Without realizing it, member describes Benzo Buddies (as a cult)

Re: Titration, Patents, and Fantastical Claims
« Reply #11 on: November 02, 2019, 05:54:48 am »

[Buddie]

The practice of granting secret, esoteric wisdom that is accessible only to the elect through loyalty to a charismatic but flawed figure who dispenses their occult knowledge through personal revelatory insight while shunning and then casting out members of the group who do not practice exact adherence to a set of seemingly arbitrary dictates while still accruing a devoted coterie of followers, may or may not be applicable to this person, but it sure seems like the attributes one would ascribe to a cult.

We need a method (or probably many methods) of healing that is public and reproducible. That is one of the goals of working together. Perhaps one day a Benzo-savior will appear before us, ready to bath our minds in the waters of true healing, and we will all be:

“remade in the way that trees are are new,
made new again, when their leaves are new,
pure and ready to ascend to the stars.”

But until then, I feel like there is a lot of real work to do.

How long will the obsessed Benzo Buddies leader’s nearly decade-long feud with Jana Hill go on?

Titration, Patents, and Fantastical Claims
« on: October 29, 2019, 11:34:44 pm »

Colin

Re: http://www.benzobuddies.org/forum/index.php?topic=231829.msg2975666#msg2975666

For many years there were attempts to promote a particular unproven/untested set of titration protocols. Further, those promoting these methods were engaged in rubbishing completely standard (and effective for most) pill-splitting tapers and characterizing them as ‘cut & suffer‘. They even peppered posts at BenzoBuddies with such language – this is when I first intervened in this matter (January, 2013). Even though Jana Hill (the person behind the protocols) closed down her forum some years ago, there continue to be a small number of very vocal individuals who seek to promote her untested claims as somehow proven or guaranteed to work. Indeed, there has been a recent uptick in activity promoting her protocols both within and without BB. When there is any attempt at push-back, the rather extreme reaction (including threats of lawsuits) are rather illustrative of the problem. If this fails, then perhaps one of Hill’s supporters will instead offer to purchase BB. No.

Jana Hill applied for a patent in 2012. As I suggested a short time later here at BB, the claims made in her patent were extremely flawed, some were even dangerous. Indeed, all twenty claims were rejected. Only with the help of the patent examiner (who apparently redrafted three claims for her) was a patent (with three claims) eventually allowed.

Hill seems to misunderstand (or wishes others to misunderstand) that because a patent is awarded, this somehow means that her protocols are: 1) tested and verified; and 2) are defensible. The award of a patent does NOT connote these things. A recent quote from Hill at the Benzodiazepine Information Coalition website:

Quote from: J.Hill
Crazy Canuk , in his opening statement, says that he learned this taper protocol from its developer through BenzoDetoxRecovery. He states that he hopes that it’s okay to make his videos ostensibly describing it. It isn’t; it wasn’t.

Using the protocol incorrectly tarnishes its good name and places users at risk. He presents it incorrectly.

The authentic BenzoMicroTaper protocol USPTO 9301963 has a 13 year record of success. It is verified by the US patent office as novel( it was not previously available), needed, and understandable by “those practiced in the art”.

If The Coalition’s rules allow it, I will post the way that you can find the authentic BenzoMicroTaper . False versions now seem ubiquitous. A summary is available for the patientsÂ’ doctors. You can ask for it using the “reply” button.

J.Hill

Benzodiazepine Tapering Strategies and Solutions – Benzodiazepine Information Coalition
https://www.benzoinfo.com/2017/10/09/benzodiazepine-tapering-strategies-and-solutions/

Hill’s statements that her method, “is verified by the US patent office as novel (it was not previously available), needed, and understandable by ‘those practiced in the art'”, is extremely misleading and disingenuous.

It is probably best for me to simply link to the patent and some information about patents:

https://patents.google.com/patent/US9301963B2/en

https://en.wikipedia.org/wiki/Person_having_ordinary_skill_in_the_art

https://en.wikipedia.org/wiki/Novelty_(patent)

https://en.wikipedia.org/wiki/Inventive_step_and_non-obviousness

https://en.wikipedia.org/wiki/Prior_art

http://www.geocities.com/benzobusters/winslow.htm

And for anyone who is particularly interested, and would like to compare, here is the original patent application (with the rejected 20 claims):

http://appft1.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PG01&p=1&u=/netahtml/PTO/srchnum.html&r=1&f=G&l=50&s1=20120322794.PGNR.&OS=DN/20120322794&RS=DN/20120322794

Further reading, including threats from Hill to doxx a BB member:

http://www.benzobuddies.org/forum/index.php?topic=159823.0

There is a lot I could get into, but my time is limited – I’ll leave it for readers to interpret (and discuss if they wish). But if any of you would prefer to read something a little more bite-sized, please check out the attached document*, which was supplied by Hill to the US Patent office in support of her appeal after the patent was initially rejected.** It is replete with nonsense, false claims, and utilization of quite extraordinary language.

