83-year-old’s life ruined by cult’s anti-medicine dogma

Coping - I feel like calling the ambulance so I think I'll go for a walk.
« on: March 30, 2018, 07:36:24 pm »

[Buddie]

Hey Buddies! I’m an 83 year old geezer who was on 2.5 mg/day of Klonopin for 25 years as prescribed and have been off for about 22 months. I decided to wean off after realizing that the strange symptoms I had been experiencing for several years were due to tolerance withdrawal. The docs merrily prescribed this stuff without the slightest indication of the inherent risks involved. In any case, I thought it might be useful to my fellow sufferers to learn about my current circumstances given my history.

My typical day starts at about 6:30 AM after a night of fitful frequently interrupted sleep. My bed feels like a war zone. Feeling a bit dizzy and light-headed I make breakfast and sit down to read the paper. About an hour into it I begin to feel like a pall is settling over me; my brain feels leaden (physically) and my thinking becomes wooly. My whole body feels heavier and less responsive and my dizziness increases. I feel faint. An icy-hot sensation blooms over the skin of my arms and legs. With growing agitation I ask myself what the hell is going on? Do I have some horrible tumor like a carcinoid (which causes flushes) or pancreatic cancer? Do I have MS or lupus? I feel like I can hardly move, should I call the ambulance? Then, what’s left of my cerebral cortex sends a directive – Screw this! That’s no way to live! If you’re gonna go, go down swinging; get your ass in gear! (I need a bit of bravado at that point.) So I struggle to my feet, put on a jacket, unlimber my outdoor walker (My back is so bad I can no longer walk any significant distance without one. I wrecked my back running 12 miles/day in my 40s as a means of coping with job stress. I switched from running to Klonopin. Alas.) and head out. I take my driver’s license so I can be identified in case I keel over along the way. But amazingly I start to feel better almost immediately. My head clears, my spirits lift, and the leaden feeling disappears. I go as fast as I can up and down the hills in the neighborhood, covering about 2.5 miles in about 40 minutes, puffing all the way. People stare – who’s this decrepit old weirdo race-walking with his walker? But hey, when I get home I feel much better than when I started out and this exercise-induced window lasts for a few hours, after which that pall, somewhat less intense, begins to settle again. If I could only keep going flat out physically I think all my symptoms (except the skin sensations, which continue to come and go during the exercise) would be alleviated but, alas, this is impossible.

So folks, this is what one benzo sufferer’s life is like. It’s doable though not easy and at my age I don’t feel sanguine about the possibility of completely healing. The most beneficial coping strategy for me is to keep exercising as much as possible. Keep the blood flowing to all those damaged neurons! That will facilitate whatever healing is going to occur.

I don’t know if any of this will be helpful, but I hope so. Best of luck benzo-warriors!

Welcome to Benzo Buddies. Welcome to Hell.

Two years in acute detox. Welcome to hell.
« on: March 15, 2018, 07:25:21 am »

[Buddie]

Thank you for reading. I […] my story will instill a sense of […] and encourage the reader. I AM the “hey at least I’m not that guy.”

I am 18 months off of Valium and 11 months sober. I took 20-30mg of Valium for one year. I tapered over 1.5 years to freedom.
My sobriety date is March 9th 2017 (the day I cold turkeyed suboxone)
I am a 28 year old male from California. I am a professional athlete who had 5 years off heroin/oxycodone from november 2009-January1st 2015

Part 1. Purgatory. A dissent.
January 2015. I began a Valium taper after 20-30mg a day habit for one year.
Began 600mg of Gabapentin 300mg three times daily.
February 2016. At 7mg of Valium holding for a total of 90 days.
During which time I injured myself. I fell down 40ft of steep concrete 3x (*athlete).
Prescribed oxycodone for one month. (Fractured heel, dislocated shoulder, concussion, rib damage, two fingernails ripped off and a lot of deep disgusting road rash)
Switched to Methadone.

Part 2. Cruel and Unusual. Methadone. A different kind of monster. February-June of 2016.
I had Kaiser at the time. Dr. “Devil” we will call him was overseeing my Valium taper.
The Methadone clinic wrote down I was a “five year user of oxycodone”. I told them I was five years clean. I told the intake nurse, the doctor, the receptionist, EVERYONE, multiple times I used oxycodone for 30 days and was 5 years CLEAN.
They tested me in at the highest level allowed to start. They jumped me to 72 and proceeded raised me to 100 in the quickest way legally allowed in California. I told them I wanted to do 21 day taper. Doctor said, “that doesn’t work. We need to stabalize you on a high dose and taper you down.”
Holding at 10mg Valium. Dr. Devil has no idea I quit the oxycodone and attempted a 21 days taper at methadone clinic.

