Cult member ends up in ER, vows to continue tapering no matter what

ER Visit Yesterday - High BP, Extreme Nausea, Dizziness, Balance And Tinnitus
« on: May 16, 2020, 04:13:05 pm »

[Buddie]

I couldn’t take it anymore and went to the ER yesterday morning. Despite holding my dose for almost 2 weeks, I’m going to have to say I’m worse with the symptoms in the title. Oh…add to that head pressure and headache. It’s so bad, I can hardly walk or stand. Blood pressure was ridiculous for me…192/94. I had blood work done and it was normal. I have Hashimoto’s, hypothyroidism, and to me, though it falls within “normal” range, I think my TSH is too low at 1.61. At last check it was 2.8 several months ago.

I had a CT scan (with contrast) and other than some known blood vessel abnormalities, it too was “normal”. I was given Zofran in my IV which did absolutely nothing for nausea but as usual, gave me a banging headache.

I didn’t take my levothyroxine this morning. I’m going off of it. I think I read somewhere benzos can cause thyroid problems and maybe since my dose is so low right now, it’s going to improve? I don’t know but almost feel I have HYPERthyroidism now with the racing heart, high BP, sleeping issues and increased anxiety. It’s so easy to blame benzos for everything. I might be on the right path here or so far off the trail I’m an idiot. Also, I’ve lost 50 pounds and I’m older now. People my age can have a TSH of up to 10 and fall with “normal” range. It’s all so convoluted.

Despite feeling like shit, I’m moving forward with tapering. The days are getting worse and I feel it had nothing to do with my rate of taper so that’s why I’m still tapering. This poison had got to go!

The nurse practitioner started me on buspirone. The dose was 7.5mg twice a day. I’m so med sensitive, I took just 3.75mg a day for three days. It was terrible…more dizziness, anxiety, nausea, insomnia, headache…you name it. I’m not taking it anymore and not telling her as she’s going to say I never give things enough time. Well, I think I know my body and anything that makes me feel so terrible isn’t the drug for me. Her theory is my symptoms are anxiety related. That may be true, but taking a drug that makes it worse is unacceptable. Her statement “it doesn’t need to be tapered when time to stop” is false too. It should be tapered. Now it’s one less drug to taper. Yeah for me!!

I know there’s a group on here for tinnitus and “floaty, boaty” feelings but I’m putting it out here because there are so many variables. I’ve had bouts of tinnitus for years but this is 24/7 loud, hissing tinnitus. It’s hard to ignore.

So, if you have a comment, I’m happy to read it especially if you’ve experienced the same.

Thanks.

SG

How long will the obsessed Benzo Buddies leader’s nearly decade-long feud with Jana Hill go on?

Titration, Patents, and Fantastical Claims
« on: October 29, 2019, 11:34:44 pm »

Colin

Re: http://www.benzobuddies.org/forum/index.php?topic=231829.msg2975666#msg2975666

For many years there were attempts to promote a particular unproven/untested set of titration protocols. Further, those promoting these methods were engaged in rubbishing completely standard (and effective for most) pill-splitting tapers and characterizing them as ‘cut & suffer‘. They even peppered posts at BenzoBuddies with such language – this is when I first intervened in this matter (January, 2013). Even though Jana Hill (the person behind the protocols) closed down her forum some years ago, there continue to be a small number of very vocal individuals who seek to promote her untested claims as somehow proven or guaranteed to work. Indeed, there has been a recent uptick in activity promoting her protocols both within and without BB. When there is any attempt at push-back, the rather extreme reaction (including threats of lawsuits) are rather illustrative of the problem. If this fails, then perhaps one of Hill’s supporters will instead offer to purchase BB. No.

Jana Hill applied for a patent in 2012. As I suggested a short time later here at BB, the claims made in her patent were extremely flawed, some were even dangerous. Indeed, all twenty claims were rejected. Only with the help of the patent examiner (who apparently redrafted three claims for her) was a patent (with three claims) eventually allowed.

Hill seems to misunderstand (or wishes others to misunderstand) that because a patent is awarded, this somehow means that her protocols are: 1) tested and verified; and 2) are defensible. The award of a patent does NOT connote these things. A recent quote from Hill at the Benzodiazepine Information Coalition website:

Quote from: J.Hill
Crazy Canuk , in his opening statement, says that he learned this taper protocol from its developer through BenzoDetoxRecovery. He states that he hopes that it’s okay to make his videos ostensibly describing it. It isn’t; it wasn’t.

Using the protocol incorrectly tarnishes its good name and places users at risk. He presents it incorrectly.

The authentic BenzoMicroTaper protocol USPTO 9301963 has a 13 year record of success. It is verified by the US patent office as novel( it was not previously available), needed, and understandable by “those practiced in the art”.

If The Coalition’s rules allow it, I will post the way that you can find the authentic BenzoMicroTaper . False versions now seem ubiquitous. A summary is available for the patientsÂ’ doctors. You can ask for it using the “reply” button.

