Holiday horror stories pile up as Benzo Buddies members realize Ashton tapers have destroyed their lives

What's the point in trying anymore? (Trigger warning)
« on: December 24, 2019, 08:32:14 pm »

Ptsdmiracle

In 3 months it will be a year off, I have not noticed much improvement. I was slammed into complete dysfunctional and debilitating symptoms causing me to be housebound, and I’m still the same. Cognitive, emotional, mental, physical symptoms are still there when I compare the symptom list I created back in march. I’ve lost a year already. I keep thinking even if I do manage to recover to some functioning level, I’ll never be able to have the life I’ve worked so hard for. I won’t be able to return to my career if my health and sleep isnt 100%, because of the high demand even on a healthy body the stress can be high. I needed to be able to sleep on demand with high quality refreshing naps because of the unpredictable nature of workload. I’ll never be able to go through childbirth because I’m forever traumatized and paranoid that any meds or stress can send me back to acute, I wouldn’t want my kids to witness this let alone not have a healthy happy mother. I’ve cut ties with all my old friends for the past year, how am I ever going to explain to them what happened? Everyone had high hopes for me, now if they knew, I’d be the main topic of gossip in their circles. My social circles and even my extended family who are my generation are all high functioning healthy successful soon to be quite wealthy young adults.

So what’s left for me in this world? I feel like a parasite now, surviving on what the elders in my family can provide for me, and maybe when I recover I might “upgrade” to being a functional hermit.

It’s very difficult for me to have hope and be optimistic and grateful this holiday season. Especially since I’ve been waiting and waiting for symptoms to lessen or go away, but my brain has 24/7 been trapped in this alternate universe that’s hell. I also never have windows, not even glimpses of near normalcy. My brain is so far gone. When I was 22, I wanted to reach 30 because this is the year I could really start settling down and building my life after moving everywhere for training and work. Now that I’m 30, ironically, life is already over. and all I think about is dying so that misery isn’t prolonged.

For those that read this sad and dark post, thanks for listening. Anyone have any uplifting words to say I appreciate even more. I just don’t know the point anymore.

Re: What's the point in trying anymore? (Trigger warning)
« Reply #1 on: December 24, 2019, 08:44:38 pm »

[Buddie]

So, I have been ill and unable to work and largely housebound since 1996. All my then friends have had careers and bought homes and had families. I have nothing.

You will almost certainly feel well enough to live a worthwhile life in another year or two.

If your life is pointless where does that leave me? I am 51 now and even if I survive WD I will still have the underlying physical issues I was on Benzos for.

What does it say about all chronically sick or disabled people?

You have no idea where life will take you. Once your get through this you will be stronger and more determined than any of your friends plus you should have some real empathy, something g they will never learn unless something shit happens to them because it sounds like you all live a very entitled and unthinking life.

You will be fine.
« Last Edit: December 24, 2019, 09:01:56 pm by [Buddie] »

Re: What's the point in trying anymore? (Trigger warning)
« Reply #2 on: December 24, 2019, 08:53:21 pm »

[Buddie]

I know how you are feeling as im on the same boat.

I found my thinking about life is totally controlled by my sx at that moment. Even when sx is less intense with a brain kind of working for a minute, my perspective would be totally different, planning for thousands stuff for life. You are closer to healing everyday, once that day comes, your confidence, desire, motivation will be back more than ever.

When the sx are strong and you are still in depth of this process, try not to think tomorrow or future. Our thinking in this process is irrational only based on what we feel at the moment.

Just focus on each day and keep going. You survived almost a yr and will survive more days that comes, until you dont have to live by surviving moment by moment and then only enjoy every moment.

When these thoughts come, just vent here and we are around to listen to it. It will pass, possibly in just a few hours when the sx are lessoned.

