Benzo Buddies labeled draconian hell site, run by out of control moderators, filled with people who thrive on self-pity

June 06, 2019 8:27 AM EDT
I experienced the same thing on BenzoBuddies. At first it was a great forum and others on that forum helped me through the toughest times of my withdrawal. After I healed, I thought I would pay it forward. I was doing a good job helping others and then decided to introduce outside sources of hope and encouragement. I was instantly reprimanded and when I complained, they pretty much locked down my account to where I couldn’t post anything without moderator approval, nor could I Personal Message anyone. My account was for all intents and purposes…worthless and not usable. I told one moderator in particular that you need people on the site that healed to help and give hope to others. She dismissed it and said I thought I was “special” and “better than everyone else.” Because I volunteered my time on the site? Needless to say I don’t go on BBs any longer. Their draconian rules are only meant to stifle what they claim they are about, which is giving others hope. Too many rules, too many moderators on a power kick and too political…that’s how I would sum up BenzoBuddies. Plus too many hard core people that claim they never heal when they don’t tell “rest of the story.” Almost all of those cases involve being poly drugged and having preexisting medical conditions prior to any type of anti-psychotic drug use.
– Igotmylifeback

Self-pitying cult member’s story ends with sappy plea to make Colin the next King of England

Beyond Success Stories
« on: September 12, 2019, 01:03:20 am »

Quietquiet

Hey Folks,

I’ll post this here because it seems the least inappropriate place to do so. I’m actually surprised there isn’t a dedicated section for people who want to pursue action related to questions of justice, advocacy, pushing for research, how to sue practitioners/manufacturers, etc. There absolutely should be. Other sites/organizations may be a better fit to implement action, but BB seems an ideal place to, at minimum, discuss these issues in our own informed, freewheeling, even chaotic manner. I’m pretty new to all this, so I don’t want this to be taken as a criticism of BB. I value this place immensely.

There is a lot of anger and some triggering language below, so if you are not up for that then I wouldn’t read much further. It’s also kind of long.

-Beyond Success Stories-

Everyone appreciates Success Stories. They really do help and I know they have brought many people through some rough patches. At the same time, what I’ve noticed is the air that some of them present, as though writing their story is the last great service that the author is going to provide to those left behind. A final parting gift. And we are very grateful for this gift. I am absolutely, honestly grateful. But BB is a kind of closed community. So that message does not spread very far.

When I want people to understand what I am going through, I tell them to go to BB and read a Success Story, because I think every single person on earth would find it shocking the amount of pain involved in what we call ‘success.’ Ideas like: “withdrawal symptoms may persist for weeks, months or years,” just don’t register with people. Does that mean you have a headache? Some fatigue? You miss taking the drug? No, it means I was force-marched through hell, and I have lost everything dear to me along the way. How’s that for a possible side effect?

I wish every success story was sent by its author to the editorial page of their local paper. To every national paper. To every international paper. They may not run them, but eventually they will read them, and those people have a vast influence. And you don’t need to have achieved ‘success’ to write a letter. I wish there was a collection of them available on Amazon — there is for every other aflicted group, and people read them.

I know some people stick around to offer aid and support, and some people go off and work on these issues in the world in the ways that they can. Thank you so much for doing that. It takes great strength of character. Admins and BIC do such powerful work.

But the overwhelming feeling I get from reading success stories is that people are trying really, really hard to forget about their experience. And that makes total sense. It’s a deep trauma; who wouldn’t want to forget? I’m sure if I ever heal, I’ll want to as well. Some people may not be able to have anything to do with work involving benzo advocacy after the trauma. That is totally understandable. Live your life. You’ve damn well earned it.

But how long has this board been active, 15 years? 15 years of people healing through the solidarity of their fellow sufferers, and still new people keep showing up. New people who have to go through hell because they weren’t told the truth.

This is, of course, not the fault of those who have healed and moved on. And no one should have to live their life in service to a cause they no longer feel connected to. But it is hard to claim to care in any meaningful manner when we willingly turn away from those who are suffering in the way that we suffered. We need to at least be honest about that with ourselves.

Because I know that if even one person had told me of the dangers of benzos I wouldn’t have taken a single damn pill (the potential dangers of the drug is on the package insert of every benzodiazepine – editor). I know this because someone told me about the dangers of a couple of harsh ssris, and when I was offered them, I rejected them. And I also know this because of the street drugs I was warned of and didn’t take. No symptom list can communicate what benzo suffering is like; it takes a survivor.