J.Hill

Benzodiazepine Tapering Strategies and Solutions – Benzodiazepine Information Coalition
https://www.benzoinfo.com/2017/10/09/benzodiazepine-tapering-strategies-and-solutions/

Hill’s statements that her method, “is verified by the US patent office as novel (it was not previously available), needed, and understandable by ‘those practiced in the art'”, is extremely misleading and disingenuous.

It is probably best for me to simply link to the patent and some information about patents:

https://patents.google.com/patent/US9301963B2/en

https://en.wikipedia.org/wiki/Person_having_ordinary_skill_in_the_art

https://en.wikipedia.org/wiki/Novelty_(patent)

https://en.wikipedia.org/wiki/Inventive_step_and_non-obviousness

https://en.wikipedia.org/wiki/Prior_art

http://www.geocities.com/benzobusters/winslow.htm

And for anyone who is particularly interested, and would like to compare, here is the original patent application (with the rejected 20 claims):

http://appft1.uspto.gov/netacgi/nph-Parser?Sect1=PTO1&Sect2=HITOFF&d=PG01&p=1&u=/netahtml/PTO/srchnum.html&r=1&f=G&l=50&s1=20120322794.PGNR.&OS=DN/20120322794&RS=DN/20120322794

Further reading, including threats from Hill to doxx a BB member:

http://www.benzobuddies.org/forum/index.php?topic=159823.0

There is a lot I could get into, but my time is limited – I’ll leave it for readers to interpret (and discuss if they wish). But if any of you would prefer to read something a little more bite-sized, please check out the attached document*, which was supplied by Hill to the US Patent office in support of her appeal after the patent was initially rejected.** It is replete with nonsense, false claims, and utilization of quite extraordinary language.

* Available via the link at the foot of this post (with a small green paperclip image next to it).

** Please note: Jana Hill’s personal details appear in the attached document. However, Hill long ago chose to make her name and location public knowledge (and again very recently through the media). And the attached document is a public record.
« Last Edit: October 30, 2019, 11:17:09 pm by [Buddie] »

Klonopin for 10 days, Benzo Buddies for life

Re: HELP!! Do I need to taper?
« Reply #11 on: August 28, 2019, 07:04:41 pm »

RKO

Not trying to scare you but I was only on Klonopin for 10 days and my doctor wouldn’t allow me to do an Ashton taper because I was only on for such a short time.

I was hooked by day 7, unknowingly, when I took half a dose one night and woke up with heart palps. Damn pills nearly killed me when I quit after a rapid taper that was basically a CT.

It’s been over 15 months and I’m nowhere near healed.

I’ve come to realize, however, that I am in the extreme minority. You’ll probably be fine though.

Paxil: 2000-2007
2/08: Adverse reaction to 9 days of Saw Palmetto extract for hair loss (PFS)
Klonopin: .25mg PRN 2/08-7/08
Prozac: 11/08-3/09

Drug free for 9+ years, life was great

4/19: Severe ear infection, temporarily deaf, tinnitus – rx Augmentin

4/26-5/1: Steroid taper pack

4/26-5/5: Rx Klonopin .5mg nightly by ENT for insomnia/tinnitus (heart palps on Day 7 with .25mg, dependent in a week?!)
5/6: Cut to .25 mg (cut 1mg tabs into quarters) – BAD symptoms. Run to GP for help
5/10: Cut to .125mg (per GP advice) – even worse symptoms, bad advice from doc
5/13: Jumped. WAY TOO SOON. HELL. Should’ve reinstated, basically CT. Didn’t have sufficient supply, GP wouldn’t prescribe more. Wrongly assumed short use would be short WD

Addict thanks Ashton and Benzo Buddies for wasting three years of her life

The Beginning of My Third Year Tapering
« on: April 05, 2019, 12:24:23 am »

[Buddie]

April 2017, I started tapering 2 mgs of Xanax, my stomach was killing me, had all the tests, all came back showing nothing, lucky enough my husband found an article discussing benzos and stomach pain and it all fell together.  I immediately cut way too much, having no knowledge of what I was doing, but I was lucky in that the next day I started researching.  I didn’t find the Ashton Manual or BB then , just enough information to go back up immediately, the word stroke scaring me to death.  Started back down, still way too fast, withdrawals really bad.  Anxiety off the roof, shaky, heart palpitations, muscle pain, and many others.  Mostly in terrible shape.  In October, after lowering about .05 xanax found Ashton Manual, got my pain Dr to help and managed to come down another.25 for a total of.75 Xanax.  Horrible withdrawals, found BB, thank goodness, and decided to crossover to Valium, which also turned into a nightmare, my body just hated it, sedated, sick, had crossover too fast, having xanax withdrawals also.  It was awful.   I made many more mistakes during the next year, this is so hard, not the same rules for anyone.  My main symptom through all of this has been bad muscle pain, still is.  I am writing this for the people who are around a year into this and think they can’t go on, you can.   I am down to 10.56 Valium from 40 mg .  I am now doing a daily liquid micro taper, much easier than cut and hold for me, and just had a three week window, I had never had one.  So if I can make all the mistakes I did and be as miserable as I have been, know you can keep on.  Keep reading all over BB to find the way for you, ask questions, learn, get advice……my best advice, taper slowly, so many of us have run into so many walls wanting to speed this process up, all the heartache, pain and time we would have saved , if we had just slowed down.  Ashton is a fast taper for most of us, it’s a good taper but cut that % down or stretch the time frame out.  You will be glad you did.  I was on Xanax for 3 years, never dreamed this could happen, am sure you didn’t either.  I hope this helps someone, I am not a great writer like so many on here, but I wanted to share, you are not alone in your mistakes, not anything wrong you have done has not been done before and those people still healed.  Good luck everyone, you CAN do this too, it won’t be easy and it is going to take a while.   🍀🍀🍀🍀🍀🍀🍀🍀 […]….read the success stories, they help!