Benzo Buddies labeled draconian hell site, run by out of control moderators, filled with people who thrive on self-pity

June 06, 2019 8:27 AM EDT
I experienced the same thing on BenzoBuddies. At first it was a great forum and others on that forum helped me through the toughest times of my withdrawal. After I healed, I thought I would pay it forward. I was doing a good job helping others and then decided to introduce outside sources of hope and encouragement. I was instantly reprimanded and when I complained, they pretty much locked down my account to where I couldn’t post anything without moderator approval, nor could I Personal Message anyone. My account was for all intents and purposes…worthless and not usable. I told one moderator in particular that you need people on the site that healed to help and give hope to others. She dismissed it and said I thought I was “special” and “better than everyone else.” Because I volunteered my time on the site? Needless to say I don’t go on BBs any longer. Their draconian rules are only meant to stifle what they claim they are about, which is giving others hope. Too many rules, too many moderators on a power kick and too political…that’s how I would sum up BenzoBuddies. Plus too many hard core people that claim they never heal when they don’t tell “rest of the story.” Almost all of those cases involve being poly drugged and having preexisting medical conditions prior to any type of anti-psychotic drug use.
– Igotmylifeback

Klonopin for 10 days, Benzo Buddies for life

Re: HELP!! Do I need to taper?
« Reply #11 on: August 28, 2019, 07:04:41 pm »

RKO

Not trying to scare you but I was only on Klonopin for 10 days and my doctor wouldn’t allow me to do an Ashton taper because I was only on for such a short time.

I was hooked by day 7, unknowingly, when I took half a dose one night and woke up with heart palps. Damn pills nearly killed me when I quit after a rapid taper that was basically a CT.

It’s been over 15 months and I’m nowhere near healed.

I’ve come to realize, however, that I am in the extreme minority. You’ll probably be fine though.

Paxil: 2000-2007
2/08: Adverse reaction to 9 days of Saw Palmetto extract for hair loss (PFS)
Klonopin: .25mg PRN 2/08-7/08
Prozac: 11/08-3/09

Drug free for 9+ years, life was great

4/19: Severe ear infection, temporarily deaf, tinnitus – rx Augmentin

4/26-5/1: Steroid taper pack

4/26-5/5: Rx Klonopin .5mg nightly by ENT for insomnia/tinnitus (heart palps on Day 7 with .25mg, dependent in a week?!)
5/6: Cut to .25 mg (cut 1mg tabs into quarters) – BAD symptoms. Run to GP for help
5/10: Cut to .125mg (per GP advice) – even worse symptoms, bad advice from doc
5/13: Jumped. WAY TOO SOON. HELL. Should’ve reinstated, basically CT. Didn’t have sufficient supply, GP wouldn’t prescribe more. Wrongly assumed short use would be short WD

Cult forces dangerous taper on 76-year-old

Better late than never
« on: January 06, 2019, 05:50:17 pm »

[Buddie]

My name is […]. I am 76 years old. I have been taking 2 mg. of lorazepam nightly for 25 years. I tried two years ago to taper, got to 1 mg. and regressed back to 2 mg. I am doing direct taper, water suspension of 300 ml, drawing off at a rate of one ml daily. I began on January 1 so today I will draw off 6 ml. By day 75, I will be down to 1.5 mg lorazepam at which point I will reassess to make sure I stay within the 10% drop limit. These are early days but I really feel the need for support and identity with others going through this experience. Thank you for being here.

Re: Better late than never
« Reply #1 on: January 06, 2019, 05:50:35 pm »

[Buddie]

Welcome to Benzo Buddies. we are a support and information group for those wanted to get off of benzodiazepines. Much congrats on what you have accomplished. I am very pleased that you are looking for camaraderie from here out. It is such a lifeline. Not only do we support each other, we have a wealth of sound information on everything from withdraw symptoms, how benzo’s affect the brain, and success stories.

Here are some helpful links on tapering:

http://www.benzo.org.uk/manual

http://www.benzobuddies.org/forum/index.php?board=56.0

http://www.benzobuddies.org/forum/index.php?board=145.0

In the forums pertinent to your circumstances, you will find other buddies going through their own tapers. This is a good place to ask questions, and receive guidance.

Again, welcome to Benzo Buddies, you have come to a safe, confidential informative support group, and we are happy to have you as a member. You can do this, with knowledge and finding coping skills.

Please take some time to Create a Signature. This will help other members understand your history so they will be better able to support you. Go to the top of the page and select Profile, then choose Forum Profile, insert drug history/timelines into the text box and click Change Profile.

We look forward to reading more from you over the forthcoming days and weeks.

Take care,

BB Team

WEDMAN ENTERS HELL

Wedman Withdrawal
« on: November 06, 2018, 12:01:28 am »

Wedman

I am joining BenzoBuddies because I am going through benzo withdrawal and want to learn more about what to expect. I was on temazepam for 5 years at 30mg at night for sleep. I started experiencing withdrawal about 3 months ago. I have been tapering and now on 7.5mg daily. I expect to finish my taper in 2 weeks. I am on trazadone and gabapentin.