I’ve read stories where people go back to confront their doctors and then walk away because they just can’t find the words. And I think, who is that doctor going to injure next? Please, please find the words.

They don’t believe us when we are symptomatic because those who are mentally unwell are imminently dismissible. It is much harder to argue with a ‘healthy’ person. Especially one who is going to report you. Especially one who is threatening to sue you. Especially one who will tell every person they know what their trusted doctor did to them if they do not rethink their actions and policies. Phones and email work wonderfully well if you are worried your anger will overwhelm you. Demand a response.

My understanding is that there is no real research being conducted into what has happened to us, nor into ways to help us in our struggle. People have been taking these drugs for 50+ years and they still don’t really know what the longterm effects are in any real way. That is unacceptable, and as far as I know, not true of any other drug of ‘abuse.’ There is a trail of corpses and broken lives all along those decades.

I don’t want to have anyone going through this to feel any extra burden right now. You’ve got enough on your plate. But I see so many threads about whether some vitamin will help, or people passionately debating whether or not to use some supplement. Both of those are important for people to look into when they are suffering. But…

I just wish I saw the same passion being directed at finding ways to convince our elected officials, or the people that run the various departments and institutes of health, or research bodies, or news organizations, or watchdog groups, or our own providers, to at least TRY to do something about this. One ironic thing about victims is that we actually have IMMENSE power, because we KNOW, and we have STORIES. And people believe in stories, and they understand something about pain, and they care when they hear about people suffering. They do, they really, really do care.

They just have to be told those stories enough times and in the right ways. There are some damn good story tellers and experts on this site. Put Fliprain on Dr. Phil. Have […] chair the Benzo Withdrawal Symposium happening in Tucson on the 16th. Make Colin the next King of England. Whatever it takes.

In my darkest moments (and maybe stop reading here even if you have read through the rest, because it is dark) I feel like a person who is chained to the wall of a dungeon with a bunch of other prisoners, being tortured by a psychopath. And every once in a while, a person claws their way out of the darkness and into the light. Into freedom. They escape the dungeon and the torture.

Imagine you are that person who escapes. What is your responsibility to those back in the dungeon, still chained to the walls, with the drills and the saws?

Maybe it’s enough to be free. Maybe you don’t have to do anything. But maybe you can raise Holy Hell. I don’t know. I’m still in the dungeon.

What I want is for us to find out the truth of what is happening to us, and for us to have a lot more help, and maybe eventually to take some action so I don’t feel so absolutely powerless. And above all I want to know that there will one day be a final person to sign up to this forum. And that person will be met with all the knowledge they need, and after they have quickly healed, Colin can close this board down and turn it into a memorial for all the anguish and all the courage that it is a testament to. Or just delete it, because maybe by then we all really could begin to forget, in the fullness of a great victory over such agony and despair.

So this is a desperate rant because I am in pain; I am holding on by my fingernails; I’m afraid of what is going to happen to me. And if I offended anyone then I’m sorry, really I am, unless it makes you do something that helps us. Because a whole lot of stuff in this world was changed because one person got righteously pissed, or just did the hard work. How many people are alive because one doctor in Newcastle opened a clinic and wrote a manual on withdrawal? And why has there been no one since?

Why don’t we have physical places for people to go to in order to recover long-term? Why aren’t there institutes devoted to research? Why isn’t there any real funding? Yes, there are answers to those questions, but those answers are unacceptable. Those places and institutions exist for many other forms of treatment that people need, and often for conditions that impact far fewer people for far less time. We can’t even go to drug treatment centers because THEY MAKE US WORSE. That is insane.

I would feel a lot better if there was more discussion around here about the power we DO have. About the studies we think SHOULD happen, and how they should be conducted, and who we can contact and educate and badger and cajole into taking them on. About the ways we CAN change the minds of those who can immediately do something about this. Because I do know this, we COULD be helped, and quickly. Not necessarily healed, but helped.

Who are the experts on benzo withdrawal? We are. But there are people in the world who know things that we could benefit from. If there is one thing I know about the members of this forum it’s that you can type all damn day long and you do not give up.

