but was encouraged to feel free to make a more public post.

Put simply, I am back on benzodiazepines after an extended period off, and while I have deep reservations about this, after eight months it does not yet seem to have been a mistake.

Abbreviated backstory: I was on benzos for a number of years in late adolescence / early adulthood for anxiety based reasons. I had mild tinnitus at that time (possibly attributable to many things, including a distant history of childhood ear infections). Tapering was brutal and took me 14 months, and I wrapped that up sometime in 2005. I don’t recall tinnitus ever being a problem, except briefly during parts of the taper.

In 2010, an acoustic trauma did some significant damage to my auditory system, the tinnitus turned into a wailing monster, and I used benzos again for about a year before tapering again. I spent 2011-2015 basically miserable, highly functional but chronically consumed with the violent, often painful, extremely high pitched noise in my skull. I tried all kinds of things; if there is a supplement, drug, medical practice, massage practice, alternative medicine practice that someone on Google says helped their tinnitus, I probably tried it. I also tried doing “nothing”; I learned to meditate. I learned to sleep with earplugs in spite of the noise. I spent a lot of money; I spent $10,000 to be a lab rat in one clinical trial alone (lots of travel involved).

I remain hopeful about the tinnitus treatments that are in the pipeline, but a little voice continued to say “I need to do something now”, as my life sort of passed before my eyes. I achieved significant professional success. I was able to relocate out the city to a pristine, quiet area in 2016. This did all make me feel better in some ways, but still the noise.

In late 2015, unrelated medical circumstances forced me to consider short-term PRN use of Valium, and, of course, I discovered that it still “worked” as far as taking my mind off the tinnitus. From early 2016 until November of last year, I used Valium PRN; when the tinnitus would become absolutely intolerable, I would take enough to knock it way back (usually 10-20mg over 24-36hrs), and then try to not do that again for 3-4 weeks. I became a parent over this time period, and I realized that the times I was the most medicated were also the times I felt the most joy and connection with my child. By July of 2018, I was agonizing over the idea of reinstatement, but I wasn’t sure.

I made a list of every possible tinnitus remedy that seemed reasonably attested which had not yet been attempted. It was a pretty short list which included some out there ideas like “cervical chiropracty” and “microdose psilocyban”. None the less, I crossed these items off my list as I tried them. Finally, in late November of last year, well supported by a medical team (including a prescribing doctor who is deeply aware of the hazards of benzos and necessity of a slow withdrawal), I elected to resume daily benzo use. After 2 weeks at 25% of the dose I’d previously been on long term, things felt very bad; more or less, I felt like I was in withdrawal, and I almost aborted the experiment then and there. One of my medical team persuaded me to at least attempt my full prior dose for some period of time; I also elected to supplement it with gabapentin based on some research into the combination for tinnitus specifically (and the general observation that gabapentin is much less scary than benzos, so if it can be used to supplement a benzo dose and reduce benzo consumption, that’s probably a win).

More or less I had a one month “honeymoon” where life seemed too good to be true, and as expected, that faded as tolerance became obvious and peripheral side effects also vanished. However, what I am left with, so far, is a life which is much more manageable. It’s hard to put numbers on things, but the tinnitus is more distant, it’s generally less disturbing when it does get my attention, and I’ve been able to make significant progress in my family life, in my professional life, and in therapy, which had been blocked by the state of utter discomfort, misery and despair that my tinnitus had thrown me into. The general observation of my spouse is that I am easier to talk to, more likely to listen to them, less likely to snap, and more likely to be sympathetic and caring in general.

To make a few things clear:
This was my choice and I would not encourage anyone else to do the same thing. No one’s circumstances are identical. For all I know, my use of benzos during developmental years caused problems that couldn’t self-fix, and if not for that I might not be in this situation at all. Likewise, if I had taken better care of my ears, or had better genetics around hearing, tinnitus and anxiety, I might not be in this situation. But, that doesn’t matter: the way things are, is the way things are.