Benzo Buddies orders terrified addict to ignore doctor, reject psychiatric medication

Hello, My Story
« on: August 17, 2018, 01:25:54 pm »

[Buddie]

Hi. I’m in a bad situation because I decided to smoke weed with friends about three months ago and only one hit threw me into a mood frenzy. I was an insomniac for a week after, non stop crying, paranoid, and panic attacks. So I managed to get 1mg Xanax from a friend which I used for about 14 days at night for sleep to reset my sleep. The last four days, I cut it to .5mg and then .25mg. I then stopped because I felt fine. However, I have been having up and down mood swings, palpitations that make me fear a heart attack, restlessness, shaking, paranoia, and what feels like chronic fatigue. I fear for my life like the weed may have cause tachycardia or mitral valve prolapse. Is this just from my underlying anxiety or the CT from the xanax? I got a shaky episode the other night and had to use one to stop the tremors and feel it was a bad idea. I see a psychiatrist Monday and I am terrified because I can’t tell the doctor about the weed or the xanax because the medicine was not prescribed to me and I could get in trouble. What do I do? I fear my life may never be the same again. I am weak and tremoring as I write this. What if I’m developing mental illness? The only option is for the psych to prescribe me benzos or ssris. I don’t want either.

Re: Hello, My Story
« Reply #1 on: August 17, 2018, 01:37:37 pm »

[Buddie]

Hello […],

Welcome to Benzo Buddies! I’m sorry you had such a severe effect from marijuana. Some strains can in fact increase anxiety, it appears you might have experienced this. Additionally, there might have been other substances in the marijuana that cause your reaction.

You took xanax for about two weeks. The recommended length of time for taking benzos is a maximum of two to three weeks, so you are right in that time frame. You are most likely feeling the effects from stopping xanax. There is likely to be withdrawal effects of some kind after two weeks of use. I do believe that these symptoms should ease up though, it may take a little while though.

If it were me, I would explain to the doctor what started your issues. If you don’t explain the cause, it is likely that the doctor will diagnose you with an anxiety disorder. If you didn’t have issues like this before using marijuana, then the effects you felt were due to the weed.

Your central nervous system took a hit with the marijuana and xanax. It may take a little while for things to settle, but they will. Try to distract from what you feel so that the fear doesn’t cause more issues.

I’ll give you a link to the Ashton Manual. It is an excellent resource about benzos and how to withdraw. It was written by Dr. Heather Ashton, an expert in the field. The manual does discuss tapering in detail but IMO, I would not suggest this for you. If it were me, I’d stay away from benzos and allow my body to recover.

I’ll also give you a link to the Post Withdrawal Recovery Board where you can post and receive feedback from members.

Your life will be the same, once your system recovers. I know this can be frightening, I felt the same way when I was directed to stop ativan for a medical test. I’m glad you’ve joined, you’ll find a lot of good information and support here. It’s going to be OK.

The Ashton Manual

Post-withdrawal Recovery Support

[…]  :)

Re: Hello, My Story
« Reply #2 on: August 17, 2018, 02:13:00 pm »

[Buddie]

Thanks. If my psych has to give me something, what would be the best route as I am terrified of those withdrawals as well?

Re: Hello, My Story
« Reply #3 on: August 17, 2018, 06:29:15 pm »

[Buddie]

Quote from: [Buddie] on August 17, 2018, 02:13:00 pm
Thanks. If my psych has to give me something, what would be the best route as I am terrified of those withdrawals as well?

You don’t have to take any medication if offered. It is your body and you can make the decision as to what to put in it. I didn’t even know what a benzo was when I was prescribed it. I had no idea about it’s potential for dependency or withdrawal. I learned a big lesson; be proactive about what I take and question everything.

It’s been my experience that ‘some’ doctors want to medicate everything when there are other alternatives.

[…] :smitten:

Re: Hello, My Story
« Reply #4 on: August 17, 2018, 07:04:06 pm »

[Buddie]

Yeah. I also forgot to mention that three days before the weed incident, I CT’d beer completely and for the past year I was drinking three to four to five a day. Could that have something to do with what I am going through maybe?