Maybe this has all been said before and dismissed for good reasons. If so it’s time to reconsider. I just know I can’t read another post about whether or not I am to blame for increasing my symptoms because I ate some garlic.

Our lives were stolen from us. Stolen. That is a crime. It cannot be allowed to stand and it must not be allowed to continue. The only justice in the world is the justice that you insist on when you have the strength to do so. And sometimes even when you don’t.

My best,

quiet

Accidental addict gets arrested after getting wasted on booze and Xanax

Made a Bad Mistake, Xanax and Alcohol. Now in Legal Trouble Advice Please
« on: March 28, 2019, 03:53:13 pm »

[Buddie]

Hi Gang…I havnt posted in a while, I check the site from time to time. I need help/advice and this site has always been a good source of both. I will be brief and to the point….I am currently on 3mgs of Xanax per day. I tried to taper I tapered Librium in 2016, but failed. I have not increased my xanax for over a Year…but I Made a huge mistake of not realizing it had lost aot of its effect as tolerance set in, and so I combined alcohol Twice a week , every week to just escape the stress of Life. Well, I was cited for Physical Control, and have now been put on probation and have a court ordered Substance Abuse Assessment to be arranged within the Week, prior to a Pre-Trial Hearing in May. It has now been a full week since my last escape day using alcohol. I am feeling stressed…scared…cloudy and very little coping skills. I assume sooner or later my GP who writes my scripts will be involved in what has happened. Anyone faced something similiar and have any advice on a taper…hold stead…add an anti depressant…etc. Thank you in advance. I will adjust my Signature Line

Re: Made a Bad Mistake, Xanax and Alcohol. Now in Legal Trouble Advice Please
« Reply #1 on: March 29, 2019, 09:41:52 pm »

[Buddie]

Congrats on full week no alcohol, […]. Alcohol and benzo’s do not make good companions, they make things worse.

I’d try and hold steady if I were you. This at least, will keep one positive thing still in place. But really up to you.

I’d also talk to my doctor to at least have noted that you are not coping with “life” at the moment, it might assist your case.

I’m not suggesting that you have alcoholism […], only you can know that, but going to an AA meeting mightn’t be a bad idea either. You will find many people there who will offer you support and advice, and might even trigger you into thinking about your use of alcohol as a coping mechanism.

I no longer drink myself, and it is so much better.

Going to AA will also assist your case, though I hope you take your drinking seriously following this experience.

We can’t escape life with alcohol and other drugs […], and who would want to? Life can be good.

I used to go to AA years ago and it helped. They have a saying in AA which asks that people deal with “life, on life’s terms”. There is no escape in alcohol and other drugs, only further entrapment.

Hope everything works out well for you […]. Put yourself first this time, and think about others, too.

[…]

Edit: I come from Australia and do not know what being “cited for Physical Control”, means.
If it entails violence, even greater reason to examine your use of alcohol and other drugs. Many people in gaol today who can’t rememember being violent when under the influence of both.
Be aware.

D.

« Last Edit: March 29, 2019, 09:57:23 pm by [Buddie] »

Re: Made a Bad Mistake, Xanax and Alcohol. Now in Legal Trouble Advice Please
« Reply #2 on: March 30, 2019, 01:49:46 pm »

[Buddie]

Thanks for the reply. Physical Control means you are in a vehicle not driving, not started…but under the Influence. It is a fair law that allows Law enforcement to charge someone who may not be driving at that particulair minute…but you are in the Drivers Seat and therfore responsible for being under the influence. I realized after 20 plus Years of taking Benzos as prescribed that I have reached tolerance long ago. So I began to combine alcohol to escape briefly was has become a tough place in Life. I did this once or twice a Week….thankfully not anymore or I would have another problem with Alcohol withdrawl. One of my Main questions for the Site is what if any Impact will 20 Years of Benzo use have on the Judges decision on a sentence. I am in a place of Leadership in my Community and know that most will not understand the effects of 2 decades of Benzo use has on a person. I realize I am responsible. I should have dealt with this Benzo Dependancy a long time ago. I made some attempts but was unable to break free. Besides Support ….I was looking for insight by anyone on the Board who has brought up Benzo use for a Misdemenor Traffice Violation that is looked upon as pretty much the same as DUI.

