Member with 30 terrifying symptoms gets no help from Benzo Buddies ghouls who forced him into dangerous micro-taper

please help me - paradoxical?
« on: December 13, 2018, 03:39:59 am »

[Buddie]

I know I’ve reached out to a lot of you and it seems I almost have an allergy to this class of meds. I was only on klonipin for 2.5 weeks in May during some neuro testing for numbness, tingling and spasms. Tests for MRI and EMG came back ok. I then wanted to stop the klonipin because I felt flat and irritable and was only sleeping until 7:30. I was told to cold turkey per my doctor and had a panic attack and burning. My doc then immediately moved me to Ativan starting at 1 mg and then moving up to 1.5 and 1.75 for one night. I weaned down to 1 mg and held for a month but had horrible inter-dose withdrawal. I was dropping 25% a week and got violently ill (vomiting, light sensitivity, brain pressure) then moved me to Valium (direct cross over which really hurt my gut). Landing at 12.5 mg and I thought i stabilized. I’ve been hospitalized for hyponatremia for three days and have had an insane amount of symptoms which shook my CNS. They also gave me generic Valium pills in the hospital and generic liquid. I know all the info above sounds idiotic, but I kept telling my doctor something was wrong and asking for multiple opinions with no help. With Valium I started a cut and hold at first then liquid and had to ipdose from 8.5 to 9 Bc of hyponatremia. I’m now trying a .001 microtaper pills after trying to stabilize on 9 mg for a month. I’m still not stable and have almost electricity coming off me and a charge in my tongue and throat. I know I’ve had so many changes in a short amount of time, but I don’t feel like I can survive this even dropping .001. I have insomnia as well and have lost 50 lbs since May with muscle wasting. I know I seem like the crazy one on the forum, but I had a great job and life before this and I’m at a loss of how to move through it. Every single day I get worse. I’m wondering since I never had a proper crossover would it be an option to cross over to Librium and hold for a long time? Any advice would be appreciated. I was holding at 9 mg and still felt pretty terrible. I wish I had known about the Ashton manual before all of this. I’m currently holding. It also burns when I take the Valium.

Sxs that come and go

1. electric feeling – mouth, throat, genitals
2. insomnia
3. head pressure
4. metalic taste and smell
5. rapid aging
6. dpr
7. looping/ocd
8. burning in extremities
9. thirst
10. spasms
11. tingling
12. numbness
13. hair loss
14. twitching
15. veins popping
16. GI issues
17. dandruff
18. massive weight loss
19. muscle wasting
20. tongue spasms
21. electricity feeling off my face – this is because the hyponatremia rocked my CNS
22. DEPRESSION
23. gas
24. foot jerks
25. blinking
26. acid reflux
27. benzo belly
28. tooth pain and inflamed gums
29. tremors
30. Edema

Re: please help me - paradoxical?
« Reply #1 on: December 13, 2018, 12:21:36 pm »

[Buddie]

Anyone? Moderators?

Benzo Buddies members feel worse after long drug tapers

5 years off
« on: October 10, 2018, 07:52:30 pm »

[Buddie]

I will be five years off everything December 4. It is very disheartening to be this far out and have so many symptoms. I’ve been in a wave since the end of May of this year. The worst symptom that I have is air hunger, dizziness, anxiety, DADP as well. And just when I thought it was going to be OK my head has a tremor. Can anyone on this board relate to me this far out? And for those of you that are not as far off as I am please don’t think that my story is going to be your story. I’m Looking for support.

Re: 5 years off
« Reply #1 on: October 10, 2018, 09:18:15 pm »

[Buddie]

I have severe breathing, fatigue and mental problems now. How many windows a week were you having before this wave and have you taken any other meds or supplements during this time

Re: 5 years off
« Reply #2 on: October 10, 2018, 11:32:34 pm »

[Buddie]

Quote from: [Buddie] on October 10, 2018, 09:18:15 pm
I have severe breathing, fatigue and mental problems now. How many windows a week were you having before this wave and have you taken any other meds or supplements during this time

I was feeling good end of May n boom!! No new meds or supplements at all!!!

Benzo Buddies failure: 33 months off and worse than ever

33 months off updates
« on: September 27, 2018, 12:29:48 am »

[Buddie]

Hi BB

TODAY I completed my 33 month off paxil cold turkey, still suffering hard
My symptoms
– anxiety
– depression
– mental fog and bad cognitive skills
– no emotions
– insomnia
– senstive to all stress situations even small things
– anger and hate
– irritation
– low self esteem
– vision and hearing issues
– neirve pain
– fatigue
– cant work out
– intrusive thoughts
– negative emotions
– fear

I thought I would be finished by now but it seems a long road to take, I cannot live my life as normal people do. I hope this ends soon.

Re: 33 months off updates
« Reply #1 on: September 27, 2018, 01:16:39 am »

[Buddie]

Congrats on the milestone, although you probably don’t feel very celebratory.

Did you taper off of benzos too?

Benzo Buddies taper regimen leave addicts disabled, in state of panic

Can't do anything
« on: August 15, 2018, 06:21:16 pm »

[Buddie]

Did quite a bit of housework today and then had a big panic attack. As if my body was telling me to rest. So the panic attack was prolonged and it has left me exhausted and I’ve had to come to bed. Now everything is too much. I have no energy to read a book or magazine and the noise from the tv downstairs is really bugging me.

So I’m lying here doing nothing but I have a nagging voice inside me telling me that I should be doing something or I will never get better. Is it normal to have absolutely no energy at all? Thanks.

Re: Can't do anything
« Reply #1 on: August 15, 2018, 06:43:39 pm »

[Buddie]

I have no energy at all on pretty much a daily basis. If your body is telling you to rest than please rest. It can only help , not hurt. you are not being lazy. In fact resting when your body wants to is a way to help heal in my opinion.

I have so little energy that its scary. Also extreme muscle weakness. From where I was at before fitness wise this is a total nightmare and a joke at how little I can do. I guess this happens in Benzo withdrawal. For me it was bone crushing fatigue and then weakness. Its been going on about 14 weeks for me.

Try not to worry, I know its hard. This is withdrawal and it will eventually pass.