Klonopin eater can’t get off the toilet, vows to keep tapering

Anyone struggling with diarrhea during taper?
« on: March 17, 2019, 02:38:19 pm »

[Buddie]

Hello. I have been tapering klonopin for a 4 months. I was on 8mg for 23 years. I’m tapering .25mg per 30 days. I can’t get off the toilet. I have lomotil that I have been taking, but it is not helping like it usually does. Has anyone else had this withdrawal symptom?

Re: Anyone struggling with diarrhea during taper?
« Reply #1 on: March 17, 2019, 09:15:49 pm »

[Buddie]

Hey, sorry you’re having stomach issues. That is no fun at all. I (like you) was on Klonopin and when I tapered I had bouts of diarrhea (and vomiting) that would come and go. And yep, when I had it nothing would help. I do believe this is all related to w/d. I was on 2mg for 7 years so with you being on 8mg for 23 years I am willing to bet this is all related to w/d. But again, it did pass for me but it took awhile. If it gets really bad that would be something most def worth getting checked out by the DR. I would hate to see you get dehydrated from prolong bouts of it. I wish I could give you some advice on what helped me, but nothing did. I had to just grin and bear it unfortunately. So sorry you are dealing with that, I feel for you

Re: Anyone struggling with diarrhea during taper?
« Reply #2 on: March 17, 2019, 11:05:34 pm »

[Buddie]

[…] – Bummer. Diarrhea is a really annoying s/x. I’ve had some IBS problems for years but worse during the taper.

I can say that eating more natural foods – fresh fruits and veggies apparently provided more fiber and helped the problem a whole lot. I also cut out most meat though have small amounts occasionally.

The diet change was due to high sugar levels from diabetes which the doctor said would require insulin if I did not get it under control fast. From my reading a whole food, plant based diet would regulate the sugar. The much improved bathroom issue was just a bonus.

I’m really sorry you are dealing with this and know it can be a serious problem. I hope that will level out for you.

All the best, LA

Planning a half-decade long taper

5 year plan
« on: January 12, 2019, 03:14:11 am »

[Buddie]

Hello,

Since I am not looking to take this fast at all because I want to take it slowly is it absurd to want to take 2 to 3 years to be totally off my klonopin. I take 3 mg a day and have been for about 14 years. I guess I am looking at this differently then a lot of people. Since I don’t want to suffer major withdrawals I probably am going to set a goal to be at 2mg of klonopin a day within the next 365 days. Then after that I will work on trying to get to 1mg a day maybe in year two. I have been on this garbage for 14 years so what’s 2 years of dropping 2mg. I know that isn’t a lot at alll but hopefully my doctor will work with me and understand. Does anybody else out there have an approach like this or am I just a newbie that will probably change my mind. I just don’t want to suffer any withdrawal and if I just go with what my body tells me and don’t set a end date then I believe my success rate will be better

Re: 5 year plan
« Reply #1 on: January 12, 2019, 02:54:39 pm »

[Buddie]

I see nothing wrong with your approach. Dates and time lines need to be thrown out the window, along with % based tapers.

It takes as long as it takes. With the right taper method, and as long as one tapers based on symptoms, the process doesn’t have to be harrowing, rather manageable.

Cult members waste years at Benzo Buddies, waiting for the Ashton miracle that never comes

Looking for my 2014/2015 buddies
« on: March 14, 2018, 06:55:21 pm »

[Buddie]

I’ve been feeling really lonely lately as the symptoms drag on into year three. Losing hope for a miraculous turnaround, wondering if I should just learn to cope with the way things are, the new normal- you know the drill.

I used to post a lot on the working taperers group, the moms and dad’s cafe and the Ashton taper thread. I thought about posting there to see if anyone was still around, but decided to do this instead.

Sleepless in the Bay Area-
[…]

Re: Looking for my 2014/2015 buddies
« Reply #1 on: March 15, 2018, 06:56:55 pm »

[Buddie]

Hi […]. I’m still hanging around. Get a bearable day once in a blue moon. What are your symptoms?