* Available via the link at the foot of this post (with a small green paperclip image next to it).

** Please note: Jana Hill’s personal details appear in the attached document. However, Hill long ago chose to make her name and location public knowledge (and again very recently through the media). And the attached document is a public record.
« Last Edit: October 30, 2019, 11:17:09 pm by [Buddie] »

Self-pitying cult member’s story ends with sappy plea to make Colin the next King of England

Beyond Success Stories
« on: September 12, 2019, 01:03:20 am »

Quietquiet

Hey Folks,

I’ll post this here because it seems the least inappropriate place to do so. I’m actually surprised there isn’t a dedicated section for people who want to pursue action related to questions of justice, advocacy, pushing for research, how to sue practitioners/manufacturers, etc. There absolutely should be. Other sites/organizations may be a better fit to implement action, but BB seems an ideal place to, at minimum, discuss these issues in our own informed, freewheeling, even chaotic manner. I’m pretty new to all this, so I don’t want this to be taken as a criticism of BB. I value this place immensely.

There is a lot of anger and some triggering language below, so if you are not up for that then I wouldn’t read much further. It’s also kind of long.

-Beyond Success Stories-

Everyone appreciates Success Stories. They really do help and I know they have brought many people through some rough patches. At the same time, what I’ve noticed is the air that some of them present, as though writing their story is the last great service that the author is going to provide to those left behind. A final parting gift. And we are very grateful for this gift. I am absolutely, honestly grateful. But BB is a kind of closed community. So that message does not spread very far.

When I want people to understand what I am going through, I tell them to go to BB and read a Success Story, because I think every single person on earth would find it shocking the amount of pain involved in what we call ‘success.’ Ideas like: “withdrawal symptoms may persist for weeks, months or years,” just don’t register with people. Does that mean you have a headache? Some fatigue? You miss taking the drug? No, it means I was force-marched through hell, and I have lost everything dear to me along the way. How’s that for a possible side effect?

I wish every success story was sent by its author to the editorial page of their local paper. To every national paper. To every international paper. They may not run them, but eventually they will read them, and those people have a vast influence. And you don’t need to have achieved ‘success’ to write a letter. I wish there was a collection of them available on Amazon — there is for every other aflicted group, and people read them.

I know some people stick around to offer aid and support, and some people go off and work on these issues in the world in the ways that they can. Thank you so much for doing that. It takes great strength of character. Admins and BIC do such powerful work.

But the overwhelming feeling I get from reading success stories is that people are trying really, really hard to forget about their experience. And that makes total sense. It’s a deep trauma; who wouldn’t want to forget? I’m sure if I ever heal, I’ll want to as well. Some people may not be able to have anything to do with work involving benzo advocacy after the trauma. That is totally understandable. Live your life. You’ve damn well earned it.

But how long has this board been active, 15 years? 15 years of people healing through the solidarity of their fellow sufferers, and still new people keep showing up. New people who have to go through hell because they weren’t told the truth.

This is, of course, not the fault of those who have healed and moved on. And no one should have to live their life in service to a cause they no longer feel connected to. But it is hard to claim to care in any meaningful manner when we willingly turn away from those who are suffering in the way that we suffered. We need to at least be honest about that with ourselves.

Because I know that if even one person had told me of the dangers of benzos I wouldn’t have taken a single damn pill (the potential dangers of the drug is on the package insert of every benzodiazepine – editor). I know this because someone told me about the dangers of a couple of harsh ssris, and when I was offered them, I rejected them. And I also know this because of the street drugs I was warned of and didn’t take. No symptom list can communicate what benzo suffering is like; it takes a survivor.

I’ve read stories where people go back to confront their doctors and then walk away because they just can’t find the words. And I think, who is that doctor going to injure next? Please, please find the words.