People who joined Benzo Buddies not healed seven years later

Difficult topic - potential for trigger
« on: June 05, 2018, 05:36:07 pm »

[Buddie]

Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done. More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially? I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

Re: Difficult topic - potential for trigger
« Reply #1 on: June 05, 2018, 09:14:02 pm »

[Buddie]

Quote from: [Buddie] on June 05, 2018, 05:36:07 pm
Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done. More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially? I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

Hello […], I think there are many reasons why some of us are taking many years to recover. i am obviously one of them. It may be genetics, underlying health conditions, many complicating factors, sometimes it is very difficult to know. I am lucky, I am 63 and retired, I have a pension and I am okay financially. Not everyone is so fortunate. I am sure you are not a lightweight. For me, I got through it hour by hour, suffering was intolerable, but nevertheless, I got through it. I have very supportive friends but not much in the way of family support. BenzoBuddies was my lifeline for a very very long time. I used many different strategies to distract … as best as I could. But basically I existed ..

None of the stats we have are robust but I think we generally accept that most people will recover in a couple of years and a minority will take longer and a small minority will take even longer. It is important to remember that even when we take quite a number of years to recover we generally improve as I have done so although the first few years were hellish, that does not mean the next few years will also be hellish. I am still not recovered but I am not suffering .. that is all over. I am no longer existing but I am not living either .. but I can cope perfectly well now. Of course I would much rather be living a normal life.

So as much as you are suffering right now, it will get easier. It is extremely unusual for that not to happen. I only know a handful who seem to be getting worse and I have been around for a long time and that may be due to other health issues, I don’t know.

I have never been particularly well so I have had a whole lifetime of coping with illness and disability and that has probably helped me to cope, others will not have that experience to draw on if they have been used to good health.
« Last Edit: June 05, 2018, 09:20:08 pm by [Buddie] »

Re: Difficult topic - potential for trigger
« Reply #2 on: June 05, 2018, 10:17:11 pm »

[Buddie]

Quote from: [Buddie] on June 05, 2018, 05:36:07 pm
Why are there people still not healed 3,4,5,6,7+ years out? Is there a common theme to this?

I just don’t understand it when the “stats” show that everyone heals between 2-3 years at the latest from the studies that were done.

I am not aware of any study that says that everyone heals within 2-3 years. MOST people certainly heal within that timeframe, but it Ashton herself is pretty clear that this isn’t the case for everyone.

Quote
More than that, how do these people who haven’t “healed” this far out manage to live? Are they now working or is someone supporting them financially?

I am 7 1/2 years off and have seen significant improvement in some symptoms, others not so much so. I was able to start a business when I was about 3 years off and I have recently moved back out on my own again. Every day is still a challenge but somehow I manage to hold it all together.

Quote
I just don’t get how people can simply exist with an illness like this without going completely nuts. Maybe I’m just a lightweight because I am just (and I mean just) getting through each day now at 19/20 months.

You aren’t a lightweight, you are just projecting. MOst people feel better and become more functional with time, so you will probably be better off in a few years.

“Benzo Buddies ruined my life”

How benzobuddies ruined my life, long proctated withdrawal 4 years off
« on: June 01, 2018, 06:12:39 pm »

[Buddie]

my last name here was pil54, in 2014 here i Registered after a fast taper of 7mg prazepam, i was just reinstated 4,5mg and it wasnt enought to stabilized me, i should have gone back to 7mg at least or even more for it to be effective, and restart a slow taper.

Back of that i was first on 20mg, i discovered the Ashton manual and was doing it even slower, reducing 5% every 2 weeks with barely no symptoms at all, all was very manageable, working full time job through it. For one year i tapered from 20mg to 7mg very easily, it wasnt the hell people describe here to taper at all, everyone here who describe hell tapering psych meds is just going too fast . Until i stupidly lost patience andtryed to accelerate and it went hell and i ended cold turkey 7mg

I can remember moderators here telling me ” You are paradoxical you just need to quit and let your brain heal, Accute only last 3 month then it will get better, everyone heal”, That sentence EVERYONE HEAL, you will read it all day by every people here, those all unknow people behind their screen can litteraly destroy all your life if you listen them advices.

Its what i did, and thats what they did, they ruined my whole life, I tapered those last 4,5mg in 3 month, reducing 0,5or 0,25mg every 8 days, and i went severly ill because i wasnt stable at all before tapering, they told me ” dont care accute last 3 month “

Am still in accute 4 yeas later, next month i will be 4 years off every benzo or psych meds, and i never recovered from the symptoms of my fast taper here in 2014,

I still have akathisia, i wake up Everyday in terror with electricity in my whole body, with surge of feeling loosing my mind like i have mania, severe insomnia, depersonnalization that never went away 4 years laters, during those years i developped pots syndrome, chronic fatigue syndrome from the daily severe terror my body was experiencing.