I do not know the long term results of this (and neither do you) – I waited more than six months before posting this because I wanted to be sure a beneficial effect that outweighed my reservations about benzo use, would persist for some period of time after obvious tolerance had set in. It’s entirely possible that this will “stop working” at some point, and I will be left with my generally terrifying tinnitus on top of having to do another taper. But, it’s also possible that won’t happen (one of my family members has taken Klonopin with no loss of efficiency for more than 15 years) – and it’s further possible that some of the tinnitus treatments which are currently in the experimental or early marketing phase will turn out to be extremely effective, at which point attempting another taper might seem very rational to me.

I agonized over this decision more than you can possibly imagine over a five year period; eight months in, it’s given me eight of the best months of the last 10 years of my life. I am happy to answer any reasonable questions, but I ask that you respect my right to autonomy and decision making over my own body.

CULT TALK

I’ve been informed that some of the kooks are filing their FDA complaints multiple times. I’ve taken the liberty to forward the links, of cult members bragging they’ve filed more than once, to the FDA. No need to thank me. 🙂

Benzo Buddies pothead loves grass, ‘super sad’ not to be smoking it anymore, swears Klonopin takes edge off marijuana-induced panic attacks

Re: Can marijuana help through benzo withdrawal?
« Reply #124 on: March 30, 2017, 12:26:47 am »

[Buddie]

Marijuana elevates heart rate and therefore can trigger a panic attack. I was a daily pot smoker and 90 percent of the times I was great except for random bug outs. Klonopin took that edge off. Then when I was tapering in the fall I got massive attacks every time I smoked. My cold turkey was so bad in January I didn’t even bother trying it. I smoked one little hit the other night and my heart went[…]. I hear what you are saying about being hungry prior to smoking and how it can cause some anxiety that’s a real thing. But I don’t think pot is useful for benzo withdrawals. I love marijuana and I’m super sad to not be smoking it anymore. I don’t think it’s harmful, but I’d rather avoid a panic attack or chest discomfort. I may try some edibles at some point. I researched this to death because I so miss smoking it but from everything I’ve read it doesn’t seem conducive to the brain healing post benzos. If you try and it works for you congrats. Let me know how it goes. Lol

“The only thing that helped was Klonopin”

Is this mania?
« on: September 19, 2016, 04:42:22 am »

[Buddie]

2 weeks ago I went to the er because I felt like I was loosing my mind, I felt like adrenaline was cranked through me all day, it was very scary my mind was racing 1 hundred miles an hour, obsessed thoughts, no sleep needed no meds could calm me down, went back on the seroquel for a few days felt a lot better, this all happened when I stopped the buspar and seroquel for a few weeks, I went up on my dose in buspar today same feeling are starting but my seroquel famed it down, is this bipolar mania? Still trying to diagnose me because my anxiety is so bad with mood changes and depression, only thing that helped was klonopin but weont prescribe it I have been off of it a month and a half after tapering, I’m just wondering if my anxiety is so bad from bipolar?

Church of Ashton’s micro-tapering dogma ruins another life

Why withdrawel at all???
« on: April 03, 2016, 10:24:55 pm »

[Buddie]

over the past two years I have gone from Klonopin to valium. Have reduced from 35mg valium to 16.25mg.
1. I lost my job
2. I feel worse with every reduction
3. I’ve lost weight
4. bad physical problems.
5. Isolated myself from the world because i am in a constant state of panic/ depression
6. cannot function. Drive a car, go to the store etc.
Why did I do all this to myself when I probably could have just upped my klonopin and felt ok. I went 18 years of being on it with no problems. Maybe some people just need to take it for life like cholesterol medicine. It seems like everyone on here talks about the horror of withdrawel and ways to do it but no one sais why they did start to taper. Were some of you fine and just didn’t want to take a pill everyday or did you start to have problems with the meds? If so why not try to take more? I’m just trying to figure this out.