At 100mg I began to die. Literally. Having only been on Oxycodone a month, 100 units of methadone while ON Valium should have killed me.
I was vomiting on a regular basis (from being OVERDOSED), I turned grey, was having heart palpitations, sleeping all the time, and woke up every night with my skin ON FIRE drenched in sweat and vomiting violently until 445am in line to dose at 5am.
While seeing the nurse one day at clinic I was screaming at her saying the methadone was killing me and I didn’t understand why I was on such a high dose only being on oxy for thirty days.
She reviewed my notes and said,”It says here you were on Oxycodone for five years. I SCREAMED,” What have you done! I was five years clean literally over and over and dove for the paperwork. A male counselor ran in and tackled me as I screamed and cried hysterically “You’ve killed me. I am going to die repeteadly.”
I requested documentation and planned to sue.

Part 3- The Methadone Mafia.
I booked an appointment immediately with Dr. Devil at Kaiser. I told him everything that had happened. *****I also told him I planned to sue the Methadone clinic for mall practice. A guaranteed win I thought****(remember this detail)
With terror in his countenance he exclaimed,”You can’t be on methadone and valium! You could drop dead at any moment! I need you to authorize the Methadone clinic to send over your paperwork immediately so I can help you.”

The methadone clinic was the enemy. I stormed in to the clinic, demanded my paperwork, and told them they were getting sued.
They wouldn’t give it to me. I cried “HIPPA” its my right! They stalled for as long as legally possible. During which time the owner of the Clinic wanted to meet me.
She was polite, and attractive. Her father a drug czar featured in magazines. She asked what was going on? I told her everything. She teared up apologizing. I didn’t care. They would burn for this. I told her to send my paperwork to Kaiser ASAP.
I remember this like it was yesterday. Her face went cold, looking down. Drawing a deep breath, gathering her composure, carefully raising her eyes to meet mine she spoke as she slowly exhaled,”I don’t trust this doctor devil. I think he has something planned. I have a bad feeling about this. Are you sure?”
“Of course!” I yelled. I was not to be fooled. The methadone clinic was the antagonist of this story. Kaiser is my private healthcare afterall!
“Okay, I’ll do it.”

Part 4- Breaking Doctor Patient Confidentiality. Betrayal and a death sentence rendered by Dr. Devil of Kaiser Permanente.
I called Doctor Devil to set up my next appointment and said I finally got them to send my paperwork.
I could not get an appointment and I was running out of Valium. It was like he was ducking me.
I finally got ahold of his nurse. She promised he would help me and got me an appointment and got me an appointment that week.

I showed up. The nurse called me back. I walk in to the doctors office eager to tell of my plans to sue the Methadone clinic. I was full of […]. Dr Devil is sitting across from me. To my left his nurse/assistant is standing against the wall looking horrificly scared and nervous. Next to her is an armed security guard staring at me.
I look back at doctor devil and ask what the hell is going on? Why is a security guard with a freaking gun in here? Why does your nurse look like she just walked halfway through watching the exorcist? (I literally said this)
Dr. Devil proceeded to say he was there to “protect ME” (Seriously).
He began to speak in a tone I had never heard. He spoke down to me like a second class citizen. A junkie. Scum.
He said that he was cutting me off the valium. He would provide one last script and I was to taper off 10mg with one script.
I asked about having a seizure or dying. He said the gabapentin would prevent seizure. He then said the armed security guard would take me to the pharmacy. He would not be liable for someone on methadone and valium at the same time. Kaiser would not allow it.

Part 5-Hell awaits.
I go back to the methadone clinic. They would let me dose but the methadone clinic owner demanded to see me.
She was right. Dr. Devil screwed me. This next part is VERY important.
She proceeded to tell me that Dr. Devil had “Told her over the phone I was actually serious on planning to sue the methadone clinic, was obtaining a lawyer, and seeking litigation.” She asked, “Is this true.”
Dr. Devil broke Doctor Patient Confidentiality. This is a capital offense for doctors. Guaranteed loss of silence, being sued successfully, and potential jail time.
I was in utter shock and disbelief. I said it was true.
It’s not legal to drop someone off methadone cold turkey from 100. But they could drop me 10 units a week (Your supposed to drop 2 units a week)
So it began. Fearing for my life I asked Kaiser to get me into detox. I was done, defeated, and ready to turn myself in to the care of medical proffesionals fearing for my life.
I was told no detox would allow me in until I reached a MINIMUM of 30 units. Modern medicine was not capable of treating anything higher safely.
A death sentence.
I have one scrip of Valium to taper off.
I was to be rapid tapered of Methadone.
I could only deduce one possibility.
A cruel and unusual death awaits me.

