Benzo Buddies fearmongers to gain, keep and control members

Why is there still withdrawal from only tiny doses?
« on: July 13, 2017, 05:35:23 am »

[Buddie]

There are stories of people who had a full blown withdrawal from as little as 0.05mgs of valium. What? There are alot of things in our food that also affect or gaba or even our bz receptors, such as niacin, taurine, and magnesium. These things should be as powerful or more powerful than 0.05mg of valium. What is so profoundly different about benzodiazepines that they create the withdrawal syndrome even from a tiny dose?

FDA MedWatch Program campaign failing, only 277 kooks fill out complaints to date

“277 reports may not be enough!” – panicked Benzo Buddies member

Benzo Buddies claims to have 33,085 members yet can’t rouse a paltry 1% of them to fill out a complaint to the FDA. The tiny, secret Facebook groups have perhaps 2000 members combined (most join multiple groups in order amplify the self-pity they can wallow in everyday as they talk about how bottled water can send them into a wave) but despite hounding by zealots can’t get more than a handful of their members to do this.

Kooks add “benzo hands” to list of 90,000,000 benzo withdrawal symptoms

Dried, wrinkled hands???
« on: May 16, 2017, 01:17:03 am »

[Buddie]

A new symptom has popped up for me now 7.5 months out from CT of Prozac – dry, hands that are wrinkled and numb to touch. I feel barely any sensitivity in them. Is this even normal? I’m really starting to question WD…I am having sxs that not many have or have had for a long time. Really concerned here…

Re: Dried, wrinkled hands???
« Reply #1 on: May 16, 2017, 01:21:52 am »

[Buddie]

I have that, too, more in my right than my left hand. I find that leaning on my elbows when I use the computer. or even just using the computer makes it worse. Also try not to sleep on your hands or arms. I know I do that, but that’s how I sleep. As long as I’m awake I try to keep off of them, though.

YouTube benzo videos terrify cult members

I saw scary videos on youtube. Are they true?
« on: December 29, 2016, 12:34:46 am »

[Buddie]

I am about to begin my liquid taper of klonopin this week. I went online to see how other people were doing it just for some pointers and some of the people on youtube make titration sound like it is impossible. One person on there who posted alot looks like she is about to die. Please tell me she is just nuts. This was very discouraging and it scared the h#### out of me.

Panic breaks out as cult high priestess Perseverance flees Benzo Buddies

Searching for Perseverance
« on: December 02, 2016, 07:56:41 pm »

[Buddie]

Hi All,

I have introduced myself here before as the director/producer of As Prescribed, a documentary (in production) about the benzodiazepine scourge. I find BB member […]’s theories about benzos to be compelling, and would like to contact her. Does anybody know her? I believe that she is based in Maine. I don’t think she visits BB much anymore, but I would not be surprised if some current members know how to reach her. If so, I’d be enormously grateful. And if you have additional questions of me before sharing contact information, please PM me here, or email me at hollyhardman88@gmail.com.

Thanks!
Holly

Re: Searching for Perseverance
« Reply #1 on: December 02, 2016, 08:53:54 pm »

[Buddie]

I have no idea how to contact her, but just wanted to say that I agree with you about […]’s work. Her research was top quality. I’d say the ‘glutamate theory’ is the best one we have right now.

Re: Searching for Perseverance
« Reply #2 on: December 02, 2016, 08:58:29 pm »

[Buddie]

Hi […],

I haven’t seen her active here in some time; if she is still set to allow PMs, you could contact her that way and it will go to her email if that’s still valid.

Good luck.

New drug guidelines send junkie into panic

Opiates & Benzos
« on: October 05, 2016, 11:59:23 pm »

[Buddie]

Went to my PCP today to get hydrocodone refilled (taking it for severe neck/back pain).

He told me the FDA is setting up new guidelines for prescribing opiates and benzos at the same time. I had been on clonazepam and recently tapered off, but he thought I was still on it, and told me to stop taking it because of the new guidelines. Of course, I told him I had tapered and was already off of it, but my thought was what if I hadn’t already been off of it I would have been c/t’d. He isn’t willing to prescribe both meds now, so he would have taken me off benzos (or opiates). If I were someone that was on a fairly high dose of benzos (or even not a high dose), I would have been cold turkeyed.

I certainly can’t go off the hydrocodone right now because of pain. I would have been screwed. That’s what’s so scary about benzos, opiates, or other addictive meds.

Cult superstar Perseverance called to account for fear-mongering

PERSEVERANCE: WHAT EXACTLY ARE YOU TRYING TO ACCOMPLISH IN YOUR POSTS?
« on: July 15, 2016, 02:05:25 pm »

[Buddie]

Assuming these posts aren’t a cut & paste patchwork of various research data obtained from the many resources that exist in cyberspace, I do admire you and appreciate the time and painstaking analysis involved in contributing to the BB.org information collective…

…unfortunately, I find the essence of many posts to be discouraging, disheartening, and offering little to no hope to those severely debilitated and crippled from the hellacious symptomatology of iatrogenic illness, as it exists in benzodiazepine withdrawal.

Words such as “permanent;” “irreversible;” and “learning deficit,” inspire hopelessness, fear, and a deep-seated sense of despair and anguish that isn’t easily resolved or relinquished; in fact, often thrusting the reader into a downward spiral, deeper into the abyss.

The scholarly, didactic verbiage that is necessary and inseparable from professional clinical trial and research writing format, further confuses and exacerbates the reader’s fragile psychological state.

For example:
“In rats given benzodiazepines chronically, the common α 1 γ2 sub-units are down-regulated, while rarer sub-units are elevated proportionately (Holt et al, 1999). It is suggested that transcription of the Gene cluster on Chromosome 5 (which encodes for α1 β2 γ2 sub-units) is inhibited on chronic benzodiazepine administration, while the transcription of the Gene cluster on Chromosome 15 is upregulated (Holt et al, 1999). In certain brain regions, the Chromosome-5-encoded receptor sub-unit proteins are replaced by those encoded in Chromosome 15, which show less sensitivity.” (4)

This excerpt is quite esoteric in nature and would require the highest level of comprehension and routine familiarity found mostly in researchers with PhD’s (not practitioners).

The one thing I’ve learned in neurology is that few things are conclusive or certain. BWS is severely under-researched and much is not fully understood by the medical community.

One question I continually ask myself since joining BB.org is, “How many people have I inadvertently hurt through bad advice?”

If for every 500 I helped, but hurt 1, I would cease to interact any further, simply because it’s not my call to make in weighing human wellness, health, and life.

Frenzied Ashton kooks make up fake accounts to save World Benzo Awareness Day Wikipedia page

Wikipedia:Articles for deletion/World Benzodiazepine Awareness Day

https://en.wikipedia.org/wiki/Wikipedia:Articles_for_deletion/World_Benzodiazepine_Awareness_Day

Wikipedia:User Da’locin

https://en.m.wikipedia.org/w/index.php?title=Wikipedia:User_Da%27locin&redlink=1#/editor/0

Wikipedia:User MixieLove

https://en.m.wikipedia.org/w/index.php?title=Wikipedia:User_MixieLove&redlink=1#/editor/0