They told me ” its normal if withdrawal for years, and i Believe them, i thought it was normal, IT WAS NOT, IT WAS ABSOLUTLY NOT.

Am now living with the crazy idea on my shoulder that i was better 4 years ago while i was doing my slow micro taper, than now 4 years off after my last dose after my failed tapers.

And it’s been the same for my old friends here who Registered in the same generation of me, Hurtbrain, Crazypants, benzommama, rackshka, all those people who tapered wrong and been told they would heal, they are now 4-5-6 years later never healed because of listening people here on that same forum.

That message is to warm the newbies here and all the people suffering to realy inform you before you do a fast taper and listen people here telling you that whatever the way you tapered you will heal, it’s false, its the worse shit every spammed here but its not reality,

Jennyfer Leigh, baylissa,ian singleton, una corbet, They all lie, they all say what you want to hear just to reassurance, but they have no idea how long a brain damage from a rapid taper can take to recover, for years they lied to me saying i would heal if i avoid alcohol and psych meds, I DID, and i never healed 4 years later.

My life is a living hell now because i regret Everyday the mistake i did to listen unknow people advice behind a screen, even my doctor told me to reinstate to my last dosage if i felt sick and retaper slower, it would have been the think to do, instead i trusted that forum

Please inform yourself, the best safe way to escape benzo hell is a micro taper of 5% every 2 weeks of your dosage

83-year-old’s life ruined by cult’s anti-medicine dogma

Coping - I feel like calling the ambulance so I think I'll go for a walk.
« on: March 30, 2018, 07:36:24 pm »

[Buddie]

Hey Buddies! I’m an 83 year old geezer who was on 2.5 mg/day of Klonopin for 25 years as prescribed and have been off for about 22 months. I decided to wean off after realizing that the strange symptoms I had been experiencing for several years were due to tolerance withdrawal. The docs merrily prescribed this stuff without the slightest indication of the inherent risks involved. In any case, I thought it might be useful to my fellow sufferers to learn about my current circumstances given my history.

My typical day starts at about 6:30 AM after a night of fitful frequently interrupted sleep. My bed feels like a war zone. Feeling a bit dizzy and light-headed I make breakfast and sit down to read the paper. About an hour into it I begin to feel like a pall is settling over me; my brain feels leaden (physically) and my thinking becomes wooly. My whole body feels heavier and less responsive and my dizziness increases. I feel faint. An icy-hot sensation blooms over the skin of my arms and legs. With growing agitation I ask myself what the hell is going on? Do I have some horrible tumor like a carcinoid (which causes flushes) or pancreatic cancer? Do I have MS or lupus? I feel like I can hardly move, should I call the ambulance? Then, what’s left of my cerebral cortex sends a directive – Screw this! That’s no way to live! If you’re gonna go, go down swinging; get your ass in gear! (I need a bit of bravado at that point.) So I struggle to my feet, put on a jacket, unlimber my outdoor walker (My back is so bad I can no longer walk any significant distance without one. I wrecked my back running 12 miles/day in my 40s as a means of coping with job stress. I switched from running to Klonopin. Alas.) and head out. I take my driver’s license so I can be identified in case I keel over along the way. But amazingly I start to feel better almost immediately. My head clears, my spirits lift, and the leaden feeling disappears. I go as fast as I can up and down the hills in the neighborhood, covering about 2.5 miles in about 40 minutes, puffing all the way. People stare – who’s this decrepit old weirdo race-walking with his walker? But hey, when I get home I feel much better than when I started out and this exercise-induced window lasts for a few hours, after which that pall, somewhat less intense, begins to settle again. If I could only keep going flat out physically I think all my symptoms (except the skin sensations, which continue to come and go during the exercise) would be alleviated but, alas, this is impossible.

So folks, this is what one benzo sufferer’s life is like. It’s doable though not easy and at my age I don’t feel sanguine about the possibility of completely healing. The most beneficial coping strategy for me is to keep exercising as much as possible. Keep the blood flowing to all those damaged neurons! That will facilitate whatever healing is going to occur.

I don’t know if any of this will be helpful, but I hope so. Best of luck benzo-warriors!