Part 6- WELCOME TO HELL-Rapid tapering Valium and Methadone at the same time.
The methadone clinic violated more laws never giving me my paperwork (HIPPA)
Kaiser and the clinic were sweeping me under the rug.
I tapered off methadone 100, 90, 80, 70, 60. 50. 40, 30, 7 days apart.
I tapered down to 7mg of valium while doing this.
I will not go into detail of the horror of this. I simply can’t put words to it.ng.
I’m dead.”

I hit the magic number, 30 on June 27th 2016.
I coud take no more. I was so far past done. Kaiser said I would get a sleep medication and clonidine for withdrawal. I remember thinking one thi
Part 7-Suicide

********The rest of the story deleted because my login timed out. Will finish tomorow.**************
« Last Edit: March 15, 2018, 08:06:26 am by [Buddie] »

Ashton worshippers replace benzo addiction with food addiction, pile on the pounds

Can't stop eating
« on: March 06, 2018, 12:17:44 pm »

[Buddie]

My brain is telling me to every minute of every day.

It is not like hunger but a sort of panic stricken compulsion that I am unable to ignore. I can’t get any control over it.

I am gaining weight fast.

I don’t know what to do.

I have never experienced anything like it. I lost half my body weight a couple of years ago and don’t want to be fat again.

I think it is tied to my being completely unable to feel any senstion from inside my body including feeling full.

Re: Can't stop eating
« Reply #1 on: March 07, 2018, 02:49:32 am »

[Buddie]

I went through a similar phase. I ended up gaining a fair amount of weight which I then had to work back off. And like you, I had lost a bunch of weight (102 pounds) the year before I withdrew.

Maybe go for a nice long walk (without taking any food). Or make sure all the food around the house takes a good hour or more to prepare (no ready-to-eat foods or snacks laying around).

Re: Can't stop eating
« Reply #2 on: March 07, 2018, 03:24:15 am »

[Buddie]

I understand what you mean when you say you can’t feel sensations on the inside of your body.

For awhile I was so numb internally I wondered if my heart was still beating. I would have thoughts that would make meme panic mentally but I couldn’t feel any physical response. My body felt dead.

I wonder if your hunger signals are simply misfiring and miscommunicating too. Hunger (or lack thereof) is signalled by various hormones like leptin and ghrellin. I would say that amidst the chaos of benzo withdrawal, the signal to release those appropriately has been temporarily affected.

It could also be that your body is under a lot of stress and is working very hard so is interpreting the need for excess energy.

I would focus on physical exercise where you can. In terms of eating, all you can do right now is try make healthy balanced food choices. Think protein and fibre every meal to try keep your GI low. That should aid satiety and feelings of fullness. And then try and eat as frequently and as much as you know to be healthy for your body. If you logically know you’ve had enough, then perhaps try distraction (although I know how hard this is.

Overall, don’t beat yourself up. You can only do your best. Once you have recovered you can focus on the weight aspect if you still find that to be an issue

:smitten:

Re: Can't stop eating
« Reply #3 on: March 07, 2018, 07:49:49 am »

[Buddie]

Don’t let the weight issue get out of hand. It’ll be hard to comeback later, no matter what they tell you. Eat healthy, and above all, exert control.

Re: Can't stop eating
« Reply #4 on: March 07, 2018, 12:56:41 pm »

[Buddie]

You know I am going through something similar… the absence of internal sensations, an undiscript urge which feels like an urge to eat. It is confusing and harrowing… especially when you had already worked so hard to get back into shape!…

Do what you can. This is withdrawal… but don’t let go either. Don’t beat yourself up, is what I mean, and try to stay as healthy as you can – but know that this is not the way it will always be.

So I agree with not keeping snacks around, or if there are any, no more than what would feel like a decent portion, something “healthy”… nutrients which will help you function and heal.

Do you cook? Do you share meals with family? Try new recipes, take time to prepare and plate nicely… that could help you think of food differently…?

Brush your teeth after eating… you might feel less tempted to reach for the fridge again…

Plan your meals and snacks, that way you may be able to bargain with yourself…

Exercise and relaxation should also benefit you – especially if like me, you feel a weird “urge”. And any distraction, anything you enjoy…

Not sure whether that is advisable… I chew gum. Yes, full of yucky stuff but it helps with the “urge”… looking forward to being able to give that nasty habit up!!…

And tell yourself that you are healing. That things will get better… because they will. No matter what you believe right now!