They don’t believe us when we are symptomatic because those who are mentally unwell are imminently dismissible. It is much harder to argue with a ‘healthy’ person. Especially one who is going to report you. Especially one who is threatening to sue you. Especially one who will tell every person they know what their trusted doctor did to them if they do not rethink their actions and policies. Phones and email work wonderfully well if you are worried your anger will overwhelm you. Demand a response.

My understanding is that there is no real research being conducted into what has happened to us, nor into ways to help us in our struggle. People have been taking these drugs for 50+ years and they still don’t really know what the longterm effects are in any real way. That is unacceptable, and as far as I know, not true of any other drug of ‘abuse.’ There is a trail of corpses and broken lives all along those decades.

I don’t want to have anyone going through this to feel any extra burden right now. You’ve got enough on your plate. But I see so many threads about whether some vitamin will help, or people passionately debating whether or not to use some supplement. Both of those are important for people to look into when they are suffering. But…

I just wish I saw the same passion being directed at finding ways to convince our elected officials, or the people that run the various departments and institutes of health, or research bodies, or news organizations, or watchdog groups, or our own providers, to at least TRY to do something about this. One ironic thing about victims is that we actually have IMMENSE power, because we KNOW, and we have STORIES. And people believe in stories, and they understand something about pain, and they care when they hear about people suffering. They do, they really, really do care.

They just have to be told those stories enough times and in the right ways. There are some damn good story tellers and experts on this site. Put Fliprain on Dr. Phil. Have […] chair the Benzo Withdrawal Symposium happening in Tucson on the 16th. Make Colin the next King of England. Whatever it takes.

In my darkest moments (and maybe stop reading here even if you have read through the rest, because it is dark) I feel like a person who is chained to the wall of a dungeon with a bunch of other prisoners, being tortured by a psychopath. And every once in a while, a person claws their way out of the darkness and into the light. Into freedom. They escape the dungeon and the torture.

Imagine you are that person who escapes. What is your responsibility to those back in the dungeon, still chained to the walls, with the drills and the saws?

Maybe it’s enough to be free. Maybe you don’t have to do anything. But maybe you can raise Holy Hell. I don’t know. I’m still in the dungeon.

What I want is for us to find out the truth of what is happening to us, and for us to have a lot more help, and maybe eventually to take some action so I don’t feel so absolutely powerless. And above all I want to know that there will one day be a final person to sign up to this forum. And that person will be met with all the knowledge they need, and after they have quickly healed, Colin can close this board down and turn it into a memorial for all the anguish and all the courage that it is a testament to. Or just delete it, because maybe by then we all really could begin to forget, in the fullness of a great victory over such agony and despair.

So this is a desperate rant because I am in pain; I am holding on by my fingernails; I’m afraid of what is going to happen to me. And if I offended anyone then I’m sorry, really I am, unless it makes you do something that helps us. Because a whole lot of stuff in this world was changed because one person got righteously pissed, or just did the hard work. How many people are alive because one doctor in Newcastle opened a clinic and wrote a manual on withdrawal? And why has there been no one since?

Why don’t we have physical places for people to go to in order to recover long-term? Why aren’t there institutes devoted to research? Why isn’t there any real funding? Yes, there are answers to those questions, but those answers are unacceptable. Those places and institutions exist for many other forms of treatment that people need, and often for conditions that impact far fewer people for far less time. We can’t even go to drug treatment centers because THEY MAKE US WORSE. That is insane.

I would feel a lot better if there was more discussion around here about the power we DO have. About the studies we think SHOULD happen, and how they should be conducted, and who we can contact and educate and badger and cajole into taking them on. About the ways we CAN change the minds of those who can immediately do something about this. Because I do know this, we COULD be helped, and quickly. Not necessarily healed, but helped.

Who are the experts on benzo withdrawal? We are. But there are people in the world who know things that we could benefit from. If there is one thing I know about the members of this forum it’s that you can type all damn day long and you do not give up.

Maybe this has all been said before and dismissed for good reasons. If so it’s time to reconsider. I just know I can’t read another post about whether or not I am to blame for increasing my symptoms because I ate some garlic.

Our lives were stolen from us. Stolen. That is a crime. It cannot be allowed to stand and it must not be allowed to continue. The only justice in the world is the justice that you insist on when you have the strength to do so. And sometimes even when you don’t.

My best,

quiet