Professional victims throw a pity party

Stop playing the victim role
« on: February 28, 2019, 06:56:44 pm »

[Buddie]

I am so frustrated right now, my ex partner told me to stop acting as a victim. This makes me so angry. She has no idea what the hell on earth we are experiencing every minute, hour of the day. My nerves are on fire, because people think we are acting. What is the definition “normal”?

I have stopped talking about it, but that only makes my anxiety worse. Any advice?

I can’t hide my symptoms under a pokerface any longer, they are too severe.

Re: Stop playing the victim role
« Reply #1 on: February 28, 2019, 07:07:54 pm »

[Buddie]

They are not where you are. My grandsons and daughters are doing the same thing to me. They don’t think this is a big deal and it’s very hard on me especially at 70. Stupid GP gave me the Adivan in 2017. I started tapering in 2018. SO I was not on it long, but it’s really put me through hell. Lost 35lbs in one month. Scary to look at my body. They see it and IGNORE the obvious.

It is not happening to them so why and how could they comprehend or understand?

CONSIDER THE SOURCE! They don’t know………so don’t expect them to understand. Take your stand and you do what you know is best for you and what you have to do.

Forget about their attitudes. There is nothing you can do about it unless you make them take this medication and have it happen to them. That is the only way they will understand.

But it has happened to you and me………so we have to deal with it ourselves and get off this poison and help ourselves. DIG IN YOUR HEELS and stand up for yourself, or don’t talk to them about it. Just do whatever you have to do to get better. That is your first and foremost concern. The rest can be just IGNORED.

“I am the sickest person here”

Benzo lies? continued...
« on: November 06, 2018, 03:20:17 pm »

[Buddie]

As an aside here–I firmly believe that any or all of my thoughts could be lies. However, that seems irrelevant to me as I believe them. How is it helpful to know something is not true? If you believe it, it is true. Or am I missing something?

As a continuation to my thread yesterday, it was mentioned one particular lie was, “I am the sickest person here.”

I can prove that is true. There is no way anyone in recorded history has come on and off benzos as many times as me. I could not include really anything much in my signature. Here is a more complete timeline, although no way my memory could capture it all. When you’ve read this, you will all have to admit that I am doomed because it is known that after a rapid taper, which I did, the sxs last longer and are more intense. If you come on and off numerous times the sxs last longer and are more intense. I have come on and off more than 50 times. Nobody in the world has done that. I have read people’s sxs here last for years and they are not kindled. If that is the case then mine should last for decades. I am super kindled. Far beyond any of you. That is science, not benzo lies. Here is a timeline which is so long no one will read. Not even sure why I am posting here at all. Just want you all to agree I am unique and should cash in.

Timeline:

On .5mg. Klonopin from 1989 till 1995. Rapid 1 week taper inpatient.
On Klonopin again briefly following hospital. Not sure if I came on and off a few more times, but probably.
Off benzos but on and off various ADHD drugs and antidepressants, etc. fora few years.
On depakote (a GABA-ergic drug) from 1996-1998 (so was I ever really off benzos? Sort of.)
No benzos from 1998 till 2001. But during that time I was hellishly obsessive. Which makes me believe I never really healed and definitely won’t now since I am much worse now than then.
2001 I had ativan. On and off a bunch of times until 2004. Up to 20mg. at a time. Rapid taper inpatient. Afterwards, 22 rounds of ECT (during which they give you diprivan and probably midazolam I am guessing).
No benzos from 2004 till 2007 or so. I think.
No idea how many times between 07 and now that I have come on and off, but I ordered a whole bunch of times from Indian pharmacies and got my mother’s prescriptions and would taper myself off of them and on and off over and over again. I also had Carisopradol and ambien a bunch of times. I would go months without anything, then back on again.

Enter 2017. I started slow taper. Could not hack it after 6 months.

I went to Virginia. Did rapid flumazenil taper. Been off for over 70 days now.

My point here is that I am scientifically, absolutely the sickest person in the most terrible position that has ever happened. There is no way anyone here or who has ever lived has come on and off as many times as me, at as high a dose as me or who has cold turkied and rapid tapered as many times. No way, don’t believe you.

In short, I am doomed.

These sxs will last for 30 years and will continue to be a living nightmare. They are never going to let up and they will increase in intensity until the day I die. FACT.

No way you could prove me wrong.

And as extra evidence that I am doomed, even if you did, my obsession wouldn’t allow me to believe you. My mind is gone. I don’t exist. I am only this. Forever.