Hugs  :smitten:
[…] xx

Re: Can't stop eating
« Reply #5 on: March 07, 2018, 04:21:30 pm »

[Buddie]

I am not able to exercise much due to ME/CFS.

I had managed to get my exercise up while tapering but I think I pushed itto much and have made ME/CFS worse as well as withdrawal stuff.

I am mainly housebound.

I can’t explain the eating thing – it does not feel like a normal craving. It feels qualitively different and related to the hypersalivation and neck/jaw tightness that makes my body feel like it is chewing all the time I am awake – like the signals are all messed up.

Also the feel and taste of food is all wrong in my mouth.

The lack of sensation applies to my sense of touch as well – my body feels like it is made of something inert like plastic and the world feels too insubstantial. I manage to forget about it sometimes and then I rub my face or something and the full horror of it returns.

I think I need to talk to the neurologist again.

Before withdrawl I had a very small appetite and ate a paleo style diet. I mainly had one meal a day.

Cult members salivate at prospect of forcing 74-year old mother into abusive taper regimen

Caring for aging parents before during and after withdrawal
« on: February 05, 2018, 02:22:22 pm »

[Buddie]

My mother is sick. She is 74 and in tolerance withdrawal herself. Having survived this nighmare, I recognize so much of her struggles to be benzo related. Add to that her weakened and elderly state, and I just cant find the way out for her. Let alone navigate through the storm.

I wanted to share experiences, ideas and thoughts from anyone else who knows this journey!

Peace&Love
[…]&Faith

28 YEARS ON BENZOS, 28 YEARS (TO TAPER) OFF BENZOS

Twenty-eight years using daily temazapam
« on: January 03, 2018, 03:38:06 am »

[Buddie]

Although extensive blood tests are normal, I have an uncomfortable auto-immune skin disease on forearms and lower legs. A friend who successfully withdrew from benzo use said that skin problems can reflect long-term benzo use or pop up during withdrawal.

I have taken temazapam, 30 mg, nightly for 28 years. I am soon going to taper, sprinkling out some granules since I can’t imagine jumping down to 20mg, the next available dose. I really don’t know if my brain will accept a lesser dose.

My dream would be no longer using this dangerous drug. Right now, being free looks as formidable as climbing Mt. Everest.

Ten-year Ativan slave joins online Jonestown, failure and misery to follow

It’s certainly time for a change.
« on: December 18, 2017, 12:02:16 am »

[Buddie]

Hello and thanks for allowing me to join Benzobuddies.
I am impressed by the quality of this community forum.

I’m ready to reduce my use of Benzodiazepine.
I’m using Ativan from Monday to Friday. O.5 mg or less.
Ten years.

Some support to reduce this use and quit will surely help.

Ashton-inspired scaremongering drives short-term Xanax user into arms of anti-psychiatry cult

Looking for some advice New Here
« on: April 26, 2017, 09:31:37 pm »

[Buddie]

Hey guys, I’ve been taking .25 of Xanax for 1 month now. I want to taper off. My doctor thinks I will be fine just stopping cold turkey but I don’t feel ok with that. I began tapering last week taking 3/4 of a .25 by breaking it up into 4 peices. Did that seven days. Now taking 1/2 of .25 plan to do this for 7 days. Then take only 1/4 of .25 for a week then stop. Could someone tell me is this a good taper plan? I have heard some scary stories of tapering that makes me nervous. Let me know any advice please guys. Thank you!

RESCUE DOSE HELL

F*ing Rescue Dose
« on: April 08, 2017, 01:24:49 pm »

[Buddie]

The past week since CT has been going pretty well considering…up until 2 nights ago. My husband surprised me with a 3rd year wedding anniversary to the beach. Getting out of my environment was great as well as the sun and sand.

HOWEVER, first night I get hit with insomnia for the first time since tapering/CT. Falling asleep wasn’t the issue, but I woke up at 3:30 AM and for the life of me, could not go back to sleep.

Same thing last night…fell asleep about midnight to wake up at 3:30 AM and lay here trying everything to go back to sleep…fail. Then once I got up, the nausea hit, upset bowels, pouring sweat, then freezing…body temp back and forth totally crazy. Unfortunately, I still had my pills in my purse and broke down and took a rescue dose for the first time. I am SO disappointed. Maybe if I weren’t on this trip, I could’ve rode it out. But I don’t want to ruin the trip.

What’s strange is the rescue dose did nothing for relief and actually seemed to amp up the sweating/chills/freezing body temp symptoms. Why would it have the reverse effect like that?